Lecture 6 - Impact of Disabilities on Families Flashcards
the PALS 2006 survey stated what about families with children with disabilities
- > examined how disability in children impacted famity units, and the parents who care for them
*i.e. household income, health and stress; employment and finances, marital relationtion
and their access to various services and support mechanisms - i.e. financial assistance, childcare services, transportation
prevalence of disability among children in canada (2006)
3.7% of children under 15
- > higher rate of bots
*we dont have much data for kids under 4 as its not really detected
parent health and life satisfaction
- > 6/10 parents report good to excellend health and 8/10 consider their life satisfaction to be good-excellent
- > as severity increases, twice as many parent report being in fair-good health and/or having fair-poor life satisfaction
- >
daily sources of stress for parents with a child with a disability
- > almost half of parents said their daily stress range is a bit stressful-extremely stressful
- > a quarter of those parents reported their childs health condition as the main source of stress
- > the severity of the child’s disability
- > the severity of the child’s disability had an impact on whether a parent cited their child’s health as their main source of stress in daily life
how do parents feel about balancing responsibilities
nearly half of parent of children with a mild-moderate disability reported sometimes/always having feelings of stress about balancing responsibilities
- > tis rate nearly doubled to 82% for parents of children with severe-very severe disability
Do parents with children with severe disabilities feel as though they’re doing enough
half of parent with children with mild-moderate disabilities sometimes or always felt they should be doing more for their child
- > 4/5 parents with more severe disabilities reported similar feelings
how are parents careers affected by having a child with a disability
- > largest impact was related to hours worked
- 1/3 reduced hours and an additional 1/3 adjusted their work schedule (start later) to accommodate their child
- parents with child with more severe disabilities reported more
- > 3/10 turned down a promotion or have and quit woking
how are mothers employment opportunities affected compared to their husbands
- > over 6/10 mothers were the main person impacted by employment modifications compared to less than 1/10 fathers
- in these cases, 2/3 reported working fewer hours and 1/2 reported having adjusted their work hours
- > however 1/4 of both mother and father shared employment adjustments
how does disability affect houshold income
there has been a correlation found between having a child with a disability and a family’s likelihood of falling below the low-income-cut-off
- > nearly 1/5 houses with a child with an activity limitation lived in a household that fell below the LICO, compared to 13%
- > the chances of falling below LICO increase as the severity of the disability increases
- > the additional financial strain may be associated with the extra costs related to special accommodations for the child’s condition
how can having a child with a disability affect the parents personal time
- > half of parents reported sometimes/always feeling that they had less personal time due to the responsibilities associated with the child’s condition
social supports for a family with a child with a disability
- > 1/5 have reported having assistance from other family members, government agencies, and friends and neighbours
- > nearly 75% of parents reported that investing in additional help services was too expensive
- > many parent have to pay out of pocket, which can sometimes be $1000+
- > parents with children with more severe disabilities received financial assistance
do families actively use childcare
- > 1/3 used some form of child care (more mild-moderate) whether it be after school programs or non-relative care
how do physicians and other health care professionals interact with parents of disabled children
- > there is a tendency for physicians and heath professionals to “recast the illness or disability into issues which they can manage” and also view the family as part of the problem
- perceived incompetence when not following advice, family bears some responsibility for the disability, overly emotional and unable to comprehend information and make resonable decisions
review acceptance and denial example from this class
