Lecture 2 Flashcards

1
Q

What are the limitations of population data and indigenous identification in census?

A

Indigenous populations are typically younger than non-indigenous population

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2
Q

How is the recording of aboriginal people health outcomes different compared with non-aboriginal people?

A

Aboriginal people are under-identified in health related data collections.

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3
Q

What is the most accurate means of recording indigenous status in health data?

A

Self-reporting

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4
Q

What is the point of recording indigenous status in health data?

A

Relevance to quality of care. Not necessarily technical but access to entitlements. Clinician/practice awareness of additional risks and cultural needs.

Need to measure and monitor aboriginal health indicators over time.

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5
Q

What is the point of recording indigenous status in health data?

A

Relevance to quality of care. Not necessarily technical but access to entitlements. Clinician/practice awareness of additional risks and cultural needs.

Need to measure and monitor aboriginal health indicators over time in order to close the gap and track progress towards closing the gap.

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6
Q

What is the study design used for the descriptive studies conducted on aboriginal people regarding child health?

A

WA aboriginal child health survey:

State wide representative sample of 1 in 6 aboriginal families with children 0 - 18 years.

Indigenous control and consultation

Sample based on sample of dwellings - area based clustered sample design

84% response rate.

Informed consent confirmation and identification.

Extensive questionnaire, multi-visits

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7
Q

What was the outcome of the case control study of association between kava use and pneumonia in Eastern Arnhem Land aboriginal communities?

A

226 cases of pneumonia compared against community control. Pneumonia not associated with kava use

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8
Q

What were the limitations of the case control study of kava use in populations with pneumonia in Eastern Arnhem Land Aboriginal communities?

A

illegal status of kava, mobility of population, a number died

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9
Q

What percentage of people made up control and what percentage made up cases for the study on case control study of kava use in populations with pneumonia in Eastern Arnhem Land Aboriginal communities?

A

Kava users made up 49% of cases and 46% of controls

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10
Q

What was the event rate seen in the cohort study of coronary heart disease events in aboriginal australians?

A

12.6/1000 p-years

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11
Q

What factors were associated with Coronary Heart Disease in Aboriginal people?

A

Hx of diabeetus

Overweight or obese

Smoking

Hypertension

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12
Q

What outcome was seen in the interventions for pregnant ATSI women?

A

Aim to determine effect of intensive smoking cessation intervention for pregnant Aboriginal women on smoking rates

70% participation rate, 64% GP adherence to treatment protocol

89% in intervention group and 95% control group were smokers at 36 weeks

No significant difference in smoking rates

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13
Q

What are the issues of recruiting aboriginal people in health research?

A

Community engagement is necessary, time consuming and expensive.

Identify the keyholders and get to know the lay of the land.

Advice/support from reference or advisory group

Link research to health issues that the community consider important

Distance – difficult and expensive to travel to regional & remote communities

Diversity of Aboriginal populations – consider language, cultural protocol of different groups

Cultural awareness & self-reflection

Embed capacity building

Recruitment may take longer than expected

Sample size issues

Budget issues

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14
Q

What are the issues of recruiting aboriginal people in health research?

A

Community engagement is necessary, time consuming and expensive.

Identify the keyholders and get to know the lay of the land.

Advice/support from reference or advisory group

Link research to health issues that the community consider important

Distance – difficult and expensive to travel to regional & remote communities

Diversity of Aboriginal populations – consider language, cultural protocol of different groups

Cultural awareness & self-reflection

Embed capacity building

Recruitment may take longer than expected

Sample size issues

Budget issues

Identification of aboriginality

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15
Q

How is research ethics approved for research on aboriginal people?

A

Research needs to be approved by WA aboriginal health ethics committee as well as HREC.

Ethics application has to include letters of support from aboriginal communities and has to incluse statement addressing 6 specific values and ethics.

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16
Q

How is research ethics approved for research on aboriginal people?

A

Research needs to be approved by WA aboriginal health ethics committee as well as HREC.

Ethics application has to include letters of support from aboriginal communities and has to include statement addressing 6 specific values and ethics.

17
Q

What are the 6 specific values and ethics?

A

Reciprocity

Respect

Equality

Responsibility

Survival & protection

Spirit & integrity

18
Q

What are the important concepts and practices of aboriginal research?

A

Co-design of research

Undertake research “with” rather than “on/for”

Data sovereignty

19
Q

What is data sovereignty?

A

The right of Indigenous peoples to govern the collection, ownership and application of data about Indigenous communities, peoples, lands and resources