HL2 - Dr Patient Family Communication Flashcards

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1
Q

What are the different decision making interventions and strategies?

A
  • Coaching patients to ask questions (ASK)
  • Question prompt lists
  • Decision Aids
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2
Q

What is the process of coaching patients to ask questions?

A
  • Study in GP setting - (Shepherd et al., PEC, 2011)
  • Patients coached to asked 3 questions
    • What are my options?
    • What are the possible benefits and harms of those options?
    • How likely are the benefits and harms of each option occur?
  • Designed to prompt physicians to provide minimum information that patients need to make an informed decision => activating the patients (who need to be prepared for the answers)
  • In consultations where ‘patient-actors’ asked the questions:
    • doctors gave more information
    • patients were more likely to share in decision-making
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3
Q

What are question prompt lists?

A
  • Provide a list of common questions patients/families may want to ask
  • Questions may relate to: Diagnosis, prognosis, treatment options, benefits vs costs, support for me and my family
  • Patient/family tick relevant questions & write their own questions
  • QPLs taken into consultation as a prompt
  • Importance of co-design involving key stakeholders
  • Both patients & doctors find QPLs useful
  • Increases likelihood of asking difficult questions
  • More effective with clinicians endorsement
  • Can be used in subsequent consultations
  • Second Ears iphone app
    • Patients given audio-recordings of their consultations
      • Improves understanding and information recall
      • Helps patients to be more actively involved in subsequent consultations & treatment decision-making
      • Provides a means to share accurate info and initiate treatment discussions with family.
      • A copy can be stored with patient’s electronic medical records.
    • Problems
      • Could change behaviour of doctors - practicing defensive medicine - withholding experimental treatments
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4
Q

What are decision aids?

A
  • Inform
    • Provide evidence-based information about: the condition, ALL options (benefits vs. harms)
    • Communicate probabilities in a clear graphical form
  • Clarify values
    • Help to think about the options from a personal point of view
    • Ask which benefits and harms ‘matters most’
    • Facilitate communication/deliberation
  • Support process
    • Guide re steps in deliberation/communication
    • Provide worksheets/QPLS
  • International patient decision aid inventory (IPDAS)
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5
Q

How are decision aids effective?

A
  • Decision aids are effective (Stacey et al. 2018)
    • Feel more knowledgeable about their (screening/treatment) options
    • Feel more informed
    • Are clearer about their personal values
    • Have more accurate risk perceptions
    • More actively participate in decision-making
    • Can improve doctor-patient communication
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6
Q

Why is there an increasing need for & demand for family carers (unpaid care for patient)?

A
  • Improved survival - Chronic illness care
  • Increased incidence of cancer
    • Shift in healthcare delivery from inpatient to outpatient to home-based care
  • Professional care replacement - $60.3 billion
  • Family support comes at a cost
    • Mental illness, stress, become ill themselves
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7
Q

What are the roles of family carers?

A
  • Assist patients with activities of daily living,
  • Accompany them to medical appointments,
  • Provide emotional and informational support
  • help to make important treatment decisions,
  • advocate for their loved ones (ensuring safety and quality)
  • assist in illness management at home,
  • whilst often taking on extra home,
  • family, and financial responsibilities.
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8
Q

What does research say about family involvement in decision making?

A
  • Family usually involved in some capacity, very limited research
  • Hobbs et al. (2015)
    • 49% - Shared decision making with family
    • 1% - Family controlled decision making
    • 22% - Some family input
    • 28% - Little family input
    • Greater involvement in family in different cultures
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9
Q

What is the balance between patient priority and family input in decision making?

A
  • Patient as priority
    • Patient has ultimate authority over a medical decision => patient wishes are paramount
    • Challenge: family who compromise patient autonomy
  • Rights of the family to be involved
    • Although patient rights emphasised, family’s involvement in decision-making also seen as important
    • Some situations may call for greater family involvement
  • TRIO program of research
    • The more people in the room = the harder it can be to judge the mood
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10
Q

Why is family engagement in healthcare important?

A

Family carers seem themselves as secondary to the doctor-patient relationship

TRIO Framework

  • New clinician-patient family conceptual framework
    • Not a prescriptive guide on how family should be involved
    • Describes & maps the possible wide-ranging family influences
    • Captures and explains the complexity and variability of family involvement
    • Spectrum - Relative involvement of each party changes as time progresses
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11
Q

What are the TRIO strategies to facilitate effective family involvement?

A

Everyday Consultations

  1. Consider family carers in inpatient and outpatient procedures and set up
  2. Welcome and encourage family attendance
  3. Build rapport with and show respect to family members
  4. Engage in careful communication of information when family are involved
  5. Be observant of the patient-family relationship
  6. Meet family carers emotional and informational needs

**Challenging & complex situations**

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12
Q

What is eTRIO interactive online training?

A
  • Facilitates the implementation of TRIO guidelines and improve family carer engagement
    • For both clinicians and the family carers themselves through short interactive films
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13
Q

What are the issue with general communication?

A
  • Generally communication skills don’t reflect
    • Personality
    • Natural talent
    • Improve with age
    • Improve with professional experience
  • Even when communication training given, might not apply to communication actually used in hospitals by more senior staff
  • Effective communication skills can be taught, maintained and improved
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14
Q

Why is good communication important?

A
  • Vital for establishing therapeutic/trusting relationship
  • High quality clinical practice
  • Strong evidence
    • Patients value good doctor-patient-family communication
    • Patients are more likely to litigate when communication is poor
  • Good communication can help patients:
    • remember more
    • make more informed decisions
    • adhere to medication better
    • cope better
    • recover quicker
  • Good communication reduces stress and burnout in clinicians
  • Good communication and interpersonal skills of a cliniciano vital for establishing a therapeutic/trusting relationshipo high-quality clinical practice.
  • Patients expect more from their doctors
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15
Q

Why do patients initiate litigation?

A
  • Communication differences between SUED vs. NOT-SUED clinicians
    • Levison et al (1997): 10 audiotaped routine consultations, each with 59 GPs and 65 surgeons (general/orthopaedic) => 1,265 consultations
      • Clinicians who were NOT SUED:
        • longer consultations (only by 3 mins.)
        • explicit agenda for patient
        • facilitating behaviours/active listening
        • used humour
    • Tamblyn et al (2007)
      • Doctor-patient communication score from the clinical skills (licensing) exam predicted future patient complaints to medical regulatory authorities
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16
Q

What is the best way to present risk?

A
  • Communicate via words
    • e.g. If you add radiotherapy to surgery, your chances of the cancer coming back in the same place are MUCH LOWER
  • Use relative risk
    • e.g. having additional radiotherapy will halve you chances of the cancer coming back
  • Absolute risk
  • e.g. pie charts
17
Q

How does absolute risk compare to relative risk?

A
  • Absolute risk
    • your risk of developing the disease over a time period, taking into account risk factors (e.g. age, high blood pressure, family history of illness)
  • Relative risk
    • Compares the risk in 2 different groups of people (e.g. smokers vs. non-smokers)
    • tells you nothing about the actual risk
    • the benefit really depends on how common or rare
    • the disease is (i.e. baseline rate/actual/absolute risk)
  • PROS: e.g., communicating about treatment effectiveness
    • “Radiotherapy after surgery for XX cancer will halve your risk of the cancer coming back”
    • BUT the chance of cancer coming back in this situation is only 2/100, reduced to 1/100 by radiotherapy and radiotherapy can have long-term side effects/ consequences (e.g. chronic diarrhea, infertility)
  • CONS: e.g., communicating about treatment side effects
    • “Taking hormonal treatment/drug XX will double your risk of developing ovarian cancer
    • BUT the base rate of ovarian cancer is very low => the increase is from 1 in 3,000 to 2 in 3,00
  • Active treatment options are chosen more often when outcome described in terms of relative risk reductions rather than absolute risk
18
Q

What are the key points of risk communications?

A
  • Use consistent framing when discussing pros/gains & cons/losses
  • Provide base rates of outcomes
  • Use absolute risk comparisons
  • Provide information about the consequences of the risk
  • Preferred formats are not always the best understood
  • 100 dot/person diagrams: BEST accuracy and understanding
  • Check and re-check understanding of risk
  • Best graphical format will depend on its intended purpose