Ethical Consideration in Death/Dying Flashcards

1
Q

Decisional Capacity

A
  • Provider makes determination based on clinical examination that a patient is able to make decisions for him/herself
  • Differs from competency
  • Patient can receive information, evaluation/analyze the information, and communicate a treatment preference
  • Providers should look for understanding, logic, and consistency
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2
Q

Informed Consent

A
  • Purpose is to promote autonomy of the individual in medical decision making
  • May be viewed as counter productive to physician ideals of patient’s well-being
  • Process where provider discloses information to help a patient make healthcare choices
  • Requires 3 conditions: patient is able to make a voluntary decision, informed, and has capacity to make medical decision
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3
Q

Advanced Directives

A
  • 2 types: Living will (list of what they want done if patient becomes incompetent), decision-maker/surrogate
  • POLST Paradigm Program: starts in 1991, standardized advance care planning document to be completed by healthcare professional with patient or surrogate decision maker
  • Active medical order transferred with patient through HC system
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4
Q

Sudden Cardiac Arrest

A
  • Several factors have been identified that increase likelihood of survival to hospital discharge: witnessed arrest, VT/VF as initial rhythm, pulse regained during first 10 minutes of CPR
  • 24.2% of patients of any age
  • CPR not intended for dying patients in an expected death from chronic illness
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5
Q

DNR Orders

A
  • No code or allow natural death
  • Usually after failing multiple therapeutic interventions
  • Main goal to avoid life-sustaining measures that would be futile or could cause harm in the patient’s final days or hours
  • DOESN’T mean don’t treat
  • May include DNI
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6
Q

Problems with DNRs

A
  • Discussions don’t occur enough for patient’s preferences regarding resuscitation
  • Delayed too late for patients to participate in resuscitation
  • Physician don’t provide adequate information to make decisions
  • Physicians inappropriately extrapolate DNR orders to limit other treatments
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7
Q

Surrogate Decision Maker

A
  • AKA Healthcare proxy
  • Named by patient when he/she had capacity and is a family member or close acquaintance designated by law or statute
  • NM Uniform HC Decision Act identify surrogate in descending order: spouse, close/long term relationship, adult child, parent, adult brother/sister, grandparent
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8
Q

Withdrawing Care

A
  • Asssuming all treatment is stopped, including hydration/feeding death may occur in minutes, hours to days, or stable cardiopulmonary fxn could lead to different care plans including hospital discharge
  • Family should be informed about steps involved and counseled on oxygen and medications for symptom support
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9
Q

Medical Futility

A
  • Serving no useful purpose, ineffective
  • Interventions have no pathophysiological rationale, cardiac arrest despite max treatment, failed intervention
  • No goals can be achieved, success likelihood is very small, QoL is unacceptable
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10
Q

Futility Domains

A
  1. Phsiological/Quantitative Futility: proposed intervention CANNOT achieve desired effect
  2. Imminent-demise futility: likelihood that patient will die in very near future
  3. Lethal-condition futility: patient has terminal illness that will result in death in near future, intervention doesn’t affect illness
  4. Qualitative futility: quality of benefit an intervention will provide is exceedingly poor
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11
Q

Determining Futility

A
  • Doesn’t apply to treatments globally, particular interventions at particular times for specific patients
  • Futile treatments can be continued temporarily to help patient or family come to terms with situation
  • Allow for closures/goodbyes
  • Shouldn’t be used to benefit family member if causing substantial suffering or at odds to patient
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12
Q

Problems with Invoking Futility

A
  • Judgements are often mistaken or problematic
  • Futility applies to few patients
  • Unilateral decisions polarize parties
  • Value judgements may be masked as scientific expertise
  • Physicians don’t understand they are not obligated to offer/recommend all interventions
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13
Q

Chemotherapy at EOL

A
  • Palliative vs curative intent
  • Elderly significantly underrepresented in trials but growing population
  • Lack of adequate/ongoing conversation between patient and physician
  • Can decrease quality of remaining life or even shorten survival time
  • Violates nonmaleficence
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14
Q

Ethical Issues Unique to Long Term Care

A

Control/Choice

  • Loss of fxnal impairment and increasing dependency
  • Loss of decision making capacity
  • Limited access to services and specialists

Psychosocial

  • Social and spiritual isolation
  • Limited availability of family
  • Depression
  • Loss of privacy

EoL

  • Higher rates of untreated pain/other symptoms
  • Quality standards/reimbursement incentives support restorative/tech intense care over labor-intensive palliative care
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15
Q

Euthanaisa

A
  • “Good death”
  • Legal in Netherlands, Belgium, Luxembourg, Columbia, and Canada
  • ~50% of physicians in these countries received such a request while <20% received it in US
  • EXIT laws in Switzerland ruled all people of sound judgement (even in mental illness cases) have right to decide manner of death
  • No laws against suicide since 1937, can assist suicide in physically sick if altruistic reasons
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16
Q

Physician Aid-In-Dying

A
  • Legal in 10 US states
  • Overruled in Supreme Court as a right in NM
  • Elizabeth Whitefield EoL Options Act: Terminally ill patient determined to have capacity and ability to self-administer oral medication
17
Q

Lethal Medication

A
  • Rx shouldn’t be filled until 48 hours after it was written
  • Indicate time/date Rx written and first allowable time/date for its fill
  • Secobarbital is commonly used, phenobarbital and morphine can also be used
  • 9 capsules in secobarbital in juice on empty stomach with antiemetics 1 hour prior to ingestion
18
Q

Morphine and Hastened Death

A
  • Many inaccurate believe morphine has a high risk of causing death in elderly and EoL
  • Double effect principle: safe to use when used with appropriate titrations and monitoring
  • Drowsiness => confusion => loss of consciousness => respiratory depression
19
Q

Pharmacist Role

A
  • ASHP Statement on Pharmacist Participation in Medical Aid in Dying
  • Inclusion on care team
  • Medication dispensing and counseling
20
Q

Palliative/Terminal Sedation

A
  • Estimated to be used in 15-30% of dying
  • Provided to both cancer and non-cancer patients
  • Incidence varies based on setting, patient population, culture/ethics - LOTS of variance in definitions
  • Lowers awareness into unconsciousness for patients with severe/refractory symptoms
21
Q

Refractory Symptoms

A
  1. Aggressive palliative treatments have failed or have produced intolerable side effects
  2. Additional treatments are unlikely to provide adequate relief without intolerable side effects
  3. Patient is likely to die before conventional treatment could work
    - Commonly used for pain, dyspnea, delirium, N/V, agitation/restlessness, seizure, myoclonus
    - >50% of patients receiving PS have >1 qualifying symptom
22
Q

Why are we still uneasy about PS

A
  • Moral experiences: evolving terminology doesn’t remove all ethical concerns, causes family distress and believed to hasten death
  • Practice Variation: intent (symptom relief), advanced knowledge of symptom management and palliative care, variance by provider and country
  • Difficulty with prognostication
  • Need for improved communication, education, guidelines
  • Loss of holistic approach to human suffering
23
Q

Existential Suffering

A
  • No concise definition
  • Lack of meaning or purpose, loss of connectedness, thoughts about dying, loss of autonomy and temporality
  • Concerns about separating physical symptoms from spiritual/psychological distress
24
Q

Use of Medical Cannabis

A
  • Lack of efficacy from RCTs regarding efficacy/safety
  • Lack of data/unstandardized dosing (no FDA approval)
  • Most commonly smoked, palliation of many symptoms experienced in terminal illness
  • Variation in THC contents
25
Q

Psychedelics

A
  • Higher levels of existential/spiritual well being with improved QoL and decreased depression/hopelessness
  • Considered integral component of care
  • Psilocybin not shown to be addictive and may have anti-addictive effects (used for alcoholism and cancer distress in 50-70s)