Chronic Illness and Patient Reported Outcomes

Question 1

What is chronic illness?

Answer 1

Diseases that is controlled but not cured

Question 2

What is illness work?

Answer 2

Getting a diagnosis
Managing symptoms
Self-management e.g. expert patients

Question 3

What is life work?

Answer 3

Normalisation of illness in dat-to-day life

Question 4

What is emotional work?

Answer 4

Protection the emotional well being of oneself and others
e.g. downplaying symptoms
Effect on normal role e.g. no longer being the main breadwinner

Question 5

What is biographical work?

Answer 5

Loss of self image

Biographical disruption

Question 6

What is identity work?

Answer 6

Stigma and perceptions

Question 7

Why is easing patient outcomes important?

Answer 7

Indicate need for healthcare
Target resources correctly
Monitor progress
Evaluate quality and effectiveness

Question 8

What measures can be used to assess outcomes?

Answer 8

Mortality
Morbidity
Patient based outcomes

Question 9

What are the advantages of patient based outcomes?

Answer 9

Increasing number of LTCs means there is more management than cure
Biomedical tests and results are just one aspect

Question 10

What are some examples of generic PROMS?

Answer 10

SF36

EQ-5D

Question 11

What are the advantages/disadvantages of generic PROMS?

Answer 11

Broad
Enable good comparisons
BUT
Less detailed
May be less acceptable to patients

Question 12

What is an example of a specific PROM?

Answer 12

Oxford hip score

Question 13

What are the advantages/disadvantages of specific PROMS?

Answer 13

More relevant and acceptable to patients
BUT
Only useful to specific diseases
More limited comparison