Articles Flashcards
seven fundamental engagement practices that carers and family want from health services
- Identify and acknowledge family and care.
- Engage and communicate with family and carers.
- Involve family member/carer in planning/collaborations.
- Assessment of family member/ carer needs.
- Provide or offer ongoing support to family and carers.
- Provide psycho-education to family and carers.
- Provide or recommend referrals of family and carers to another service
carers can feel
isolated,
emotionally burdened,
have high levels of distress
low personal wellbeing
sometimes feeling resentful due to their caring role
- not being updated, meetings interrupted, input not valued
32% of carers were asked by “… a doctor, nurse, or social worker … about what was needed to care for their recipient”only 16% were asked about their own needs
the term carer has been criticised as
can convey dependency and negates the reciprocal give and take relationship that exists between some carers and the consumer
Inputed program:
Once a week meet the family
-2 half days of training provided
-talk to your pt. about what their care giver is and needs
- Found that people just needed someone to talk to
- Opportunity to ask questions
- HCW thought it helped to engage families
- Not all families will use the service (46% did)
- The ward will have greater ideas of family issues
Imagine you are working in acute care, what could you do knowing the results of this research in the absence of a formal program?
-make apts with the family so it’s schedueled and they can bring who they need to
-talk to the family if you see them come in even without an apt
-hallway convos aren’t great. Sometimes you have thigns to discuss that you don’t want to say in front of pt;
What were the specific differences between the social workers and RPNs?
- Social workers engaged more with families than RPN (who are lowest behind SW/psycholigists)
-Sw higher confidence, providing referals, assess impact of children, provide support tp carers/children, knowelge on skills and impact on families. - RPNs least amount of direct family care. We have to look after the pt. the SW doesn’t need to
- RPNs lowest confidence levels with working with famiels
- SW - working with families seen as their particular area of expertise
most clinicians supported the need to give patients a named diagnosis
multiple reasons for not doing so in practice
- concerns for the patient
- fear of making an incorrect diagnosis
f- ear of the patient’s distress, - harm from stigma
- patient’s lack of insight
- Suicide in response to receiving a - schizophrenia diagnosis was much feared by some.
- The inability to cure schizophrenia or even, in many cases, to ensure a good quality of life for their patients
- they protected clients by not giving a diagnosis, in order not to destroy their hope.
- offered it only if requested by patients
- diagnosed as having schizophrenia is not necessary for treatment to take place
the term schizophrenia should be used
The clinician distinguished between younger and older people when it came to providing a diagnosis
felt that it was important for older people to “understand what their illness is, and the name of it, and identify with that and take the correct steps in looking after themselves.”
Clinicians using substitute diagnoses was associated with
service-users experiencing a poorer understanding of their condition
Clinicians who were ______ reported more frequent diagnostic disclosure
Clinicians who were psychiatrists, younger and newer to the profession reported more frequent diagnostic disclosure
The SPIKES protocol
- a framework borrowed from oncology where it was developed to synthesise information in a stepwise fashion
- six SPIKES steps
– Setting up the interview; assessing the individual’s
– Perception of their medical circumstances;
– obtaining their Invitation to receive the information;
– giving the requisite Knowledge;
– responding Empathically to emotions; and
– Summarizing the treatment processes.
