What's in a question? Survey do's and don'ts Flashcards
1
Q
What is the definition of:
- Patient Reported Outcome (PRO)
- Patient Reported Outcome Measures (PROM)
A
- Patient Reported Outcome (PRO) → a health outcome directly reported by the patient who experienced it (different to an outcome reported by someone else, such as a physician-reported outcome). PROs can’t be objectively measured.
- Patient Reported Outcome Measures (PROM) → standardized, validated surveys. Used to study how you feel about your health status in areas such as pain, mobility, ability to perform daily tasks.
2
Q
What is the difference between a Patient Reported Outcome (PRO) and a Patient Reported Outcome Measure (PROM)?
A
PROs provide reports from patients about their own health, quality of life or functional status associated with the health care or treatment they have received. PROMs are tools and/or instruments used to report PROs.
3
Q
How are PRO(M)s validated?
A
- Whether the application of PRO(M)s can be applied in another population, another language, another format.
- A new situation results in a new validation of a PRO.
4
Q
What are four important factors that determine whether a PRO(M) is validated?
A
- Valid → measures what it appears to measure.
- Reliable → has no (systematic) measurement errors.
- Responsiveness → ability to measure change over time
- Interpretability → (clinical) meaning of the score
5
Q
What are important considerations that help to determine which questionnaire can be used?
A
- General
- Specific
- What are you going to measure?
- When?
- How often?
- Validated vs unvalidated
- Free?
- Registration?
- Which version?
- Scoring?
- Population norms?