What's in a question? Survey do's and don'ts Flashcards

1
Q

What is the definition of:
- Patient Reported Outcome (PRO)
- Patient Reported Outcome Measures (PROM)

A
  • Patient Reported Outcome (PRO) → a health outcome directly reported by the patient who experienced it (different to an outcome reported by someone else, such as a physician-reported outcome). PROs can’t be objectively measured.
  • Patient Reported Outcome Measures (PROM) → standardized, validated surveys. Used to study how you feel about your health status in areas such as pain, mobility, ability to perform daily tasks.
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2
Q

What is the difference between a Patient Reported Outcome (PRO) and a Patient Reported Outcome Measure (PROM)?

A

PROs provide reports from patients about their own health, quality of life or functional status associated with the health care or treatment they have received. PROMs are tools and/or instruments used to report PROs.

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3
Q

How are PRO(M)s validated?

A
  • Whether the application of PRO(M)s can be applied in another population, another language, another format.
  • A new situation results in a new validation of a PRO.
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4
Q

What are four important factors that determine whether a PRO(M) is validated?

A
  • Valid → measures what it appears to measure.
  • Reliable → has no (systematic) measurement errors.
  • Responsiveness → ability to measure change over time
  • Interpretability → (clinical) meaning of the score
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5
Q

What are important considerations that help to determine which questionnaire can be used?

A
  • General
  • Specific
  • What are you going to measure?
  • When?
  • How often?
  • Validated vs unvalidated
  • Free?
  • Registration?
  • Which version?
  • Scoring?
  • Population norms?
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