week 7 Flashcards
what are dementia villages?
specialized model of care
for those with sever/advanced dementia
for those used to living in a city environment
no big anonymous buildings - but manageable and pleasant residential areas. comfortable for everyone to live. residents feel safe at home
they enjoy living out their final days, connected with family, caregivers, healthcare- and service providers. can enjoy the precious life they were used to and still want to lead.
describe the dutch model example of dementia villages?
the Hogeweyk
opened in 2008. renovated and updated in 2018
publicly funded
describe village Langley
located in Canada
opened in 2019
privately funded
operated by verve
costs approximately 8.5k /month
what is the first publicly funded dementia village in canada? how is the LTC cost determined for residents?
Together by the Sea (Comox, BC)
set to open 2024
monthly costs based on 80% of a person’s after tax income
what are the pros to dementia villages?
individualized care
more home like environment compared to the hospital/medical setting
sense of familiarity
family and friendships
what are the cons to dementia villages?
costs
camera
privacy
co-morbidities
what is the butterfly model of care?
focuses on delivering emotion-focused care that connects with people in a dignified, human way
addresses the holistic needs of the individuals and supports quality of life for each person living with a dementia across the whole of their lived experience
who developed the butterfly model? describe the adoption of the butterfly model?
butterfly model developed by David Sheard
has been adopted by more than 30 care homes world-wide, most of which are located in England
there’s a specialized unit aims to curb aggression in dementia patients.
describe the appearance of communities using the butterfly model of care
homes are best known for their aesthetic appeal are painted inside with bright, colourful murals
describe the dementia friendly project in canada
the Dementia-Friendly Canada™ project is a partnership between Alzheimer Societies across the country. One of the project goals is to train Canada’s workforce to be dementia-friendly.
a Dementia Friendly Community is a place where people living with dementia are understood, respected, and supported (ASO).
the building dementia friendly communities e-learning course is designed for professionals working in which 3 areas?
recreation and library
restaurant and retail (customer services and general public)
public transportation sectors
what are the 4 modules that make up the dementia friendly course?
What is a dementia-friendly community?: An introduction to the concept and dementia-friendly efforts at the community level.
Dementia-friendly interactions: Social environment considerations, such as ways you can communicate effectively with someone living with dementia.
Dementia-friendly spaces: Physical environment considerations, such as ways you can optimize your space to be dementia-friendly.
Dementia-friendly policies, practices and services for organizations: Provides specific scenarios and recommendations.
how serious is dementia? how many new cases per year? dementia is the #___ leading cause of death?
7th leading cause of death
10 million new cases per year
in 2019, how many people were living with dementia, globally? out of which, how many are from in europe? sweden?
describe these numbers in the future, around 2050?
55.2 million
14.1 million from europe
150k from swedan
expected to almost double by 2050
what are the symptoms of dementia?
the most common symptom is the inability to remember new information which occurs gradually
changes in behaviours and mood including aggression, agitation, apathy, sleep disturbances, wandering, depression, social isolation, inappropriate behaviours, feeling sad and anxious, and showing less interest in the emotions of other people
describe the aging at home policy?
a fundamental principle in Sweden’s eldercare
promotes the individual’s right to remain in their homes as long as possible at their capacity and own will
reduced the number of people 65+ that live in institutions from 5.3 % in 2010 to 4 % in 2019
58% of people with dementia live at home
led to a rise in family caregivers (FCs) who play a significant role
what are family caregivers (FC)?
those who provide unpaid informal care
most informal care in Sweden is provided by older spouses and women (spouses and adult daughters)
in 2018 there were 110 000 FCs to PWD in Sweden
what are the consequences of family caregiving?
high caregiver stress is seen among family caregivers of people with dementia
caused by:
- constant need for vigilance
- personality/behaviour changes in the person with dementia
could result in depressive symptoms, insomnia, emotional stress
what are some examples of support for family givers of people with dementia?
in Sweden, the municipalities, 290 altogether, are legally required to meet the needs of older people regarding home health care, social service, and institutional care
July 1st 2009 - The National Board and Welfare, the Social Act requires municipalities to provide support to FCs of persons with chronic illness, older persons, and persons with functional variation
what are the types of supports for family caregivers of people with dementia? describe them
indirect support (most common)
- support aimed towards the person with dementia (i.e., home care, rehabilitation, and senior daycare)
- aimed to relieve the FC in their caregiving role
direct support
- support aimed towards the FC through community-based social care professionals.
- social care professionals (e.g., social workers, nurses, Silvia nurses and healthcare assistants)
— often work part-time, combining their work with other responsibilities (i.e., clinical work)
— commonly lack a job description, often left to self-organize their work
the support provided varies across Sweden
what is mHealth?
mHealth as medical and public health practice supported by mobile devices, such as mobile phones, patient monitoring devices, personal digital assistants (PDAs), and other wireless devices
what are the benefits of mHealth for family caregivers of people with dementia?
Cost- and time-effective tool
Bridge geographical gap
Individualised, demand-driven, real-time, and time-effective communication, information and
support
what is STAV?
a tailor-made and interactive mHealth application to alleviate stress and improve quality of life. a support for family caregivers
interact with health care professionals, peer support, diary, well being exercises, and relevant services
aims to involve the increasingly digitally literate FCs and provide community-based social care professionals with an innovative digital tool to provide support.
what are the expected health related outcomes of STAV?
primary outcome
- reduction of caregiver stress amongst FCs to PWD
secondary outcomes
- reduction of depressive symptoms amongst FCs to PWD
- reduction of loneliness amongst FCs to PWD
- improved quality of life of FCs to PWD
what is value co-creation?
Value in healthcare is multidimensional, subjective, and contextual
- “Value is always uniquely and phenomenologically determined by the beneficiary”
- Experiential value
Value co-creation is defined as: ‘‘benefit realized from integration of resources through activities and interactions with collaborators in the customer’s service network”
describe the theme of cooperating
cooperating is regarded as a low-level activity, that can include complying with the basics (e.g., treatment, requirements) or accepting the information provided by the service provider
experiential value: increased access to information and healthcare services, comfort and support
describe the theme of co-learning
co-learning is regarded as a high-level activity that includes activities such as actively seeking knowledge outside of the focal firm (the service/healthcare provider) and sharing the acquired information with the focal firm.
experiential value: customised knowledge
what are the facilitators of value co-creation and digitalization implementation? the outcome?
Perceived usefulness of the mHealth application
- stages in dementia
- caregiver stress
FCs’ personal characteristics
- digital literacy
- motivation
- attitudes toward technology
outcome: real-time, demand-driven, customized support
