Week 6: Palliative Care Flashcards
Describe the type of approach that is “palliative care”
Child and family centred approach to care that is based on shared decision making and sensitivity to spiritual values, beliefs, and practises
What is paediatric palliative care?
Active, holistic approach to care which focuses o relieving the physical, social, and psychological and spiritual suffering faced by children and families who face a life threatening condition.
Is palliative care limited to end of life care?
No. This is a supportive care that is build in at the initiation of any treatment plan. can and should be integrated early with curative care
Give some examples of patient populations who could benefit from palliative care
Patients who face life limiting and life threatening conditions (i.e. renal disease, cerebral palsy, oncology, cardiac)
What is the timeline for the model of palliative care?
Disease management with pain symptom managements, this then leads to rehab and survivorship or hospice, palliative care and bereavement (post mortem support)
What are some symptoms faced in the end of life?
N/V, dysphagia, xerostomia, hiccups, constipaiotn, UTI, neurological disturbances, delirium
What are some difficulties within treatments aimed at achieving survival?
Intensive with a significant symptom burden that is long-lasting and disruptive to the life of the child and family
Talk about the role of the family-who is the patient?
The family. Look at siblings, grandparents, parents, others
What is essential to planning appreciate care?
Assessment of the patient and family. The needs of the patient and family can change throughout the illness and must be continually assessed
Individualized and mobile
What should you always assume?
Assume the child knows more than you think and you will always be right
Discuss some ethical considerations
Consent, amount of info to share with child/siblings, family-focused decisions making, pain management, DNR
What are some end of life supports for families?
Open door policy, parents have 24hr access, a physical who can provide at home care, flexibility to come in and out, support with final arrangements
Can early PPC lead to a prolonged life?
Yes
Must a child have a DNR to receive hospice care?
No. Not only for cancer children and they also don’t need to abandon all disease directed treatment
Do all families want end of life care at home?
No
Can administering opioids cause resp depression and quicken death in patients ?
no
Healthcare justice
Access to emerging best practise
Should you see PC as an optional service?
NO its part of the entire treatment package
