Sociological Approaches to Long Term Conditions and Chronic Illnesses. Flashcards

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1
Q

What is a chronic illness?

A

“Chronic diseases are diseases which current medical interventions can only control not cure. The life of a person with a chronic condition is forever altered - there is no return to normal.”

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2
Q

What is a long term condition?

A

“A long term condition (LTC) is a condition that cannot, at present, be cured but is controlled by medication and/or other treatment/therapies.”

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3
Q

What is the difference between chronic illness and LTC?

A

They can be used fairly interchangeably. There are no distinct differences. However the word “chronic” can be perceived as more charged than long term. Long term condition has a more positive outlook so when explaining a condition to a patient the attitude of the patient towards the illness might be more positive if you use the words long term condition instead of chronic illness.

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4
Q

What are some characteristics of a long term condition?

A

The manifestation of symptoms and illness may vary greatly from day to day.
Usually life long.
Can only be controlled but not cured.
LTCs increase with ageing population, i.e. more prevalent in an older age group but that doesn’t mean it isn’t found in younger people.

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5
Q

How much of the total health and care spendings go towards LTCs?

A

Around 70%

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6
Q

Why is awareness of LTCs important?

A

Because the increasing prevalence of long term conditions is the biggest challenge facing the NHS right now. A huge culture change is needed to put people at the centre of decisions about their care.

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7
Q

What is Parsons’ ‘sick role’?

A

A temporary, medically sanctioned form of deviant behaviour.

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8
Q

What are the mechanisms of the sick role?

A

In order to allow deviant behaviour or being excused from usual duties the sick person is expected to seek professional advice and to adhere to treatment.
Medical practitioners are empower to sanction the diseased temporary absence from the workforce and family duties as well as to absolve them from blame.

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9
Q

What are some limitations of the sick role?

A

Not all illnesses are temporary. So where do retired people with LTCs fit in?
Does not acknowledge differences between people.
Does not acknowledge individual agency in defining and coping with illness - not involving medical profession.

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10
Q

What is the sociological theory on chronic illness?

A
The work of chronic illness depends;
Illness work
Everyday life work
Emotional work
Biographical work
Identity work
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11
Q

How does illness work present post-diagnosis?

A

Process can be very unpleasant.
Can be shocking
Very threatening
A relief

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12
Q

What is illness work?

A

Dealing with the physical manifestation of an illness. Self-Management is key.
Then working how how to cope with social relationships
Interaction between the body and identity.
Bodily changes -> self conception changes

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13
Q

Describe emotional work.

A

Work that people do to protect the emotional well-being of others.
Maintaining normal activities become deliberately conscious.
People find friendships disrupted and may strategically withdraw or restrict their social terrain.
May involve downplaying pain or other symptoms
Presenting a cheery self.

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14
Q

Explain biographical work.

A

Usually described as a loss of self.
The former self-image withers away without simultaneous development of new ones.
There is a struggle to lead valued lives
An interaction between body and identity

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15
Q

What is Bury’s biographical disruption?

A

A model built not only for LTCs.
Focuses on people’s experience of the onset of illness as a disruptive event.
Acknowledges differences between individuals.

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16
Q

What are three aspects of biographical disruption?

A

Disruption of taken-for-granted behaviours.
Disruption in explanatory systems.
Mobilisation of resources.

17
Q

What are some limits of the biographical disruption?

A

Does not deal with conditions from birth.
Some social groups expect illness more than others.
Later work has shown that older people may see chronic illness as biographically normal.

18
Q

Explain identity work.

A

Different conditions carry different connotations. (stigma)
Affects how people see themselves and how others see them.
Consequence of actual and imagined reaction of others.
Illness can become the defining aspect of identity.

19
Q

Explain Goffman ‘stigma’.

A

The distinction between virtual social identity and actual social identity. How people see you vs. what your actual qualities are.
Stigma occurs when there is a discrepancy between the two.

20
Q

What is stigma?

A

A negative defined condition, attributed, trait or behaviour conferring deviant status.

21
Q

What forms can stigma take?

A

Discreditable and discredited.

22
Q

What is discreditable stigma? Give an example.

A

An invisible condition, attribute etc.. but is still seen as negative conferring deviant status.
E.g. HIV, mental illness.

23
Q

What is discredited stigma? Give an example.

A

Physically visible characteristics or well known stigma.

e.g. disability or suicide attempts.

24
Q

What is enacted stigma?

A

The real experience of prejudice, discrimination and disadvantage.
As the consequence of the condition.

25
Q

What is felt stigma?

A

Fear of enacted stigma also encompasses a feeling of shame associated with having a condition.
This might lead to trying to conceal the condition.

26
Q

Briefly describe illness work.

A

Manage of symptoms

27
Q

Briefly describe every day life work.

A

Managing daily living

28
Q

Briefly describe emotional work.

A

Managing one’s own emotions and those of others.

29
Q

Briefly describe biographical and narrative work.

A

Reconstruction of biography.

30
Q

Briefly describe identity work.

A

Work to maintain an acceptable identity.