Social Determinants of Health & Patient Experience Research Flashcards
What is the importance of understanding SDoH for brain dysfunction & recovery?
- increase risk for neurological disorders
- interact with treatment access & outcomes
- cultural factors can influence neurorehabilitation
What are examples of the impact of SDoH on risk, treatment access & treatment outcomes?
- risk factors for cognitive decline & dementia
- experiences of discrimination, less likely to have received public health education about stroke
- higher neighbourhood segregation, wait longer to see HCP
- more likely to receive toxicology screen at hospital
- less likely receive tPA & decline (ineffective communication)
Walk through a scenario where cultural factors interact w/ dementia care
Indigenous views of dementia
THEIR BELIEFS
- normal part of the “circle of life”
- caregiving supported by cultural values of interdependence & reciprocity
- emphasis on acceptance & adaptation
- traditional remedies & ceremonies essential to wellness
APPROPRIATE REHAB
- attention to spiritual health as part of overall wellness
- active role for injured person
- shared decision-making
- individualized traditional healing practices
- learning to “live well” vs fixing problems
- incorporation of traditional healers in health care system
Contrast traditional & patient-oriented approaches to research
traditional:
- research team determines topic & method
- interactions b/w researchers & participants happen on researchers terms
- participants seen as data sources to be “mined”
- 1 time monetary compensation
- no mechanisms to return knowledge to communities
- results are published in closed-access academic journals
What are perceived barriers to the inclusion of persons with lived experience in research
- resource-intensive
- whaat if patients shift research agenda away from original purpose?
- lack of supportive infrastructure & research culture
- fear of tokenism
What are some arguments for the inclusion of persons with lived experience in research?
- ethical: nothing about me, without me
- for researchers increases enrolment & retention, understanding & insight into research areas; rapport w/ community, alignment of research objectives with patient priorities
- improves data collection tools, dissemination of study findings & mobilization of findings
- for patients develop own voice & agenda, experience as collaborator, feeling of empowerment, value, confidence, life skills
- improves: trust b/w researcher & patient, quality care in context of research priority setting, patient involvement in decision-making, organization of care
What are possible models of patient engagement?
- long-term advisors (few/many; separate or as board)
- surveys
- interviews
- focus groups
What is palliative care?
approach that aims to improve the quality of life of ppl & families facing life-limiting illness
What is the role of palliative care in brain dysfunction & recovery?
supporting physical, emotional, and existential challenges that come with brain injury or decline, whether or not a full recovery is possible.
How is palliative care different from other components of the healthcare system?
- walking the journey
- symptom management
- preparation
- decision-making
What is Kate’s experience of being diagnosed with dementia? Did she receive adequate support when receiving information? How were her relationships impacted?
“go home and get ready to die.”
minimal support or guidance on how to live with the condition
Friends and family often withdrew, unsure of how to interact with her, leading to feelings of isolation
What is a challenge Nikki experienced while caring for her mother with dementia?
balancing her mother’s autonomy with safety concerns
