Showing compassion and care of the dying Flashcards
How has the hospice movement evolved from its roots to modern day?
- Traditionally based in a ‘care home’ or hospice (as opposed to hospital)
- 80% care now outpatient/day care, in community and home care settings
What are the future challenges for the hospice movement?
- Hospices today already support 200,000 in UK
- Increasingly older population (cancer/other long term conditions)
- Projected double no. of people > 85 y/o in the next 20 years
What defines the hospice movement?
‘More than a clinical need’
- Social, spiritual needs as well as physiological/psychological
“There is so much more to be done”
How did the hospice movement shape palliative care?
- Improving QoL of patients and families alike facing a life-threatening illness
- Prevention and relief of suffering by:
• Early identification
•Assessment
• Treatment of pain
• Treatment of physical/psychosocial/spiritual needs
How did Dame Cicely Saunders re-shape pain relief?
- Previous practice in 50s/60s was to administer diamorphine (heroin) by injection only in ‘unbearable’ pain relief
- But became apparent that regular morphine PO provided better pain relief w/no more S/Es, w/no addiction
»> “Constant pain needs constant control”
What is holistic care?
- Considers person as a whole; physically, psychologically, socially and spiritually, in the management and prevention of disease
- Stemming from concept of link between between physical health and general ‘well-being’; virtuous circle based on trust, building rapport w/patient and family.
Why must patient pain be tackled?
Associated w/anxiety and depression
How do hospices channel holistic care in their setting?
- Hospices have warm furnishings, sympathetic lighting etc.
- ‘Home from home’
- No set ward rounds/visiting times
- Happy but tranquil environment
What is meant by the term, pharmaceutical care?
- Holistic approach; not just palliative medicine
- Legal, moral and professional responsibility; improving patient QoL, or preservation of QoL for as long as possible.
- “The responsible provision of drug therapy for the purpose of achieving definite outcomes that improve patient QoL”
What is medicines optimisation?
- Supporting safe, effective medicines use
- Not just focus on the medicines; support patient’s experience of taking evidence-based medicines safely
“Person behind the pills”
How are hospices funded?
- NHS (32%)
- Charities (68%)
- Privately run (some)
What are the examples of team-based services that hospices offer?
- Inpatient and respite care (giving carers a needed break)
- Outpatient and day care
- Hospital in-reach (inpatients; going into hospitals, recommendation for transfer to hospice etc)
- Community outreach
- Bereavement counselling
- Complementary therapy; aromatherapy, relaxation, Tai Chi etc.
- Research and education
> > > Offer choices of where patient wants to die.
How do charities contribute to the hospice movement?
- Charity shops
- Clinical care; provide support, information resources, counselling
- Funding grants
- Campaigns; policy and advocacy, “Dying matters” campaign etc.
- Education and research
- Specialist; improving care worldwide
What is “to palliate”?
- To relieve or lessen without curing; to mitigate or alleviate symptoms
»> Does not necessarily lead to end of life care.
Why is pain control important (in palliative care/general)?
Pain is patient’s greater fear (70%)