Service-User Led Research Flashcards
How many people resided in asylums in 1950 and 1984?
500 000 to 0
What was found with the Camden Mental Health Consortium?
Interviewed people with experience in District hospitals and Community health centres.
Gave them a voice
Complex findings: Some aspects were missed and some aspects of new were disliked.
What did the Department of Health setup in 1996?
Consumers in NHS research with aim of:
Increase patient benefit,
Involve users of health career
Make research more relevant
What are PROMS and what are the new changes to it?
Patient Reported Outcome Measures, forms filled out by the patients.
Now there is patented generated PROMS, where service users get to shape the research.
And most recently conduct the research.
What are PROMS and what are the new changes to it?
Patient Reported Outcome Measures, forms filled out by the patients.
Now there is patented generated PROMS, where service users get to shape the research.
And most recently conduct the research.
What is VOICE?
Views on In-Patient care
User Led research: Looking at recent patients, one group was detained patients, however, all groups contained someone who had been detained.
4 groups of 6-8, qualitative and quantitative questions. designed by patients.
Feasibility: Testing questionnaire
Then Statistics
Results back to group.
What are gatekeepers and how did they effect the VOICE study?
These are people who grant access to your sample.
Healthcare professionals in the VOICE study: Excluded those deemed too chaotic or unwell or residence ambivalent or lacked capacity.
What are the critiques of USER LED research?
People can’t see past the patient’s identity
Bias implicit and explicit
Anecdotal
Epistimoligal and political
What is the CRPD and why is ti important?
Convention for Rights for People with Disabilities.
Assumes you can never questions someones capacity (Article 12).
Endorsed by 150 countries: not UK
What are the benefits of peer support?
Air grievances
Experiences shared
Collective solutions
The danger of making them professionals in the West.
