RA 9288 - NEWBORN SCREENING ACT OF 2004 Flashcards
A simple procedure to find out if a baby has a congenital disorder that may lead to mental retardation or even death if left untreated.
Newborn Screening
By doing NBS, _______ disorders may be detected even before clinical signs and symptoms are present.
Metabolic
was integrated as part of the country’s public health delivery system with the enactment of the Republic Act no. 9288
Comprehensive Newborn Screening (NBS) Program
acts as the lead agency in the implementation of the law
DOH
Newborn screening program in the Philippines currently includes screening of which six disorders?
â—‹ congenital hypothyroidism (CH)
â—‹ congenital adrenal hyperplasia (CAH)
â—‹ phenylketonuria (PKU)
â—‹ glucose-6-phosphate dehydrogenase (G6PD) deficiency
â—‹ galactosemia (GAL)
â—‹ maple syrup urine disease (MSUD)
The expanded screening will include how many more disorders?
22 more:
â—‹ Hemoglobinopathies
â—‹ Additional metabolic disorders, namely, organic acid, fatty acid oxidation, and amino acid disorders
National Policy and Strategic Framework on Expanded Newborn Screening for 2017-2030
Administrative Order No. 2018-0025:
Guidelines on the Implementation of the Expanded Newborn Screening Program
Administrative Order No. 2014-0045
When is NBS ideally done?
immediately after 24 hours from birth
How is NBS done?
A few drops of blood are taken from the baby’s heel, blotted on a special absorbent filter card and then sent to Newborn Screening Center (NSC).
Who collects samples for NBS?
physician, nurse, medical technologist or trained midwife.
Entitled “Declaring the 1st Week of October of Each Year as “National Newborn Screening Week”
Proclamation No. 540
Who approved Proclamation No. 540?
Gloria Macapagal-Arroyo
When is Proclamation No. 540 dated?
January 20, 2004
shall ensure that every baby born in the Philippines is o ered the opportunity to undergo newborn screening and thus be spared from heritable conditions that can lead to mental retardation and death if undetected and untreated
National Newborn Screening System
When shall health practitioners who deliver, or assist in the delivery inform the parents or legal guardian of the newborn of the availability, nature and benefits of newborn screening?
Prior to delivery
When shall NBS be performed?
twenty-four (24) hours of life but not later than three (3) days from complete delivery of the newborn
Newborns in the ICU that are exempted from the 3 day requirement must be tested by how many days of age?
7 days
Whose joint responsibility is it to ensure that newborn screening is performed?
Parent(s) and the practitioner or other person delivering the newborn
Which grounds shall a parent or legal guardian refuse testing?
Religious beliefs
In what grounds shall a parent or legal guardian refuse testing?
Religious beliefs
The monitoring of a newborn with a heritable condition for the purpose of ensuring that the newborn patient complies fully with the medicine of dietary prescriptions
Follow-up
Any condition that can result in mental retardation, physical deformity or death if left undetected and untreated and which is usually inherited from the genes of either or both biological parents of the newborn
Heritable condition
A child from the time of complete delivery to 30 days old
Newborn
A facility equipped with a newborn screening laboratory that complies with the standards established by the NIH and provides all required laboratory tests and recall/follow-up programs for newborns with heritable conditions
Newborn Screening Center
These agencies shall require health institutions to provide newborn screening services as a condition for licensure or accreditation.
DOH and the Philippine Health Insurance Corporation (PHIC)
This is functions to:
â—‹ review annually and recommend conditions to be
included in the newborn screening panel of disorders;
â—‹ review and recommend the newborn screening fee to be charged by Newborn Screening Centers;
â—‹ review the report of the Newborn Screening Reference Center on the quality assurance of the National Screening Centers; and
â—‹ review annually and recommend conditions to be
included in the newborn screening panel of disorders;
â—‹ review and recommend the newborn screening fee to be charged by Newborn Screening Centers;
â—‹ review the report of the Newborn Screening Reference Center on the quality assurance of the National Screening Centers; and
â—‹ recommend corrective measures as deemed necessary.
Advisory Committee on Newborn Screening
shall serve as the Secretariat of the Committee.
NIH
The National Screening Reference Center shall be responsible for:
â—‹ the national testing database and case registries;
â—‹ training;
â—‹ technical assistance; and
â—‹ continuing education for laboratory staff in all Newborn Screening Centers.
shall maintain a national database of patients tested and a registry for each condition.
NIH Newborn Screening Reference Center
How long shall a plan for long-term outcome evaluation of NBS be developed?
(1) year of passage of this Act
Implementation of this plan shall become a responsibility of the?
Advisory Committee on Newborn Screening.
shall include the cost of newborn screening in its benefits package
philippine health insurance company (PHIC)
How many percent of fees go to DOH’s Centers for Health Development
4%
How many percent of fees go to the NIH Newborn Screening Reference Center?
4%
How much is the fee for expanded newborn screening
1,500 php
How much is covered by Philhealth for NBS fees
550 php
What is the maximum allowable NBS service fee according to Administrative Order 2005-0005?
50.00 php
First offense penalty for health facilities that refuse to provide NBS services and collect more than the maximum allowed NBS fee:
Warning
Second offense penalty for health facilities that refuse to provide NBS services and collect more than the maximum allowed NBS fee:
administrative fine of fifty thousand pesos (P50,000.00)
Third offense penalty for health facilities that refuse to provide NBS services and collect more than the maximum allowed NBS fee
administrative fine of one hundred thousand pesos (P100,000.00)
When is the date of approval of RA 9288?
April 7, 2004
How many sections are there in RA 9288?
19
Who was the president that signed this into law?
Gloria Macapagal-Arroyo
