protection human subjects/strengths and limitations

Question 1

How will you ensure protection of human subjects/anonymity?

Answer 1

Removing any identifiers from transcripts- both staff and participants

Keeping things site anonymous, if not able to really be site anonymous cant include

want specificity but cant publish concrete examples that are identifiable. will have to

Small numbers of staff..will make it somewhat difficult. Clear language in consent that protection of human subjects is priority

pause in interview if someone has crossed the PHI line and said something that will have to be redacted

in IRB clear statement about who can have access to the data

Question 2

You say rigor. What does rigor mean? Why is ASCM rigorous? Why is mixed proposal rigorous?

Answer 2

the soundness or precision of a study in terms of planning, data collection, analysis, and reporting

ASCM quantitative methods are considered an effective approach for estimating causal effects when randomization is not feasible. Addresses issue of no good control units and allows for time varying covariates

Mixed methods research that mixes at multiple stages is considered more rigorous (Creamer, 2018), and mixing will occur at sampling, data collection, data analysis, and inference stages.

Analytic approaches including joint displays and meta inferences will allow for substantive mixing and data integration.

Additionally, the research team has strong relationships with MONSE, a history of evaluation of SSB, and relevant methodological experience which will allow for meaningful and timely collaboration as well as rigorous methodological work.

Question 3

talk more about importance protection hsr, specifically in this context

Answer 3

my first responsibility is to
the speaker, not to safe streets and not to the broader research community,

safety- of workers, of clients. overly cautious about what could be consider identifiable information

retaliation from co-workers, boss,

SSB delicate relationship with police. dont want any data that might be relevant to police, if a SSB client read would feel violation of the confidentiality they assumed w staff

information that can be de-identified and perhaps used internally that is not published

sensitive nature of topic, may need to prioritize things other than transparency and replicability. may not be able to record every interview

could consider altering information to protect identities, dont have experience w that, will need mentorship and not sure feel comfortable- transparency of data etc.

arrest for illegal activity, embarrassment, loss of reputation, dismissal from work, the consequences of stigma, and loss of privacy and control

Question 4

role of research in general

Answer 4

tenuous relationship between evaluation and program

political topic

long history of relationship, hope to continue, about much more than me and my dissertation

Question 5

key tenets ethics/hsr

Answer 5

informed consent (consent received from the
subject after he or she has been carefully and truthfully informed about the
research),

right to privacy (protecting the identity of the subject),

protection from harm (physical, emotional or any other kind)- The well-being of the subject should “take precedence over the interests of science and society.”

Question 6

certificate of confidentiality, oral consent

Answer 6

Certificates of Confidentiality are issued by the National Institutes of Health
(NIH) to protect identifiable research information from forced disclosure.
They allow the investigator and others who have access to research records
to refuse to disclose identifying information on research participants in any
civil, criminal, administrative, legislative, or other proceeding, whether at the
214 Qualitative Inquiry
federal, state, or local level. Certificates of Confidentiality may be granted for
studies collecting information that if disclosed could have adverse consequences
for subjects or damage their financial standing, employability, insurability, or
reputation

oral consent (not written)

Question 7

belmont report

Answer 7

Respect for Persons​
-Recognize & Respect Individual Autonomy​
-Protect those with diminished Autonomy ​
[Informed Consent Process, Special Protections for Vulnerable Populations]​

Beneficence ​
-Do No Harm​
-Maximize potential Benefits/Minimize Potential Harms ​
[Study design, Risk/Benefit Ratio]​

Justice​
-Fairness in selection of subjects​
-Be sure access to research is not denied from certain subjects​
-Be sure research burden is not imposed on certain populations​

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