patient reported outcome measures Flashcards
what is a PRO
patient reported outcomes. how patients describe their health condition
what is a PROM
patient reported outcome measure - basically is a tool used to measure a PRO e.g a survey
explain the difference between a PROM and a PRO
PRO is the (for example) anxiety a patient feels and a PROM the HADS anxiety scale used to measure the patients anxiety
what is the difference between quality of life and health related quality of life
quality of life is a multidimensional concept factoring in physical, mental emotional and social factors whereas health related quality of life is the impact of treatments of disease and the holistic aspects of that patients life
what are the types of PROMS
generic-taking the measurement in any patient population
disease specific- developed to be specific to that disease
unidimensional - only 1 element measured e.g pain
multidimensional- lots of different symptoms measured
PROM will be 2 of these e.g generic and unidimensional- asking all patients using fatigue impact scale
why are PROMS important
physchological impact of patients is often unrecognised, often overlooked that quality of life is more important to patents than quantity and highlights that patients and clinicians have different priorities and perspectives are different which can aid decision making for clinicians in future
where are PROMS used
in clinical trials and in routine clinical practice
how are PROMS used in clinical trials
gives clinically important information, quality of life score can predict survival and used for economic evaluation
how are PROMS used in routine clinical practise
inform decision making, helps improve satisfaction with patient care, increases survival because know how to improve and means less frequent healthcare visits required if patentees can fill this out at home and send it in
what are the major issues withs using PROM’s
patients don’t complete the surveys, often because they don’t know why they are doing it. clinicians get any feed back so for them it seems like a waste of time which means a lot of time and effort spent wasted chasing people to fill out forms
