Palliative Care Flashcards
Define palliative care
Active holistic care of patients with advanced, progressive illness
Goal of palliative care
Best QOL for patients and familities
Aims of palliative care
regard dying as normal process, relief from symptoms, integrate psychological/spiritual aspects, ensure live as fulfilled as possible until death, bereavement service
What does palliative care involve
self help, information giving, psych/social support, symptom control, bereavement care
Difference between end of life care and end of life care pathway
end of life care (last year)
end of life care pathway: last 48h of life
2 provisions of palliative care services
voluntary sector (marie curie, macmillan) hospices (day unit, hospice at home)
4 types of nurses
District nurse: community based, generic skills, hands on
Practice nurse: practice based, general palliative care
Marie curie: community based, district nurse for palliative care/ terminal illness
Macmillan: community/hospital, cancer.
General criteria for referral to specialist palliative care team
Incurable disease or refused treatment if competent to do so
Prognosis < year
Indications for palliative care where prognosis might be more than 1 year
> year but have complex needs
need support around dx of incurable disease (may be longer than a year)
6 general indicators for palliative care
- progressive deterioration
- dependence in >/=3 of ADL
- multiple comorbidities
- symptoms cannot be alleviated
- malnutrition signs (cachexia/ < albumin)
- severe progression of illness over recent month
3 inappropriate referrals for palliative care
- chronic stable disease or disability with life expectancy of several years
- chronic pain not with progressive terminal disease
- problems are psychological
Gold standard framework for palliative care
Tasks: communicate, coordinate, control symptoms, continuity, continue learning, carer support, care in dying phase.
Helps primary care, care homes, end of life support.
10 points from the end of life care strategy 2008
Raising the profile (engage with local communities)
Strategic commissioning (equality impact assessments for changes in service)
Identifying people approaching end of life
Care planning (needs assessed, wishes etc)
Coordination of care
Rapid access to care if condition changes
Last days of life and care after death
Involving carers
Measurement and research
Funding
9 principles from the WHO Palliative Care
FANS (family, activity, natural death, symptom relief) Symptom relief Affirm life and regard dying as normal process Natural death (doesn’t hasten/ prolong) Spiritual Actively as possible until death Family through illness and bereavement Team approach to patient and family Quality of life and course of illness
3 Gold standard framework for the provision of palliative care
Improve quality of care
Improve coordination and collaboration
Improve outcomes that matter to people (unwanted crises, choosing placing of death)