Module 1: Palliative Care Flashcards
leading causes of death today?
- heart disease
- cancer
- stroke/cvd
- chronic lung disease
- trauma
- alzheimer’s
- diabetes
- influenza/pneumona
- kidney disease
- speticemia
11.
examples of steady decline?
20% of population
major cancer
age 60’s
hospice was developed for this group < 6 months to live
information on hospice
only medicare program tailored to EOL
requires prognosis < 6 months
15% of community dwelling die w/ hospice services
>50% cancer patients get hospice
average length of stay: 26 days
health care system issues w/ steady decline patients
hospice isn’t for everyone
very fragmented health care system that lacks continuity - everyone is just treating their organ/speciality leading to multiple specialists and no one feels responsible
great innacuracy with prognosis, & it limits ability to make best use of limited time
examples of slow decline with crises
25% of population
declining function w/ interspersed exacerbations, then unexpected death
progressive organ failure
age in 70s
health care system issues w/ slow decline
system is set up for crises by not slow decline
prognosis is unclear so hospice is not offered
continuity of care is interrupted by fragmented system & multiple hospitalizations
examples of prolonged dwindling?
- dementia & frailty
- >75 y/o
- afflicted w/ physical & mental disabilities
- interfere w/ ability to independently perform ADLs
- increase risk for further decline
- age 80s
aggressive care is associated with?
lower QOL & increased complications
barriers to quality care at EOL
poorly managed symptoms
lack of training for professionals
delayed access to hospice/palliatve care
poorly informed patients & families
lacke of appropriately prepared providers
palliative care information
can have palliative care while in ICU
based on need: for people with serious and complex illness, regardless of prognosis
can be provided together w/ approrpiate restorative or life sustaining treatment includig intensive care therapy
no limitation on CPR status/life support required.
provided by ICU team and/or palliative care consultant to primary team
hospice care information
based on prognosis for people expected to live < 6 months
strongly encourages the patient to forego restorative treatment and have concurrent care limitations such as DNR and no transfer to ICU
hospice team assumes primrary care responsibility
barriers to better integration of palliative care and critical care
unrealistic expectations for intensive care therapies on the part of patients/families/clinicians
misperception of palliative care and critical care as mutually exclusive/sequential rathr than complementary and concurrent approaches
conflation of palliative care w/ EOL or hospice care
concern tht incorporation of palliative care will hasten death, studies show it prolongs life & QOL
insufficient training of clinicians in communication and other necessary skills to provide high-quality palliative care
other barriers to better integration of palliative care and critical care
competing demands on ICU clinial effort w/o adequate reward for palliative care excellence
failure to apply effective approaches for system/culuture change to improve palliative care
consultative model vs. integrative model of palliative care
- expert palliative care through a palliative care consultation service - this is available at majority of US hospitals
- palliative care principles and process are incorporated as part of routine practice in ICU - less common
studies have shown that success can be reached in each model
principles of palliative care
interdisciplinary team
patient & family = unit of care: education & support, across illnesses & settings, berveavement support
attention to physical, social, psychological, spiritual
symptoms addressed in palliative care
pain
constipation
nausea & vomiting
diarrhea
bowel obstruction
anorexia & cachexia
delirium
depression
dyspnea
cough
loud respiration
hospice?
emphasis on QOL
need 6 months or less prognosis
have to forego additional curative care
physical factors affecting quality of life
functional ability
strength/fatigue
sleep & rest
nausea
appetite
constipation
pain
psychological factors for quality of life
anxiety
depression
enjoyment/leisure
pain distress
happiness
fear
cognition/attention
social factors for quality of life
financial burden
caregiver burder
roles and relationships
affection/sexual function
appearance
spiritual factors for quality of life
hope
suffering
meaning of pain
religiosity
transcendence
what does hospice include?
nursing care
PT/OT/SLP
medical social services
home health aid
homemaker services
medical supplies & appliance
MD services
short term inpatient care (respite, procedures)
counseling to patient and family
hospice criteria?
hospice criteria?
2 MDs estimate prognosis of < 6 months
recertify every 90 days x 2, then every 60 days
NP can be ‘attending’
end stage criteria?
decline in functional status
decrease tolerance physical activity
decrease cognitive ability
palliative performance scale < 50
dependent in 3 of 6 ADLs
symptoms at rest that significantly interfere w/ QOL
Physical ADLS?
DEATH
dress
eat
ambulate/transfer
toileting/continenece
hygiene - bathing/grooming
how do you measure progressive decline in palliative patients?
PPS - palliative performance scale
it’s a valid reliable funcitonal assessment tool that is based on the Karnofsky Performance Scale
how is the PPS physical performance measured?
10% incremental levels from fully ambulatory 100% to death 0%
how is PPS differentiated further?
degree of ambulation
ability to do activities/extent of disease
ability to do self care
food/fluid intake
level of consciousness
additional end stage criteria?
frequent >2 ER visits or hospital admissions
issues with nutrition
loss >10% body weight over 4-6 months = poor prognostic sign
terminal diagnosis (prognosis < 6 months)
diagnosis specific criteria (by system)