Marilyn Dodd Flashcards

Theory of Illness Trajectory

1
Q
  • refers to theoretical formulations regarding
    coping with uncertainty through the cancer
    illness trajectory
A

Theory of Illness Trajectory

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2
Q
  • is a key concept in the Theory of Illness Trajectory
A

Managing uncertainty

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3
Q
  • is situated in a biographical context
A

Life

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4
Q
  • are rooted in the physical body and are
    formulated based on the perceived capability to
    perform usual or expected activities
A

Conceptions of self

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5
Q

Key elements in the biographical context are as follows:

A

Identity
Temporality
Body

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6
Q

Key elements in the biographical context are as follows:
- The conception of self at a given time that
unifies multiple aspects of self and is situated in the
body

A

Identity

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7
Q

Key elements in the biographical context are as follows:
Biographical time reflected in the
continuous flow of the life course events;
perceptions of the past, present, and possible
future interwoven into the conception of self

A

Temporality

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8
Q

Key elements in the biographical context are as follows:
Activities of life and derived perceptions
based in the body

A

Body

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9
Q
  • particularly cancer, disrupts the usual or
    everyday conception of self and is compounded
    by the perceived actions and reactions of others
    in the sociological context of life. resulting in
    states of uncertainty.
A

Illness

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10
Q

Illness Trajectory: States of Uncertainty

A
  • Domain
  • Sources of Uncertainty
  • Dimensions of Uncertainty
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11
Q

Domain

A
  • UNCERTAIN TEMPORALITY
  • UNCERTAIN BODY
  • UNCERTAIN IDENTITY
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12
Q

Domain:
- Taken-for-granted expectations regarding
the flow of life events are disrupted.

A

UNCERTAIN TEMPORALITY

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13
Q

Domain:
- Changes related to illness and treatment
are centered in one’s ability to perform
usual activities involving appearance,
physiological functions, and response to
treatment.

A

UNCERTAIN BODY

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14
Q

Domain:
- Interpretation of self is distorted as the
body fails to perform in usual ways, and
expectations related to the flow of events
(temporality) are altered by disease and
treatment

A

UNCERTAIN IDENTITY

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15
Q

Sources of Uncertainty:

  • The self of the past is viewed differently.
    Expectations of the present self are distorted by
    illness and treatment. Anticipation of the future
    self is altered.
A

Dimensions of Uncertainty:

  • Duration: How long
  • Pace: How fast
  • Frequency: How often the experience (stretched
    out, constrained, or limitless)
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16
Q

Sources of Uncertainty:

  • Faith in the body is shaken (body failure). The
    conception of the former body (the way it used
    to be) co-mingles with the altered state of the
    body at present and the changed expectations
    for how the body may perform in the future.
A

Dimensions of Uncertainty:

*What is being done to the body
*Jeopardized body resistance
*Efficacy and risks of treatment
*Disease recurrence

17
Q

Sources of Uncertainty:

  • Body failure and difficulty reading the new body
    upset the former conception of self
A
  • -Expected life course is shattered.
  • -Evidence gleaned from reading the body is not
    interpretable within the usual frame of
    understanding. Hope is sustained despite
    changing circumstances
18
Q

Types of work are organized around the following four
lines of trajectory work performed by patients and
families:

A
  1. Illness-related work
  2. Everyday-life work
  3. Biographical work
  4. Uncertainty abatement work
19
Q

Types of work are organized around the following four
lines of trajectory work performed by patients and
families:

  • Diagnostics, symptom
    management, care regimen, and crisis prevention
A

Illness-related work

20
Q

Types of work are organized around the following four
lines of trajectory work performed by patients and
families:

  • Activities of daily living, keeping a
    household, maintaining an occupation, sustaining
    relationships, and recreation
A

Everyday-life work

21
Q

Types of work are organized around the following four
lines of trajectory work performed by patients and
families:

The exchange of information,
emotional expressions, and the division of tasks through
interactions within the total organization

A

Biographical work

22
Q

Types of work are organized around the following four
lines of trajectory work performed by patients and
families:

Activities enacted to
lessen the impact of temporal, body, and identity
uncertainty

A

Uncertainty abatement work

23
Q
  • activities to lessen the effect of the varied states
    of uncertainty induced by undergoing cancer
    chemotherapy.
A

Uncertainty Abatement Work

24
Q
  • resting or changing usual activities
A

Pacing

25
Q
  • Using terminology related to illness and
    treatment
A

Becoming “professional” patients

26
Q
  • Comparing self with persons who are in worse
    condition
A

Seeking reinforcing comparisons

27
Q
  • Looking back to reinterpret symptoms and
    interactions with others in the organization
A

Engaging in reviews

28
Q
  • Looking toward the future to achieve desired
    activities
A

Setting goals

29
Q
  • Masking signs of illness or related emotions
A

Covering up

30
Q
  • Establishing a place where, or people with whom,
    true emotions and feelings could be expressed in
    a supportive atmosphere
A

Finding a safe place to let down

31
Q
  • Selective sharing with individuals deemed to be
    positive supporters
A

Choosing a supportive network

32
Q
  • Asserting the right to determine the course of
    treatment
A

Taking charge