Lecture 01 Chronic Illness Flashcards

1
Q

Parental response: What is the approach behavior?

A

Coping mechanisms aimed at

reducing tension caused by stress

that results in movements toward

adjustment and resolution of the

crisis.

(Seeks information regarding

diagnosis and treatment &

anticipates future problems)

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2
Q

What is Avoidance Behavior?

A

Coping mechanism resulting in movement

away from adjustment or maladaptation to

a crisis (fails to recognize seriousness of

condition despite physical evidence)

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3
Q

What are Adaptive Tasks of Parents of Children with Chronic Conditions?

A
  1. Accept the condition
  2. Manage the condition on a day to day basis
  3. Meet the child’s normal developmental needs
  4. Meet the developmental needs of other family members
  5. Cope with ongoing stress and periodic crisis
  6. Educate others about the child’s condition
  7. Establish a support system
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4
Q

How should a nurse provide family support? (5)

A
  • Provide support at time of diagnosis
  • Accept family’s emotional reaction
  • Support family’s coping methods
  • Advocate for empowerment
  • Educate about the disorder

& general health care needs

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5
Q

What are some Parental Stress Points? (7)

A
  1. Time of diagnosis
  2. Developmental milestones
  3. Start of schooling
  4. Reaching the ultimate attainment (realize child may never sit/walk)
  5. Adolescence
  6. Future placement
  7. Death of the child
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6
Q

What are 4 types of parental reactions to diagnosis?

A
  • Four types of parental reaction
  • Overprotection of child
  • Rejection of child
  • Denial that disorder exists
  • Gradual acceptance with realistic restrictions placed on child and promotion of reasonable physical & social abilities
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7
Q

What is Chronic Sorrow?

A
  • Intensified grief that recur in waves over time
  • Repeated losses
  • Care-giving demands

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8
Q

What are factors that affects family adjustment?

A
  1. Available support systems
  2. Perception of Illness of Disability
  3. Coping Mechanisms
  4. Available Resources
  5. Concurrent Stressors.
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9
Q

KNOW: What are Normal Developments during Infancy? (5)

A
  • Develop sense of trust
  • Bond/attach to parent
  • Learn thru environmental experiences
  • Mobility
  • Begin to develop a sense of separateness from parents
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10
Q

What would prevent normal development in infancy? (7)

A
  • Multiple caregivers
  • Deprivation of consistent nurturing
  • Delay in attachment
  • Increased exposure painful vs. pleasurable experiences
  • Limited contact environment r/t restricted mobility
  • Increased dependence on parent
  • Over-involvement of parent in care
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11
Q

What would be normal development during toddler hood?

A
  • Develop autonomy
  • Master locomotion and language skills
  • Learn through sensorimotor experience
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12
Q

What could impede normal development of toddlerhood during hospitalization?

A
  • Increased dependence on parents
  • Limited opportunity to test own abilities and limits
  • Increased exposure to painful experiences
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13
Q

What’s normal development during preschool age? (5)

A
  • Develop initiative
  • Master self care skills
  • Begin to develop peer

relationships

  • Develop sense of body image and sexual identification
  • Learn through preoperational thought (magical thinking)
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14
Q

How may hospitalization impede normal development during preschool age? (5)

A
  • Limited opportunity
  • Limited opportunity to socialize with peers (may appear baby like)
  • Protected within family, may fear criticism form others
  • Sex role focused on mothering role
  • Guilt (caused illness or punishment)
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15
Q

What are 4 normal developments in school age?

A
  • Develop a sense of accomplishment
  • Form peer relationships
  • Learn through concrete operations
  • Develop sense of control and mastery
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16
Q

How may hospitalization affect normal development in school age?

A
  • Limited opportunity to achieve and compete (school/athletics)
  • Limited opportunity for socialization
  • Limited comprehension of imposed physical limitations or treatments
17
Q

What are normal developments in adolescent?

A
  • Develop personal and sexual identity
  • Achieve independence form family
  • Form heterosexual relationships
  • Learn through abstract thinking
18
Q

How may hospitalization/disease affect normal developmenta in adolescents? (5)

A
  • Increased sense of differences from peers (appearance, abilities, skills, ability to compete)
  • Increased dependency on family (job/career limitations)
  • Limited opportunity to form heterosexual relationships
  • Concern with why disease and future options r/t marriage and family
  • Delay/hindrance in achieving abstract thinking
19
Q

What are 5 coping patterns of children?

A
  • Develops competence & optimism
  • Feels different & withdraws
  • Is irritable, is moody, and acts out
  • Complies with treatment
  • Seeks support
20
Q

What are 6 situations that requires special consideration?

A
  • Congenital Anomaly
  • Cognitive Impairment
  • Physical Disability
  • Chronic Illness
  • Multiple Disabilities
  • Terminal Illness
21
Q

What are 6 issues invovled in home care?

A
  • Impetus for Home Care
  • Effectiveness of Home Care
  • Factors to Consider When Planning Pediatric Home Care
  • Safety Issues in the Home
  • Family Support Needs
  • Normalization Principles
22
Q

3 impetus for home care?

A
  • Parental desire
  • Increasing numbers of children with long-term, complex health care needs
  • Lower cost of home care
23
Q

How effective could home care be?

A
  • Effective for some cases
  • May not be possible for all
  • May be initially successful but require changes over time (e.g., deterioration of condition)
24
Q

What are factors to consider when planning pediatric home care?

A
  • Medically stable condition
  • Family desire and motivation
  • Appropriate available services
  • Financial support for home care
25
Q

What are safety issues in the home? (5)

A
  • Priority phone and electrical service provided
  • Emergency protocols (including CPR)
  • Care provided by appropriately trained persons
  • Medications, sharps, hazardous materials
  • Night safety concerns
26
Q

What could be 3 Family Support News?

A
  • Evaluate family support systems
  • Networking with other families of special needs children
  • Respite care for families