Kramer-Kile et al. : the Illness Experience (ch.3) Flashcards

- Illness experience - Talcott Parsons: the Sick Role FOUR ILLNESS BEHAVIOURS: 1. Charmaz: Loss of Self 2. Anderson: devalued self 3. Townsend et al: Moral work 4. Isaksson et al: Chronic sorrow

1
Q

SATA: Chronic illness affects…

a. family perspectives
b. self-image
c. relationships
d. behaviours

A

B, C and D

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2
Q

TRUE OR FALSE:

Illness is defined by the pt and their family’s lived experience, and includes “the meaning that the pt gives to the experience”, which remains constant through the illness.

A

FALSE

[first part is correct]… which VARIES over time!

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3
Q

SATA:

Kramer-Kile: Illness behaviour is influenced by…

a. societal expectations
b. health status
c. disease symptoms
d. personal expectations

A

A, B and D

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4
Q

TRUE OR FALSE

Illness experiences and corresponding behaviours are represented through the biomedical lens (disease/patho) of illness by Kramer-Kile et al.

A

FALSE

Through sociological view of illness!

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5
Q

“I developed the ‘Sick Role’ concept by building on Henry Sigerist’s essay on ‘special position of the sick’”

Who am I?

A

Talcott Parsons (1951)

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6
Q

SATA:

According to Parsons, sickness is…

a. dysfunctional and a deviance from society
b. uniquely defined by the patient and their family’s lived experiences
c. a response to social pressure that permits one to avoid social responsibilities

A

A and C

(Parson’s was a structural-functionalist, viewing health as a functional prerequisite of society)

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7
Q

The 4 major components of the Sick Role include…

A
  1. person is EXEMPT from normal social roles
  2. person is NOT responsible for own condition
  3. person has OBLIGATION to want to get well
  4. person has OBLIGATION to seek and cooperate with technically competent help
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8
Q

TRUE OR FALSE

Parson’s concept of the Sick Role is still relevant today.

A

FALSE

His concept was based on the nature of society in earlier times and the nature of illness without considering illness contexts like self-care, self-management and collaboration with HCPs to obtain optimal health

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9
Q

“Using Parson’s work as a basis, I proposed that illness behaviours as symptoms being perceived, evaluated, and acted (or not acted) on differently by different persons”

Who am I?

A

Mechanic (1962)

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10
Q

“We identified 3 types of health-related behaviour: Health, Illness, and Sick Role”

Who are we?

A

Kasl and Cobb (1966)

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11
Q

According to Kasl and Cobb, the Health Behaviour is anything an ________ person does to prevent or detect a disease.

A

Asymptomatic

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12
Q

The Illness Behaviour is any activity done by a person who feels ill in order to _____ their state of health and discover a suitable _____. (Kasl and Cobb)

A

define; remedy

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13
Q

The Sick Role behaviour is any activity an ill person does to ____ _____. (Kasl and Cobb)

A

get well

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14
Q

“We suggested that instead of defining illness behaviours in illness/health/sick role categories, it is more helpful to look at it on a continuum”

Who are we?

A

McHugh and Vallis (1986)

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15
Q

The two theories that have dominated ILLNESS PERCEPTION research are…

A
  1. the explanatory model (Kleinmann, 1985)
  2. illness representations (Leventhal et al., 2001)
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16
Q

Klienmann associated explanatory models with _________ while Leventhal et al. based their research on _________.

However, both argue that illness has both ____ and ___ representations.

A

Mental illness; psychological theory.

cognitive; emotional

17
Q

Kramer-Kile uses ___________’s theories to define illness perceptions.

a. Kleinmann
b. Leventhal et al.

A

B

18
Q

Illness perceptions and illness representations (interchangeable!) refer to how the _____ views their illness. Representation belongs to AND are interpreted by pts and may not conform to scientific beliefs.

A

Pt and their family

19
Q

SATA:

Illness perceptions and beliefs of pt and families, emotional responses and coping are moulded by…

a. everyday social interactions
b. past experiences
c. cultures
d. quality of nursing care
e. knowledge of diagnosis

A

A, B and C

20
Q

Illness Perception Questionnaire; Illness Perception Questionnaire-Revised and the Brief Illness Perception Questionnaire assess what 2 responses to illness?

A
  1. Cognitive
  2. Emotional
21
Q

Helman’s definition of culture: A set of guidelines (both _____ and _____) individuals use to view the world and tell them what behaviours are appropriate.

A

Implicit and explicit

22
Q

The culture of poverty helps develop social and psychological traits. The mindset of those who are poor are _____. Illness is not a priority unless it incapacitates.

A

Present-moment

23
Q

SATA:

Other factors that influence illness behaviour and perceptions include:

a. gender
b. older age
c. socio-economic status
d. marital status

A

A, B and D

24
Q

TRUE OR FALSE

Past experiences that influence illness behaviours include parents’ response to own illness and parents’ response to child’s illness.

A

TRUE

25
Q

1 - Charmaz coined the term “_____”.

FOUR types of behaviours that pts with illness experience:

Men coped differently by “_____” in limiting effects of illness in their lives.

A

“Loss of self” ; “preserving self”

(chronically ill pts feel a loss of self–image, social isolation; a burden to others and a loss of self without development of a new valued self)

26
Q

2 - Anderson’s “_______” Similar to Charmaz, but focuses on how WOMEN living with chronic illness feel the need to reconstruct a “NEW self” due to…. (SATA)

FOUR types of behaviours that pts with illness experience:

a. need for reassessment of self and feel sense of being revalued by the world
b. losing sense of self to chronic illness
c. negative interactions with HCPs and marginalization/cultural barriers

A

“Devalued self”

A and C

27
Q

3 - Townsend, Wyke and Hunt’s “_______”.

FOUR types of behaviours that pts with illness experience:

Pts with chronic illness felt need to demonstrate “moral worth” and it was a “moral obligation” to manage their symptoms.

A

“Moral work”

28
Q

4 - Isaksson, Gunnarsson and Ahlstrom’s “_____”.

FOUR types of behaviours that pts with illness experience:

It was a natural response to a tragedy instead of being neurotic. Their study developed 7 themes.

A

“Chronic sorrow”

29
Q

SATA: The 7 themes of “Chronic sorrow” (Isaksson et al.) include: loss of…

a. hope; faith that life is just; freedom (3)
b. sanity; clarity (2)
c. control of the body; a healthy identity (2)
d. Integrity and dignity; social relations (2)
e. self; healthy coping mechanisms (2)

A

A, C and D

30
Q

TRUE OR FALSE:

Legitimization of illness by HCPs is important for pts in order for pts find identity in illness and validate self-concept and illness perceptions and behaviours.

A

TRUE

31
Q

1 - “good patients” (compliant, cooperative) and “problematic/nonadherent” patients are labels of social expectations that fit into the traditional biomedical model of illness being acute and curable.

TRUE OR FALSE:

(3) Professional responses to illness behaviour and roles:

A

TRUE

32
Q

2 - Patients with Ch. illness are “experts” in their self-care can be threatening to health care professionals. Role of the nurse should be to empower.

TRUE OR FALSE:

(3) Professional responses to illness behaviour and roles:

A

TRUE

33
Q

3 - Role clarity is not a problem for nurses working with chronically ill patients.

TRUE OR FALSE:

(3) Professional responses to illness behaviour and roles:

A

FALSE

Role clarity is important in order for nurses to work in a flexible, collaborative partnership with patients who are “experts” in their chronic illness.

34
Q
A