Health Realted QoL Flashcards
What is narrative reconstruction?
A process by which the disrupted self is reconstructed in a way that explains the appearance of illness.
What is biographical disruption?
A key sociological concept, identifying chronic illness as a major disruptive experience.
How do biographical disruption and narrative reconstruction link?
Narrative reconstruction comes from a desire to create a sense of coherence, stability and order in the aftermath of biographical disruption.
List some of the different types of work of chronic illness with an explanation
Illness work - symptom management
Emotional work - both their own emotions and the emotions of others
Biographical work - loss and subsequent reconstruction of self
Identity work - to maintain an acceptable identity
Define stigma
A negatively defined condition, attribute or trait conferring “deviant” status.
Explain discreditable stigma and discredited stigma
Discreditable stigma: this stigma is yet to be revealed.
Discredited stigma: physically visible characteristic that sets patient apart. Affects the patients behaviour AND the behaviour of others.
Explain enacted stigma and felt stigma
Enacted stigma: the REAL experience of discrimination
Felt stigma: fear of discrimination occurring
Explain the medical model of disability and the social model of disability
Medical model: Disability = change from medical norms. Treated by medical intervention.
Social model: Disability = a form of social oppression. Treated by political action and social change
Define quality of life
The functional effect of an illness and it’s consequent therapy upon a patient, as perceived by the patient.
Explain SF-36
SF-36 = short form 36-item questionnaire. Contains 36 items that assess HRQoL. Responses to questions are scored and then added together to give a score (0-100).
What are the positives to SF-36?
Acceptable to people
Very quick
Good reliability
Explain EQ-5D (EuroQol 5D)
Assess HRQoL via 5 dimensions (mobility, self care, usual activities, pain, depression) rated from three levels: no problems, some problems, extreme problems.
What are the positives to EQ-5D?
Has good population data
Good reliability
Particularly suitable for use in economic evaluations
What are some questions to consider when assessing the value of a HRQoL instrument?
Is their published work showing validity and reliability?
Is it suitable for your area of interest?
Is the instrument acceptable to patients?
Is it easy to perform and analyse?
