Gen paeds mgmt issues Flashcards

1
Q

Mx of behavioural escalation/behavioural difficulties

A
  • Behavioural escalation
    • Why?
      • What is leading to these meltdowns, is there a particular trigger?
      • What is the parents/caregivers response?
      • Sleep disturbance? OSA?
      • Assess for developmental delays?
      • Evolving underlying diagnosis - ASD? ADHD? ODD?
    • Consider further ix if NEW, out of character
    • Provide framework for family in management
      • Identify triggers
      • Remain calm
      • Consistency
      • Ignore bad behaviours and praise good behaviours
      • Environmental modifications - remove harm
    • Emergency safety plan if escalating to violence (take away things he could hurt you with, call police)
      • PRN medication (risperidone or clonidine)
    • Consider referral to behaviour management clinic under NDIS plan (if eligible)
    • Respite for family
    • Close follow up
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2
Q

Mx of obesity

A
  • Information gathering
    - Need height and weight -> BMI
    - Current diet and exercise levels
    - Medications with obesity as SE?
    - Barriers to weight loss
    - Sleep: sx of OSA
    • Ix
      • Consider organic cause
        • Steroid excess
        • TFTs (hypothyroid)
        • Urinary cortisol (Cushings)
        • Consider genetics (microarray and/or methylations tudies) if low IQ/ASD (prayer will or chromosomal microdeletions)
      • Cx of obesity
        • Blood pressure
        • LFT
        • Fasting BGL
        • Fasting lipids
        • ECG
        • Vitamin levels if restrictive (but high calorie)
        • Consider liver USS if liver derangement
        • Sleep oximetry
  • Management
    - Non-pharmacological
    - Diet - education (selection and serving sizes) and dietician if needed
    - Whole family needs to be on board - meal prep healthy options
    - Replace unhealthy treats with healthy ones (acknowledge this may be more expensive)
    - If eating for boredom, brainstorm a distraction activity
    - If eating for hunger, brainstorm more satiating meal options
    - Exercise - education and physiotherapy if needed
    - Referral to weight mgmt clinic
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3
Q

Management of sleep disturbance

A

History
- Onset, sleep maintenance (restless, heavy or light sleeper), waking overnight
- Time of going to bed vs falling asleep, time of waking (refreshed or groggy?)
- Where do they sleep, what is the sleep environment like, current sleep hygiene
- Ask about OSA signs/sx (pauses/gasps/apnoeas, snoring, mouth breather, daytime somnolence/naps)
- Need to assess child’s development - is poor sleep affecting their development and/or behaviour?
- Need to assess child (anxiety/depression or stress as underlying cause) and parents’ mental health/impact on them

Ix
- Sleep diary
- Examine tonsils (or ?hypotonia) -> Oximetry -> sleep study
- Video EEG (if history suggestive of seizures)

Mx
- OSA: Weight loss, IN steroids, T&As -> CPAP if severe
- Sleep hygiene (consistent routine, bed is for sleep only, no screen time before bed, no drinking before bed, exercise during day, avoid caffeine)
- Pharmacological
- Melatonin trial or clonidine if sleep onset is a problem
- Benzos, chloral, periactin may be used in children with disability
- Sleep school (private clinic - day or overnight)

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4
Q

General health management points

A
  1. Immunisation of patient and whole family (herd immunity) according to schedule
    - Consider additional immunisations: fluvax, DTP booster, RSV-Ig (palivizumab), pneumococcal, meningococcal
  2. Regular screening of vision and hearing
  3. Bowels and continence
  4. Sleep
    - Sleep hygiene and – where appropriate – consideration of pharmacotherapy
  5. Medication vigilance
    - regular review of medication doses and responses, aiming for lowest effective dose
    - rationalise meds when appropriate
    - review dose for weight
    - monitor compliance and address barriers
  6. Growth and nutrition
  7. Development
    - eyes and ears checked
  8. Emergency planning
    - Crisis plans - written
    - CPR training
    - Medicalert bracelet
  9. Health literacy
  10. Mental health surveillance
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5
Q

Coordination of treating team - mgmt strategies

A
  1. Multi disciplinary meetings every 12-18months
  2. Information gathering nad collation from multiple sources
  3. Liaison with GP
  4. Liaison with school and early intervention service
  5. Thinking ahead - puberty, transition
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6
Q

Health literacy management

A

Written emergency plan
Assessment of parental competence with XX - education
Involve all caregivers
Written health record/passport
First aid training
Refer to support organisation

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7
Q

Management strategies for behavioural issues with ADHD kids

A

Hyperactivity/motor overactivity

Conservative
#Inattention
- Sit at front of class
- Break things into small parts
- Give written, spoken instructions, visual demonstration

  • Allow to run errands and stand during schoolwork
  • Ensure breaks between classes
  • Help child get organised with notebooks, dividers, folders, planners
  • Check child’s diary to ensure homework is finished and assignments completed
  • Encourage supervised activities - sport, scouts
  • Cooperative learning tasks w other kids
  • Teaching aid or tutor for problem areas
  • Give more time for tests
  • Praise contributions to class
  • Help child get organised with notebooks, dividers, folders, planners
  • Check child’s diary to ensure homework is finished and assignments completed

Pharmacological
- Stimulant (methylphenidate or dexamphetamine, starting dose 1mg/kg)
–> SE - HTN, appetite loss, LOW, afternoon crash

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8
Q

Seizure management

A
  • Seizure plan in verbal and written form (copies for all carers)
  • Ensure all family members and carers there
  • Additional information for school
  • Emergency action plan
  • Consider midazolam if not already prescribed (esp if previous hospital admissions for prolonged seizures or compromising seizures or lives far from hospital)
  • Know when to call an AV
  • Additionally skills training
    - First aid or CPR course
    - Midazolam administration (demonstrate how to give)
  • Medicalert bracelet
  • No swimming unattended - supervision around water, roads, biking, heights at all time
  • Consult with neurology team if already involved or new seizure semiology
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9
Q

Constipation mgmt

A

Hx:
- Toileting habits
- Are they toilet trained?
- Bristol stool chart
- Anxiety or pain around stooling, withholding
- Diet and fibre
- Fluid intake
- Medications contributing?
- Organic
- When did they pass mec? (Hirschsprungs, CF)
- Blood or mucus in stool, eczema (CMPI)

Ix
- Bowel and bladder diary
- Screen for organic causes
- TFTs
- Coeliac serology done at some stage
- Ca
- Non-pharmacological mx
- Diet - fibre and fluids
- Exercise
- Toileting habits: toilet insert, foot stool with knees above hips, toileting three times a day 30min after meals, staying on toilet for 10-15min at a time
- Star chart/positive reinforcement
- Psyllium husk mixed into food
- Pharmacological mx for at least 3-4months (until Review)
- Movicol/osmolax
- Parachoc
- Lactulose
- Emergency plan - Disimpaction plan if worsening and safety netting
- Education - Clear goal!! Compliance!!
- Follow up - ensure compliance

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10
Q

Anxiety, depression mgmt

A
  • Info gathering: identify triggers/exacerbating factors
    • Assess impact on daily functioning
    • Risk assessment - safety plan
    • Mx
      • Non-pharmacological
        • Diet, exercise
        • Psychology/CBT - mental health care plan, CAHMS or origin referral
        • Peer support groups
        • School supports - counselled, friends
      • Pharmacological
        • SSRI
      • Crisis plan
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11
Q

Siallorrhoea mgmt

A
  • Mx
    - Speech path motor movements
    - Optimise head position
    - Meds - anticholinergics
    - Glycopyrollate, Artane (benzhexol), hyoscine (SE - constiation, urinary retention, dry eyes)
    - Surgical
    - Botox (lasts ~6mo)
    - Salivary gland excision
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12
Q

Optimisation of resp health

A
  • Assess for aspiration (clinical swallow review with speech path)
    —> manage risk factors for aspiration (dysphagia, epilepsy, reflux, siallorrhoea)
  • Optimise airway clearance
    —> optomise positioning and tone mgmt
    —> PT if needed
  • Optimise asthma management
  • Assess/manage OSA
  • Physical exercise
  • Dental hygiene
  • Immunisation (yearly flu)
  • Ensure no smoking exposure
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13
Q

Risk of and Mgmt of scoliosis

A
  • Surveillance Xrays, especially approaching/through puberty as this is when it tends to worsen
    - Cobb angle > 40 = refer to orthopaedics
    - Risk - pain, chest infections, restrictive lung disease, mobility and function limitations
    - Surgical mx - bipilar surgery
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14
Q

Mgmt of hip subluxation and risk factors

A
  • RF: CP, hypo and hypertonia (Risk is directly related to GMFCS level)
    - Surveillance: Annual pelvic X-ray
    - Surgical mx (b/l hip derogation and osteotomies)
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15
Q

Mgmt - poor compliance

A
  • Info gathering: find out what meds, doses and frequency; what are the barriers
    • Education - reason for taking meds, consequences of not taking meds
    • Management
      • Need to build rapport
      • Restrict frequency of medications as much as possible, simplify timetable
      • Set reminders (phone)
      • If taste or form is a problem: explore other forms
      • Embarassment - dosing schedule not around peers
      • Side-effects - explore alternatives
      • Low motivation/affect - HEADDSS screen, consider psychologist
      • Involve parents more
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16
Q

Mgmt of chronic pain

A
  • Triad of Pain, Sleep and Mood
    • Pain:
      • Address underlying cause
      • Mx
        • Non-pharmacological: heat packs, distraction, CBT, physiotherapy
        • Pharmacological: analgesic ladder (paracetamol, neurofen then clonidine, endone …), consideration of neuropathic agents (gabapentin, TCA), referral to pain specialist
    • Sleep
      • Hygiene optimisation
      • Explore impacting factors (OSA etc)
      • Pharmacological (melatonin)
    • Mood
      • Psychology
      • Meds: SSRI
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17
Q

Management of enuresis (urinary incontinence)

A

Hx:
- Bladder and bowel diary
- Hx of voiding sx
- Daytime and/or nighttime wetting?
- Urgency
- Frequency
- Hx of constipation?
- Hx of fluid intake
- Hx of polydipsia/polyuria

Ix
- Urine MCS
- Renal USS (pre and post void residual volumes)

Mx
- Sx: pads, convene catheters
- Manage constipation or untreated UTI
- Behavioural modifications
- Timed voiding
- Avoid fluids at night
- Pad and bell alarm for at least 2-3 month trial period
- IF pad and bell fails, desmopressin (Minirin) is first line
- IF suspected overactive bladder (urgency), rial oxybutynin
- REFER continence service
- If underlying disability: ask if NDIS funding covers continence products/services?

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18
Q

Steroid dependence - management

A
  • Hx
    - Ask about signs, sx of steroid excess
    - Need for stress dosing/emergency plan for adrenal crisis
    • Mx
      • Minimise dose
        • Working with specialist, consideration of steroid sparing agents, biologics etc
      • Monitor for side effects
        • Serial growth monitoring (Weight, height)(
        • Blood pressure (HTN)
        • Mood, affect
        • Opthal review (cataracts/ICP)
        • DEXA scan
        • Fasting BSL and HBA1C
        • Functional muscle assessment (prox myopathy)
      • Treat complications
        • Vitamin D and Ca supps; bisphosphanates
        • SSRI
        • PPI (gastritis)
      • Health prevention
        • Extra vaccines incl yearly flu (caution with live vaccines as immunosuppressed)
        • Diet and exercise (obesity and mood and BP)
        • Stress dosing plan for when unwell/surgeries etc
        • Education about pregnancy (teratogenic)
        • Med alert bracelet if teenager
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19
Q

Management of bone health

A
  • Review contributing factors: diet (Ca), physical activity, sun exposure, medications (steroids and anticonvulsants can impact metabolism of Vitamin D), puberty
    • Review ix performed: Via D, Ca, Ph, PTH, PO4 and vertebral xray (?fractures), dexa scans
    • Mx
      • Vitamin D supplementation
      • Pubertal induction
      • Bisphosphate therapy (zoledronic acid) - if has had pathologic #s
    • General bone health
      • Sunlight, diet, weight baring exercise
      • Allied health input and NDIS - PT, OT and dietician
      • Consider ortho referral if any genu valgum (knock knees)
      • Supplements - vit D and Ca
      • Ensure puberty occurs
      • Manage falls risk - home mods, equipment, transfers/hoist etc
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20
Q

Risk factors for osteopenia

A
  • Immobilisation
    - Prolonged steroids
    - Delayed puberty
    - Renal disease
21
Q

Sleep hygiene

A
  • Dark, quiet room
    - Soothing music/white noise
    - Avoid sugar, caffeine before bed
    - Outside play during the day
    - 1-2 hrs before bed: no screens, low stimulus environment
    - Routine (eg: bath, story, bed)
22
Q

Restrictive eating - management

A

Hx
- Age of onset
- Specific foods
- In what environments? (just at home or with certain caregivers)

Ix
- PLOT GROWTH
- Nutritional screen: iron, folate, B12, vitamin A, C, E, D, zinc
- UEC, CMP

Mx
- Education: not forced feeding, relaxed environment, family eats together, offer a variety of foods
- Treat nutritional deficiencies
- Nutritional supplements (calories and nutrition - protein, fat, vitamins)
- Speech path and dietician: Play therapy
- REFER: fussy eating clinic

23
Q

Cx of steroids

A

WHAT POD MICS

Weight gain
HTN
Adrenal insufficiency
Thrush
Peptic ulcers
Osteopenia
Diabetes
Mood/behaviour
Infection
Cataracts
Sleep disturbance

24
Q
A

Seizures

Vision

Hearing

Dentition

Cardiac

Respiratory – recurrent infections

Gastro – reflux, constipation,

Renal - urinary continence

Growth and Nutrition

Sleep

Mood

Puberty

Bone health (think osteopenia if immobile or on steroids)

25
Q

Distinguish between GMFCS levels 1-5

Which has the highest risk of chest infections?

A

1: walks without limitations
2: walks with limitations in some settings
3: walks using a hand-held mobility device or uses wheelchair for greater distances
4: uses a wheelchair in most settings
5: uses a wheel- chair in all settings and may require additional support for the head or torso. *higher risk of chest infections

26
Q

Mgmt of bone health

A
  • Review contributing factors: diet, physical activity, sun exposure, medications (steroids), puberty
  • Review ix performed: Via D, Ca, Ph, PTH, PO4 and Xrays (?fractures) dexa scans
  • Mx
    • Low Ph binders
    • Phosphate binders
    • Vitamin D supplementation
  • General bone health
    • Sunlight, diet, weight baring exercise
    • Allied health input and NDIS - PT, OT and dietician
    • Consider ortho referral if any genu valgum
    • Supplements - vit D and Ca
    • Ensure puberty occurs
    • Manage falls risk - home mods, equipment, transfers/hoist etc
27
Q

Mimt spiel for enuresis

A
  • History - pattern, frequency, volume of urine lost, urgency, stool habits
    • Any px UTIs, VUR, neurological disorders
  • Ix - Bladder and stool diary
    • Urine MCS if not already done
    • Renal USS
    • Post void residual volume renal USS
  • Mx
    • Timed and double voiding
    • Mgmt of underlying constipation
    • Pad and bell
    • Anticholinergics (oxybutynin)
  • Liase with specialists (renal/urology) if initial mgmt unsuccessful
28
Q

Mgmt of poor school attendance (or school refusal)

A
  • Information gathering - need collateral history from teachers and school
    • Mental health (anxiety/depression)
    • Fatigue?
    • Bullying?
    • Poor school performance?
    • Medical barriers? (Hospital admissions, outpatient burden, pain etc)
    • Barriers from parents/carers physically getting him to school
  • Mgmt
    • Graded return to school
    • Consider cognitive testing and hearing and vision testing
    • Needing extra support at school (learning aid)?
    • Group medical apmts together as much as possible to minimise disruptions
  • If school refusal, may need to negotiate:
    • Home schooling
    • Negotiation - go 3 days a week, go the days that has her favourite subject, get rid of subjects such as geography, language etc
    • Graded return to school
29
Q

General health surveillance and optimisation - management points to address

A
  • Hearing
  • Vision
  • Sleep
  • Dentition
  • Development
  • Mental health
  • Nutrition and growth
  • Puberty
  • Liaison with primary care (GP)
  • Medical education
  • Medication adherence
  • Transition if necessary
30
Q

advanced care planning

A

Preparation
- Collaborative approach involving child (if possible), family and all health professionals
- Empathetic approach over several appointments
- Develop rapport with family

Establish parent’s views
- Understanding and expectations of illness progression
- Perception of patient’s quality of life
- Religious, cultural and personal beliefs

Discuss treatment options
- Make recommendations and guide parents
- Careful documentation
- Ongoing assessment

Discuss what level of resus will be given
- Oxygen/fluids/antibiotics vs intubation & CPR
- If a plan is agreed to and documented, assure that parents can still change their mind
- Prepare and support parents & extended family

Provide comfort and listen to parents
- Acknowledge what is happening and emotions
- Normalise emotions

31
Q

Sibling Rivalry

A

Assessment of child’s emotions
- Encourage conversation

Normalise and validate feelings
- Encourage empathy for siblings with illness

Involve sibling in care of patient
- Positivity in involvement, praise

Encourage normality in siblings life
- Respite for parents

Encourage time spent together as a family unit
- Find special time alone for child
- Capitalise on moments together
- Set dates

Support parents so that they can find time for the siblings
- Formal supports (respite)
- Engagement with a social worker
- Informal supports

Connect parent/child to resources
- Very Special Kids sibling camps

32
Q

Causes of scoliosis

A

S yndromic : NFI, Marfans, fibrous dysplasia, OI, MPS

C ongential: hemivertebrae, bony abnormality

O rthopaedic: limb length discrepancy (compensatory)

N euromuscular:
- Central: CP, spina bifida, cerebellar
- Peripheral: SMA
- Myopathic: DMD

I atrogenic: adolescent idiopathic scoliosis

33
Q

Cx of scoliosis

A

Chest deformity: resp reserve, pneumonia, restrictive lung disease

Pain/sitting discomfort/ADLs/hygiene

Posture: pressure sores, loss of balance, walking

Crush fractures

Cosmetic, psychological impact

34
Q

Signs of pubertal delay in children

A

Boys: no testicular enlargement by age 14
Girls: no breast buds by age 12

35
Q

Differentiate between 1° (gonadal) VS 2° (extra-gonadal) cause of pubertal delay on ix and what would be next line ix for each?

A

Primary: High LSH, FSH -> go on to perform karyotype

Secondary: Low LH, FSH -> go onto brain MRI, genetics

35
Q

Differentiate between 1° (gonadal) VS 2° (extra-gonadal) cause of pubertal delay on ix and what would be next line ix for each?

A

Primary: High LSH, FSH -> go on to perform karyotype

Secondary: Low LH, FSH -> go onto brain MRI, genetics

36
Q

Transition

A
  1. Aim to start this process from 15yo
    1. Acknowledge this is difficult, there will be reluctance
    2. Start setting expectations for the adult world
      1. Won’t be chased if appointment is missed
    3. Careful written documentation for handover
    4. Building patient’s independence
      1. Start seeing them on their own (part of consult then whole consult)
      2. Education
      3. Picking up own scripts, administering own medications
      4. Own medicare card and photo ID
      5. Safety aids
        1. Medialert bracelet
        2. AV cover
        3. Emergency plans
    5. Find out patient’s goals for after school ?TAFE ?university ?other
    6. Refer to transitions team (if available)
    7. Decide who will be her main medical doctor in adult land (?GP vs specialist)
      1. Medical handover to GP or main specialist/physician (there may be a period of ‘shared care’ or joint consults
    8. Ensure allied health/mental health handovers occur
    9. Note: May need to hold onto vulnerable patients for longer
37
Q

ASD/dev disability history points

A
  • Level of intellectual disability and physical disability
  • Functional capacity, skills and abilities
  • Communication: (What is their comprehension? What is their ability and methods/aides?)
  • Routines: stress with changes to routine
  • Sensory sensitives: sound, texture, touch, smell
    Intensive interests
  • Existing disruptive behaviours: current mx plans?
38
Q

Mgmt of behavioural disturbance/agitation in ASD/dev disabiltiy

A
  1. Address/treat any underlying organic causes
    - Ddx: seizure, UTI, OT, GORD, constipation, pressure sores, teeth
    - Pain: hip dislocation, fracture
    - Poor sleep, OSA
    - Changes in medications, SE
    - New psychiatric symptoms (anxiety, depression etc)
  2. Conservative mx
    - Behaviour: sleep hygiene, routine
    - Environment: light, music
    - Alternatives: aromatherapy, massage, acupuncture
    - Involve a multidisciplinary team
    –> Speech: assess and mx strategies for communication
    –> OT: can help promote supportive physical and sensory environment for those with sensory sensitivities
  3. Pharmacological mgmt
    - Melatonin, diazepam, paracetamol, neurofen, anti-depressants
39
Q

approach to Fussy eating in ‘thriving’ child (not malnourished)

A

Feeding behaviour:
- Make meals fun
- Give praise when trying new foods
- Support independence
- Encourage self feeding from young
- Ignore fussy eating

Avoid pressure/trick/bribes
- Dietary advice:
- Parents decide which foods, kids will decide how much
- Offer healthy foods repeatedly and regularly
- Limit juice/sugar
- Easy to handle food

Feeding time:
- Three meals + 2-3 snacks
- Schedules
- 1 hour without food prior to main meals
- Limit meal time to 15 minutes

40
Q

Assessment of sleep problems in CP/developmental disability

A
  1. Consider underlying medical causes:
    - Seizures
    - Salivation
    - Pain (muscle spasm, involuntary movements, abnormal posturing, spasticity)
    - Pressure sores
    - Constipation
    - Sound sensitivity
    - OSA
  2. Assuming the above have been appropriately addressed -> GOOD SLEEP HYGIENE
    - Routine
    - Healthy diet
    - Sunlight
    - Exercise (PT input)
    - Sleep position (bedding 🡪 OT)
    - Other: sleep diary, reward good habits
  3. Follow up
  4. Failing the above consider melatonin
41
Q

Primary vs Secondary aspiration

A

primary - aspiration of food/drink
secondary - aspiration of reflux or vomit

42
Q

Approach to secondary aspiration

A

Give your impression of the main contributors
- Most likely to be GORD

Review previous investigations
Assessment of reflux
- Barium meal
- Oesophageal pH monitoring

If indicative of significant reflux mx would involve
Conservative:
- Thickened feeds
- Upright positioning post feeds

Medications:
- PPI
- Promotility drugs eg domperidone (CI: prolonged QT)
- Surgical : Fundoplication

43
Q

ADHD assessment tool

A
  • Diagnosed via standardised questionnaires filled in by teacher AND parent then scored by paed
    - Vanderbilt scale
    - Sx need to be present in more than setting to qualify
44
Q

ASD assessment process

A
  • Levels 1-3 (note only level 2 and 3 get NDIS funding)
    • Social/communication
    • Restricted/repetitive behaviours
  • Diagnosis through ADOS (autism diagnostic observational scale)
    • Multidisciplinary team diagnosis
      • Paed or psychiatrist
      • Psychologist
        • ‘Vineland’ - filled in by teacher and then psychologist marks it
      • Speech path: Perform language assessment
45
Q

Cognitive assessment process

A
  • Occur before school (5yo) or high school (11yo)
  • Performed by clinical psychologist/neuropsych
  • NOT funded by NDIS
  • Costs $600 to be done privately OR if done through school under ’specialist education funding’
  • WPPSI for preschoolers or WISC for school age children -> gives full IQ
    • If IQ < 65 = ID
46
Q

Mgmt dystonia

A

Conservative: positioning, equipment, PT

Medical: levodopa, baclofen, benzhexol, gabapentin, botox injections

Surgical: deep brain stimulation

47
Q

Rural access issues

A
  • Access to health care:
    o Allied health/aides
    o Sub-specialists
    o Support groups – try internet - Transport (and financing this)
    o Also try for cluster appointments if across different specialities (to save on trips)
  • Accommodation whilst in town (Ronald McDonald house)
  • Transport subsidies
  • Social supports/contingency plans
    o Carers for other children, family farm/business etc
  • Emergency/specific medical issues:
    o More likely to be delayed in presentation in emergency (seizure/DM/PEG out/asthma)
    o Increase training for parents
    o Increase supplies at home for parents (epilepsy/anaphylaxis/asthma etc)
    o Document emergency plan
    o Ambulance cover
    o Phone connected – Telstra priority (i.e. if lines go down, they should be reconnected first)
    o Back up power/generator if child on CPAP/BiPap etc