FOPC Updated Flashcards
Describe patient-centred care
Focuses on the patient, only the patient can decide what this means to them
What principles define patient-centredness and where are they outlined?
5 principles outlined in the International Alliance of Patient’s Organisations Declaration on Patient-Centred Healthcare
- Respect
- Choice and Empowerment
- Patient Involvement in Health Policy
- Access and Support
- Information
Describe epidemiology of long term conditions
More prevalent in older and more deprived populations
Account for ~50% of GP appointments, 64% outpatient appointment and 70% inpatient bed days
Consequences of long term conditions
Can be physical, social or mental
Incidence
number of new cases of a disease in a population over a specified period of time
Prevalence
Number of people in a population with a specific disease at a single point in time or over a defined period of time
Burden of treatment
The impact of the demands of being a patient on functioning and well-being
Patient often have to change behaviour/police other’s behaviour
Monitor and manage symptoms at home
Complex treatment regimens and multiple drugs as well as complex administrative systems
Biographical disruption
a loss of confidence in social interaction or self-identity due to a loss of confidence in the body (caused by long term condition)
Aetiology of long term conditions
Genetic and/or environmental
Could be neither
Vulnerability
Individual’s capacity to resist disease, repair damage and restore physiological homeostasis
What is important if no diagnosis or cure determined?
Acceptance of this fact will provide better management
Describe stigma of long-term conditions
Some people are stigmatised by those who do not have the illness
As a result some people will disclose and some will not
Impact of long term conditions
On individual; negative or positive and include denial, self-pity, apathy
On family; financial, emotional, physical
Social life; may be unable to work, isolation can occur
WHO definition of disability
A person is considered to be disabled if they have a mental or physical impairment which impacts their ability to carry out normal daily activities
Define body and structure impairment
Abnormalities of structure, organ or system
Define activity limitation
Altered functional performance and activity by the individual
Define participation restrictions
Disadvantage experiences by individual as a result of impairments and disabilities
Describe the medical model of disability
Individual/personal cuase e.g. accident whilst drunk
Underlying pathology e.g. morbid obesity
Individual level intervention e.g. health professionals advising individually
Individual change/adjustment e.g. change in behaviour
Describe the social model of disability
Societal cause e.g. low wages
Conditions related to housing
Social/Political action needed e.g. facilities for disabled
Societal attitude change e.g. use of politically correct language
Describe reasons for different personal reactions to disability
Depends on
- nature of disability
- information base of individual
- personality
- coping strategies
- role of individual i.e. loss of role/change of role
- mood and emotional reaction
- reaction of others
- support network
- additional resources available
- time to adapt
Describe the sick role
Form of deviant behaviour by those who are ill within society due to them being seen as unable to partake in social norms and activities, thus deviating from these
Sort of accepted within society as they are ill
Describe different causes of disability
Congenital Injury Communicable disease Non-communicable disease Alcohol Drugs; iatrogenic and/or illicit use Mental illness Malnutrition Obesity
Wilson’s Criteria for Screening
Knowledge of Diseae
- condition should be important and have a recognisable latent or early symptomatic stage
- natural course of condition should be adequately understood
Knowledge of test
- suitable, acceptable test
- continuous case finding
Treatment for disease
- accepted treatment
- facilities for diagnosis and treatment available
- agreed policy for whom to treat as patients
Cost
- Cost of case-finding economically balanced in relation to possible expenditures
Why is understanding data relevant in primary care?
Good patient-centred care requires knowledge of data and risk, and the ability to present these to patients
Define disease
Disorder of structure and function which can cause specific symptoms and signs, bio-medical perspective - diagnosis
Define illness
Symptoms or signs of disease, patient ideas and concerns
Factors affecting uptake of care
Lay referral “granny knows best”, new symptoms, visible symptoms, severity, duration, peer pressure “wife made me”, patient beliefs, expectations, social class, culture, ethnicity, age, gender, media, newspaper health pages, looking up internet
Define relative risk
This is the measure of the strength of an association between a suspected risk factor and the disease under study
Sources of epidemiological data for UK
Mortality data Hospital activity stats Reproductive health stats Cancer stats Accident stats General practice morbidity Health and household surveys Social security stats Drug misuse database Expenditure data from NHS
Define health literacy
Is about people having the knowledge, skills, understanding and confidence to use health info, be active partners in their care and navigate health and social care systems
Describe descriptive studies
These attempt to describe the amount and distribution of a disease in a given population
- does not provide definitive conclusions about causation, but may give clues as to risk factors and candidate aetiologies
- follow time, place, person framework
- usually cheap, quick and give valuable initial overview
Describe cross-sectional studies
Observations are made at a single point in time and conclusions drawn about relationship between diseases and other variables
- quick, but usually impossible to infer causation
Describe case control studies
Two groups of people are compared; a group of individuals who have the disease (cases) and a group who do not (controls)
Data is then gathered to determine who in each group has had exposure to the suspected aetiological factors, and comparisons between the two groups are made
Describe cohort studies
Baseline data on exposure are collected from a group who do not have the disease under study
The group is then followed through time until a significant number have developed the disease to allow analysis
The original group is split into subgroups determined by exposure status and these subgroups are compared to determine incidence of disease according to exposure
Results usually expressed as relative risks with confidence intervals or p intervals
Describe trials
Experiments used to test ideas about aetiology or to evaluate interventions
“randomised controlled trial” is definitive method of assessing any new treatment in medicine
Describe results standardisation
Set of techniques to remove or adjust for effects of differences in age or other confounding variables when comparing two or more populations
Describe standardised mortality ratio
Special kind of standardisation which compares mortality in group with disease under study and mortality expected in general population, converted to ratio for easy comparison
Describe quality of data
Ensuring data is trustworthy so as to know whether to believe it or not
Describe case definition
To decide whether or not an individual has the condition of interest or not
Important bc not all doctors or investigators mean the same thing when they use medical terms
Describe coding and classification
Related to case definition
When data are being collected routinely it is usual to convert this info to codes
Rules are drawn up to dictate how clinical data is converted to a code
If these rules change, a disease can appear more/less comon when in reality it is just coded under a new heading
Describe ascertainment
Is the data complete? Are any subjects missing?
Describe bias
Any trend in the collection, analysis, interpretation, publication or review of data that can lead to conclusions that are systematically different from the truth