First Section Flashcards
Family-Centred Care Tenants
1) Families know their children best and want what is best for their children
2) Families are unique and different
3) Optimal Child functioning occurs within supportive families and communities
4) The family is the child’s primary source of strength and support
1) Families know their children best and want what is best for their children
If this is your first assumption what will you assess first?
do some formal assessments around the occupations that are most important to them
-If it is outside our scope we would help them get connected
3) Optimal Child functioning occurs within supportive families and communities WHat will you assess or measure Person-level? Occupation-Level? -Why
- Assessing occupation
- assess the family for the purpose of supporting them
- this is a sticky part because families have fear of being judged (there a lot of aspects some don’t come from nurture)
- Family should not be considered the cause but assess to leverage the strength and find them help in the areas of weakness
Working with families
-setting goals and evaluating outcomes from a family-centered perspectives means
- listening to family concerns
- Establishing current participation
- Setting meaningful goals
- Evaluating family-centered outcomes
- Goals are set collaboratively
- Practitioners are facilitators and view families as full and equal participants
System Perspective of Family Occupations
-Key Concepts of a family system model
- ->A family system is composed of interdependent individuals or sub-systems
- Within the family, subsystems are defined with their own patterns of interaction and shared occupations
- A family must be understood as a whole, and it is more than the sum of the abilities of each member
Family Occupations
- Rhythms and rituals within the home provide connection, structure and meaning to participation
- Routines are often adapted to facilitate performance of a child with a disability
e. g. opportunity and cost
Feeding as Family
Theme and Subtheme
Example
Feeding as a family (theme)
Subtheme G-tube and sleep -Impact on family -Participation of feeding and eating as a family -Outings and travel (mobility)
Family Resources
- Financial Resources
- Personal skills/human resources
- Time resources
Participation and activity limitation Survey
in 2015 the national benefits association reported
average income for a household wit a child with a disability was nearly 10 000 ls than the average income (59,980 vs 68,940)
-20% of households with a disabled child fell below the low-income cutt-off 13.4 percent of non-disabled households
-38% of canadians parents with children who have disabilities were forced to reduce the number of hours worked, while an additional 36% had to adjust their work schedule
-76% of Canadian parents listed their child’s disability (this references severe disabilities) as reason for divorce or separation, leading to more single-family homes which often correlates to lower-income
Family Resources
Emotional energy Resources
- Children with disabilities may require more emotional energy from parents
- Parents may experience anxiety and depression
- Parents may become exhausted and sleep deprived
- Stress levels in families seem to relate to the resources that they have: financial, educational, emotional, or social
Sources of Diversity in Families
- Ethnic background
- Family Structure
- Socioeconomic status
- Parenting style and practices
Therapy assumptions in children’s rehab
- The wisdom of dichotomising “fix” versus “function”
- The ethics of ‘it might help but it won’t hurt’ therapy approaches
- The emphasis on early intervention rather than lifespan approach
- The challenges of providing care for new rehab populations
- Discrepancies between performance outcome and patient satisfaction
Cultural Considerations
Fill in in class
Considerations when developing a Home programs
-Be realistic - lest you get the “smile and nod” or create a burden of guilt for failing to meet your expectations
-Acknowledge the time and effort the therapy programs absorbs from the family
-Find out information about important and meaningful daily routines and activities
-Identify naturally occuring moments where behaviours can be taught and modified
-Explore possibilities rather than make recommendations
–Weight and discuss the opportunity cost with parents
-Express concern for parents’ well being
Positively reinforce and validate parents’ efforts
Blending Therapy into Routines
-Parents have identified that they are best able to carry out home programs when they receive the following types of supports
- ->coaching and follow-up support from the therapist at regular intervals;
- Prognostic information and guidance from the therapist about what to realistically expect;
- ->a coordinated team approach rather than multiple home programs;
- ->Regular feedback from the therapist about the child’s progress from the home program
Blending Therapy into Routines
A program designed around the child’s goal so that the program is motivating and enjoyable to carryout;
- ->emotional and physical support from family members;
- -> Provision of equipment needed to do the activities
- ->a logbook as a reminder to practice
- ->having a program with a small number of exercises that they feel confident and capable to carry out safely and therapeutically
How is AME important to
- Set the stage
- Assess and evaluate
- Agree and plan
- Monitor and modify
- Evaluate outcome
Assessment is
A process of gathering information about an area of interest through
- Specific tools and instruments
- Observation, discussion
Assessments must be
- interpreted to be useful to others
- describe a person or situation that helps
- inform a decision
Measurement is
The assignment of a number to a construct or a thing
-Where smaller quantities represent less and larger represent more according to a clear metric
Evaluation is
the process of judging the quality, importance, value of something
-Usually involves an assessment and a measurement
The FRAP-U FRAMEWORK
Frame of Reference
- Appropriate Application or Purpose
- Psychometric fit
- Utility
Frame of Reference and AME
Where/when does frame of reference come into play in the course of therapy
-Your AME-ing needs to be consistent with your theory or model
Step 1: AME
Narrow focus on assessments based on Frame of Reference
Step 2:
Define clearly an appropriate application or purpose