Family & Interprofessional Caregiving Flashcards
What are 5 basic concepts of caring?
human trait moral imperative affect interpersonal relationship therapeutic relationship
What are the important aspects of family communication negotiation?
open communication
listen to pt & family (their beliefs, effects on life, knowledge about disease)
teach
compare
compromise
**Does this sound like something that will work for you? Other things I can do to help you?
What are some important questions to ask family members about the illness of their loved one?
What is the family’s understanding of the diagnosis?
What is the perceived degree of pain, disability, or threat to life?
What is understood about treatment and related side effects?
What belief is held regarding prognosis and potential for regaining health?
What are some important questions to ask family members about the illness of their loved one? Related to characteristics of the illness.
What is the family’s understanding of the diagnosis?
What is the perceived degree of pain, disability, or threat to life?
What is understood about treatment and related side effects?
What belief is held regarding prognosis and potential for regaining health?
What are some important questions to ask of family & patient regarding perceived threat to family relationship, status, and goals?
How does the family define roles, relationships and communication patterns?
What are the decision-making patterns before and after the illness?
What are the family goals, and how are they affected by the illness?
How do individual members feel about changes created by the illness?
What are some important financial questions to ask of a family?
What financial resources are available if income is threatened?
What are the family’s support resources: relatives, friends, community support groups, etc?
What are some questions to ask a family about past experiences?
What coping strategies has the family used in past crises?
What is the history of the family with the illness and what were their experiences coping like for the family?
What are some family coping mechanisms?
minimization (downplay significance)
intellectualization (overly rational attitude)
repetition (ask same question over & over & restating info)
“strong” family member
constant vigil
Techniques for presenting info to patients?
Present the most important information first
Offer information—“Is there anything going on right now you’d like to talk about?”
Combine sight and sound when presenting information (ex: white boards)
Ask patients and family members what they want to know about the illness
Categorize: Treatment, side effects
Don’t be afraid to repeat information
Give information in small amounts whenever possible
Involve family members and supportive friends in the decision-making as early as possible
Try to give information when people are relatively calm
Speak plainly and use short sentences (elderly have more vision and hearing problems and find long sentences, rapid speech and unfamiliar terms hard to understand)
Ask for questions
Help the patient and family understand from the beginning that there are choices
Be responsive to even the most searching and difficult questions
Encourage patients/families to ask the physician questions that only the physician can answer (keep notebook or tape record)
Ask questions (repeat back to you)
Use silence—a long pause will allow questions or comments that will advise in what direction to take next
Take time to sit down
Maintain eye contact
Watch your body language—Patients and families are very sensitive to facial expressions, nuances of body positions and nervous habits
Do not worry about saying the right thing—simple and sincere communication
Techniques for presenting info to patients?
Present the most important information first!!
Offer information & ask if they want to discuss something.
Maybe use a white board
Ask what they want to know
Categorize: Treatment, side effects
Don’t be afraid to repeat information
Small amts of info
Involve support system in decisions
Give info when people are calm.
Speak plainly and use short sentences
Ask for questions
Make sure they know-there are choices.
Be responsive all questions, eve difficult questions
Encourage patients/families to ask the physician questions that only the physician can answer (keep notebook or tape record)
Ask questions (repeat back to you)
Use silence—a long pause will allow questions or comments that will advise in what direction to take next
Take time to sit down
Maintain eye contact
Watch your body language—
Do not worry about saying the right thing—simple and sincere communication
What do caregivers report feeling?
A sense of duty Restriction of day to day life Physical and emotional burden Training and Education Need for more paid support
Initial transfer home was highlighted as most stressful part of the process. Caregiver Burden Inventory scores supported a high level of burden.
Home ventilation can be made easier for families how?
increased paid care, improved professional support and respite care
What are the attributes of inter professional caregiving?
Collaboration
Empathy
Committment
What are 6 tips for collaboration?
Value conversation Encourage creativity Seek to learn more Accept what is offered without judgment Make others look good Address the tensions
