Family Caregivers of Older People Flashcards

1
Q

What makes us age differently?

A
  • genetics
  • who we are
  • (a lifetime of): where we live
  • our health behaviour
  • our access to health care
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2
Q

Public Health Framework for Healthy Ageing

A
  • healthy aging does not mean aging without disease
  • on average capacities will decline with age
  • interaction with environemt will enable functioning (declining vision makes us getting glasses)
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3
Q

Public Health Framework for Healthy Ageing three groups:

A
  1. high and stable capacity
  2. declining capacity
  3. significant loss of apacity

Functional ability is interaction between intrinsic capacity and interaction with environment

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4
Q

Healthy ageing and long-term care

A

those that need long term care do belong to the third group: significant loss of capacity

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5
Q

Percentage of the population with a limitation in one or more of five basic activities of daily living (ADL)

A

Generally, developed countries seem to have a percentage of 10-30% some developing countries (South Africa, Russi, India: 30-80%)

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6
Q

Focus of Long-Term Care on:

A

Peoples’ needs

Focus on trajectory of functional ability

Not merely taking over, but stimulating to do as much possible themselves

Not only focusing on meeting older people’s basic needs for survival, but also people’s abilities:

  • to move around,
  • to build and maintain relationships,
  • to learn,
  • grow and decide,
  • and to contribute to their communities

People have the right and deserve the freedom to realize their continuing aspirations to well-being, meaning and dignity, and a good life, even in the event of significant loss in intrinsic capacity.

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7
Q

Long-term Care

A

Can be delivered in a range of settings:

  • at home
  • communities
  • hospitals
  • care homes

Can be delivered by a range of caregivers:

  • Family,
  • friends,
  • volunteers,
  • paid help,
  • professionals
  • Paid or unpaid
  • Trained or untrained

Can be financed through different mechanisms

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8
Q

LTC-systems: Current Global Situation

A

Many countries rely almost entirely on families

  • Challenge is to start from scratch

Some countries (JP, NL) have well established systems

  • Generous set of services
  • Mandatory insurance schemes,
  • tax revenues,
  • own contributions

Challenge is continuous improvement (f.i. integration) and sustainability

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9
Q

Dementia (Who is affected?)

A
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10
Q

The majority of people with dementia are cared for at home

A
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11
Q

Family and friends provide most of the care (alzheimers disease)

A
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12
Q

Gender inequity:

A

Informal caregivers are mostly females

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13
Q

Impact of care on health caregivers

A

Psychological distress:

  • feelings of burden, perceived stress, depressive symptoms, symptoms of anxiety
  • Physical problems
  • Financial problems
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14
Q

Carers report of the impact of caring on their health, by WHO Region (alzheimers disease) ….online survey

A
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15
Q

Caregiving stress model (pearlin et al., 1990) Important note

A

large stressor is problematic behaviour or behavioural changes in people with dementia, these behaviours are especially difficult for caregivers

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16
Q

Agreement that there are adequate community services by WHO Region (% agree

A

most caregivers dont believe there are adequate services in their communities around the world

17
Q

PSYCHotherapeutic techniques to support caregivers of people with dementia

A
  • Psychoeducation
  • Behavioral Activation (BA)
  • Cognitive Behavioral Therapy (CBT)
  • Problem-Solving Therapy (PST)
  • Acceptance and commitment therapy (ACT)
  • Multicomponent
  • Face-to-face or internet-based
  • Personal or in group
  • Mix
  • Wide variety of intervention programs, often only limited description available
18
Q

PSYCHological and psychosocial Interventions for caregivers of people with dementia

A
  • Psychotherapeutic techniques are increasingly being used effectively and efficiently, and successfully adapted for educational or technologically advanced means of delivery
  • Impact on: burden, stress, depressive symptoms, anxiety symptoms, general health, self-efficacy, knowledge on dementia
19
Q

Examples of internet-based support for caregivers of people with dementia in nl

A

https://intodmentia.nl/ www.dementiebril.nl/ www.dementie.nl www.Alzheimerexperience.nl www.dementieonline.nl https://www.partnerinbalans.nl/home/nl/ www.iSupportforDementia.org

20
Q

PSYCHOeducation: website Alzheimer Netherlands

A

https://dementie.nl/

Information:

  • for example to manage changed behaviors of the person with dementia, or medication use
  • Support and advise: as an expert, meet other caregivers, or call the Alzheimer telephone (24/7)
  • Stories: blogs and experiences of others
  • News: on research, books, films and activities
21
Q

Psychoeducation: dementia glasses

A

https://www.dementiebril.nl/

22
Q

iSupport

A

iSupport: A World Health Organization project for caregivers of people with dementia online course

23
Q

iSupport Modules

A
  1. Introduction to dementia
  2. Being a caregiver
  3. Caring for me
  • Reducing stress in everyday life
  • Doing pleasant activities
  • Thinking differently)
  1. providing everyday care
  2. dealing with challenging behaviour
24
Q

module 3 “caring for me” -thinking differently lessons

A

What will I learn:

  • you cannot change what happens, but you can chaneg your response
  • to think differently by changing unhelpful thoughts
  • thinking differently makes you feel better
25
Q

Corona mortality rate in china (N=44,672)

A