Exam 2 Review

Question 1

What is family ecology?

Answer 1

refers to all elements that make up the family unit

Question 2

Components of family ecology

Answer 2

number of parents, number of children, socioeconomic status, family workloads, connectedness

Question 3

What does a positive home environment cause?

Answer 3

family members participate in expected activities, sustaining a routine

Question 4

Acceptance

Answer 4

siblings accept that there is a disability present

Question 5

Forbearance

Answer 5

the way they deal with difficulties of disability

Question 6

Joint activities

Answer 6

siblings doing things together

Question 7

Private time

Answer 7

spending time alone

Question 8

Social support

Answer 8

support from parents

Question 9

Exchange experiences

Answer 9

siblings share experiences and learn from each other

Question 10

Dealing w/ outside world

Answer 10

making sure people outside the family understand the sibling relationship

Question 11

Mutual understanding

Answer 11

communication between siblings

Question 12

Trust in well-being

Answer 12

knowing sibling w/ disability will be okay, sibling should NOT be primary guardian/caretaker

Question 13

Parent-Surrogate sibling

Answer 13

fulfilling role of parent/caregiver

Question 14

Estranged sibling

Answer 14

one of the most negative sibling relationships, non-disabled child receives nothing from parents and resents sibling

Question 15

Bystander sibling

Answer 15

arm’s length relationship

Question 16

Mediator sibling

Answer 16

siblings work together to mediate issues within the family ecology

Question 17

Friend sibling

Answer 17

most positive sibling relationship, good partnership and understanding between siblings. disability isn’t really a factor within relationship

Question 18

Results of parenting a disabled child

Answer 18

increased stress, increased involvement

Question 19

Systematic issues of parenting a child with a disability

Answer 19

low accountability for daycare of disabled kids, children in trouble based on behavior, relying on under the table “daycare”, few government loans and agencies for support

Question 20

Result of emotional/behavioral issues in school system

Answer 20

children isolated at school based on behavior, people with lower-level disabilities may be included, those with more severe disabilities excluded

Question 21

Individuals with Disabilities Education Improvement Act (IDEIA)

Answer 21

The K-12 system which educational services are provided under.

Question 22

Components of IDEIA

Answer 22

Requires parent participation in developing educational programs for students with disabilities. States that schools must educate/have special ED programs. Policies differ based on school. Services can begin as early as birth and continue through age 21. Parents must consent to any services provided, regardless of if the child is 18 or not, or level of independence.

Question 23

Transition planning

Answer 23

parent involvement in planning for their child’s life after their school career is over. Done through school in collaboration with families, community members, etc.

Question 24

Respite care

Answer 24

short term, temporary care provided to people with disabilities in order for their families to take a break from the daily routine of caregiving

Question 25

The Ashley treatment

Answer 25

hysterectomy, appendectomy, pumped with estrogen, removed breast ducts so she could never fully develop, expanding her life span

Question 26

Health problems associated with Down Syndrome

Answer 26

Hypotonia (floppy muscle tone), vision problems, hearing loss, heart defects, gastrointestinal defects, thyroid problems,

Question 27

People with Down Syndrome are less likely to have:

Answer 27

hypertension, arthritis

Question 28

People with Down Syndrome are more likely to have:

Answer 28

poor dental care and hygiene, poor oral hygiene, incidences of epilepsy

Question 29

Common problems of accessing specialized healthcare

Answer 29

getting referrals (when covered by insurance) and appointments, finding providers with expertise in the area of need, coordination of services

Question 30

Adults with ID are:

Answer 30

at a greater risk for developing psychiatric and mental disorders (about 5 times greater than their age peers)

Question 31

Teaching appropriate behaviors to adults with ID involves

Answer 31

anatomy/physiology, empowerment (self-determination, involves consent, boundaries), relationships, social skills, participating in social opportunities, understanding own bodies and development

Question 32

Levels of the target sample tool

Answer 32

family, friends, acquaintances, strangers