End of Life Care Flashcards

1
Q

death is defined as the…

A

the cessation of integrated tissue and organ function, manifested by any one of these:
Lack of heartbeat
Absence of spontaneous respirations
Irreversible brain dysfunction
Although dying is part of the normal life cycle, it is often feared as a time ofpainand suffering

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2
Q

what is the patient self-determination act

A

grants people the right to determine the medical care they want provided (or not provided) if they become incapacitated

Documentation of this self-determination is accomplished by completing anadvance directive (AD)

The PSDA requires that a representative in every health care agency ask patients when admitted if they have written advance directives

Most ADs have a section where one names adurable power of attorney for health care (DPOA)

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3
Q

living will

A

which identifies what one would (or would not) want if he or she were near death
Treatments that are discussed include cardiopulmonary resuscitation (CPR), artificial ventilation, and artificial nutrition or hydration

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4
Q

DNR do not resuscitate form

A

an actual order from a physician or other authorized health care provider who instructs that CPR not be attempted in the eventof cardiac or respiratory arrest

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5
Q

palliative care

A

an interdisciplinary model of care, focusing on symptom management and psychosocial/spiritual support for those with serious, life-limiting illnesses

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6
Q

palliative care aims to improve

A

quality of life for people and families through early integration into the plan of care strategies for managing pain and symptoms and for reducing burdensome care transitions through interdisciplinary teamwork, care coordination, clinician–patient communication, and decisional support

It is appropriate for patients at any age and at any stage in a serious illness, even while pursuing disease-directed or curative therapies, and extending into bereavement for families

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7
Q

the delivery of palliative care is typically through an interdisciplinary consultation service where primary teams consult specialists for one or more of the following reasons:

A

Pain management
Symptom management
Goals of care discussions
End-of-life issues
Psychosocial distress
Spiritual or existential distress

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8
Q

hospice

A

a type of palliative care, focusing on comfort at the end-of-life. When patients enroll in hospice, they have made the decision to forego disease-directed therapies and focus solely on the relief of symptoms associated with their illness and the dying process

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9
Q

hospice is a holistic approach…

A

neither hastens nor postpones death but provides relief of symptoms and is provided in a variety of settings

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10
Q

hospice care focuses on…

A

quality of life, and by necessity, it usually includes realistic emotional, social, spiritual, and financial preparation for death. Hospice in the United States is not a place but a philosophy of care in which the end-of-life is viewed as a developmental stage

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11
Q

role of the nurse in a family meeting

A

Advocate for patient based on values shared by patient and family.
Act as interpreter when medical jargon is not clearly understood by patient and family.
Respond to emotion expressed in meeting.
Prior to meeting, encourage and assist patient and family with developing questions to ask of interdisciplinary teams during meeting.
Express concerns.
Share clinical nursing updates.

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12
Q

Patient and family needs

A

Care for their loved one as a person
Care to prevent suffering and pain of their loved one
Availability of clinicians
Demonstrate collaboration and communication amongst team members
Appropriate, accurate and understandable information about prognosis
Permit time to allow families to share concerns
Direction on what to focus on

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13
Q

SPIKES mnemonic for giving bad news:

A

S: Setting – Make sure the setting is conducive as possible

P: Patient’s perception – Ask what they know of their disease

I: Invitation – Ask what they want to know if this becomes more serious

K: Knowledge – Give them the facts they want to know

E:Exploring/empathy/emotion – Allow the patient to express their feelings and worries and provides support

S: Strategy/summary – Develop a plan and follow-through with the patient

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14
Q

non-pharm interventions regarding pain

A

Massage to manipulate the patient’s muscles and soft tissue, which improves circulation and promotes relaxation
Music therapy based on patient preferences to decreasepainby promoting relaxation
Therapeutic touch by moving one’s hands through the patient’s energy field to relievepain
Aromatherapy to decreasepainby promoting relaxation and reducing anxiety
Avoid any iatrogenic sources

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15
Q

pharm interventions regarding pain

A

Morphine
Stool softeners

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16
Q

non-pharm interventions regarding breathlessness/ dyspnea

A

Elevate the head of bed &/or position the person on his or her side
Mechanical ventilation (invasive or non-invasive)
Conserve energy, consider a Foley catheter
Paracentesis or thoracentesis

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17
Q

pharm interventions regarding breathlessness/dyspnea

A

Oxygenation
Morphine
Bronchodilators
Corticosteroids
Diuretics
Antibiotics

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18
Q

non-pharm interventions regarding oral secretion or loud wet respirations

A

Position the patient on his or her side
Place a small towel under his or her mouth to collect secretions

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19
Q

pharm interventions regarding oral secretion or loud wet respirations

A

Atropine sulfate drops
Scopolamine patches

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20
Q

non-pharm interventions regarding weakness

A

Teach families about the risk for aspiration
Reassure them that anorexia is normal at this stage
To avoid a dry mouth and lips, moisten them with soft applicators and apply an emollient

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21
Q

non-pharm interventions regarding increased lethargy

A

Spend time sitting quietly with the person
Do not force the person to stay awake
Talk to the person as you normally wound, even if he or she does not respond

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22
Q

non-pharm interventions regarding N/V

A

Discontinue enteral feedings; put PEG to drainage
Offer nourishment only when the patient has an appetite or thirst
Avoid NGT decompression
Apply a cool wet cloth on the patient’s face
Avoid any smells or foods that may induce the symptoms
Aromatherapy using chamomile, camphor, fennel, lavender, peppermint and rose

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23
Q

pharm interventions regarding N/V

A

Antiemetics
Anticholinergics

24
Q

non-pharm interventions regarding decreased nutrition/fluid

A

Do not force the person to eat or drink
Offer supplements or protein shakes if tolerated
Assess for any medications causing the problem, or environmental causes (such as unpleasant odors) causing decreased appetite
Offer small sips of liquids or ice chips at frequent intervals if the person is alert and able to swallow
Use moist swabs to keep the mouth and lips moist and comfortable, coat the lips with lip balm
Assess for oropharyngeal pain or ulcers causing the decreased appetite

25
non-pharm interventions regarding severe agitation and restlessness (and delirium)
Assess for underlying cause, acknowledge the family’s distress, educate and reassure Play soothing music, keep the room dimly lit and use aromatherapy Do not restrain the person Apply wet cloths on the patient’s face Reduce the environmental stimuli Talk quietly and keep the noise level to a minimum
26
pharm interventions regarding severe agitation and restlessness (and delirium)
Haloperidol Benzodiazepines
27
non-pharm interventions regarding seizures
Decrease stimuli Avoid any triggers (if any are known)
28
pharm interventions regarding seizures
Benzodiazepines Barbiturates
29
non-pharm interventions regarding incontinence
Keep the perineal area clean and dry Use disposable underpads or chux pads and disposable undergarments If the person would be more comfortable, consider a Foley catheter
30
non-pharm interventions regarding coolness of extremities
Cover the person with a blanket Do not use an electric blanket, hot water bottle, electric heating pad, or hair dryer to warm the person
31
Psychosocial interventions for the dying patient and the family
Offer physical and emotional support by “being with” the patient Respect cultural preferences Be realistic Encourage reminiscence Promote spirituality and hope Avoid explanations of the loss Communicate with the patient Provide referrals to bereavement specialists Teach about the physical signs of death Ensure that the patient is receiving palliative care, with an emphasis on symptom management
32
Basic beliefs regarding care at end of life and death rituals for Hinduism:
This life is a transition between the previous life and the next Postdeath rituals are important. Bodies are cremated. During the first 10 days after death, relatives must create a new ethereal body Karma is the manner through which one reaps benefits and penalties of pas actions. “Good karma” leads to good rebirth or release, and “bad karma” leads to bad rebirth or pain and suffering during release Health care decisions may be made communally with senior family members as final authority
33
Basic beliefs regarding care at end of life and death rituals for Judaism:
The dying person is encouraged to recite the confessional or the affirmation of faith, called the Shema Disclosure is important, most patients want to know the truth According to Jewish law, a person who is extremely ill and dying should not be left alone The body should not be left unattended until the funeral, which should take place as soon as possible (preferably within 24 hours) Autopsies are not allowed by Orthodox Jews, except under special circumstances The body should not be embalmed, displayed, or cremated
34
Basic beliefs regarding care at end of life and death rituals for Buddhism:
Treatment by someone of the same gender is preferable Cremation is the most common way of disposing of the dead Some Buddhists may be unwilling to take pain-relieving medications or strong sedatives, as it is believed that an unclouded mind can lead to a better rebirth Buddhists believe that after death there is either rebirth or nirvana – the latter being enlightenment that frees the soul from the cycle of death and rebirth
35
Basic beliefs regarding care at end of life and death rituals for Islam
Based on belief in one God Allah and his prophet Muhammad. Qur'an is the scripture of Islam, composed of Muhammad's revelations of the Word of God (Allah) Death is seen as the beginning of a new and better life God has prescribed an appointed time of death for everyone Qur'an encourages humans to seek treatment and not to refuse treatment. Belief is that only Allah cures but that Allah cures through the work of humans Upon death, the eyelids are to be closed and the body should be covered. Before moving and handling the body, contact someone from the person's mosque to perform rituals of bathing and wrapping body in cloth Fasting during the month of Ramadan is a pillar of Islam
36
Basic beliefs regarding care at end of life and death rituals for Christianity
There are many Christian denominations, which have variations in beliefs regarding medical care near end of life Christians believe in an afterlife of heaven or hell once the soul has left the body after death, this believe in eternal salvation sets Christianity apart Roman Catholic tradition encourages people to receive Sacrament of the Sick, administered by a priest at any point during an illness. This sacrament may be administered more than once. Not receiving this sacrament will NOT prohibit them from entering heaven after death People may be baptized as Roman Catholics in an emergency situation (e.g., person is dying) by a layperson. Otherwise, they are baptized by a priest
37
Emotional signs & symptoms of imminent death:
Withdrawal Vision-like experiences Letting go Saying goodbye
38
Physical signs & symptoms of imminent death:
Periods of apnea and Cheyne-Stokes respirations Wet, gurgle ”death” rattle as the patient breathes Blood pressure decreases  Peripheral circulation decreases Skin is cold and mottled Hypersomnolence
39
Signs that death has occurred:
Breathing stops Heart stops beating Pupils become fixed and dilated Body color becomes pale and waxen Body temperature drops Muscles and sphincters relax Urine and stool may be released Eyes may remain open, and there is no blinking The jaw may fall open Observers may hear trickling of fluids internally
40
Pronouncement of death:
Note time of death that the family or staff reported the cessation of respirations Identify the patient by the hospital identification (ID) tag; note the general appearance of the body Ascertain that the patient does not rouse to verbal or tactile stimuli. Avoid overtly painful stimuli, especially if family members are present Auscultate for the absence of heart sounds; palpate for the absence of carotid pulse Look and listen for the absence of spontaneous respirations Record the time at which your assessment was completed Document the time of pronouncement and all notifications in the medical record (i.e., to attending physician). Document if the medical examiner needs to be notified (may be required for unexpected or suspicious death). Document if an autopsy is planned per the attending physician and family If your state and agency policy allows an RN to pronounce death, document as indicated on the death certificate After the patient dies, ask the family or other caregivers if they would like to spend time with the patient to assist them in coping with what has happened and say their good-byes Call organ donation within 1 hour of death Before preparing the body for transfer, ask the physician whether an autopsy will be required After the family or significant others view the body, follow agency procedure for preparing the patient for transfer to either the morgue or a funeral home In the hospital, a postmortem kit is generally used with a shroud and identification tags
41
Grief
is the emotional feeling related to the perception of the loss. Patients who are dying suffer not only from the anticipated death but also from the loss of the ability to engage with others and in the world
42
mourning
refers to individual, family, group, and cultural expressions of grief and associated behaviors
43
bereavement
refers to the period of time during which mourning for a loss takes place
44
Kübler-Ross’s Stages of Grief and Loss
Denial Anger Bargaining Depression Acceptance
45
Symptoms of grief:
Crying Headaches Difficulty sleeping Questioning the purpose of life or their spiritual beliefs Feelings of detachment Isolation from friends and family Abnormal behavior Anxiety Frustration Guilt Fatigue Anger Loss of appetite Aches and pains Stress
46
Interventions for grief: non-pharm
Encourage story telling and reminiscing Assess for coping skills Assess for social support Support groups, bereavement groups, counseling Assess for signs of complicated grief
47
interventions for grief: pharm
Antidepressants Anti-anxiety Sedatives
48
special issues for Nurse: ethical dilemmas
In caring for patients at the end-of-life, questions of right and wrong may arise in relation to treatment options The ANA’s Code of Ethics for Nurses provides a framework for the nurse to support patients, with guiding principles being the patient’s right to self-determination and the nurse’s adherence to professional nursing standards The most common ethical dilemmas a nurse will encounter are determining decisional capacity, withholding or withdrawing life-prolonging measures such as: Ventilator support, dialysis, artificial nutrition and hydration, requests for hastening death, and concerns related to proxy decision making
49
Special Issues for Nurse: nutrition
As illness progresses, patients, families, and clinicians may believe that without artificial nutrition and hydration, patients who are terminally ill will starve, causing profound suffering and hastened death, however: The use of artificial nutrition and hydration (tube and intravenous fluids and feeding) carries considerable risks and generally does not contribute to comfort at the end-of-life Similarly, survival is not increased when patients who are terminally ill with advanced dementia receive enteral feeding No data supports an association between tube feeding and improved quality of life in these patients
50
Special Issues for Nurse: request to hasten death
Health care recognizes the right to choose for or against medical treatments when a patient is of sound mind and can relay a rationale for or against treatments. Further, patients may choose to withdraw or withhold life-sustaining treatments and allow natural death if such therapies are not aligned with their wishes When faced with a progressive life-limiting illness, some cannot fathom suffering at the end-of-life and explore options to hasten death In its 2013 position statement on Euthanasia, Assisted Suicide, and Aid in Dying, the ANA acknowledged the complexity of the assisted suicide debate but clearly stated that nursing participation in assisted suicide is a violation of the Code for Nurses
51
Withdrawing or withholding life-sustaining therapy
: (aka passive euthanasia) An act of omission (e.g., withholding or withdrawing treatment) that might prolong the life of a person who cannot be cured by the treatment. In this situation, the withdrawal of the intervention does not directly cause the patient's death
52
Voluntary active euthanasia:
An act by which the causative agent or treatment in the death of a patient is administered directly by another
53
Involuntary active euthanasia:
The action to end the patient's life is taken without the patient's consent
54
Physician-assisted suicide:
A practice whereby a physician provides a means (e.g., medication) to a patient with the knowledge that the patient will use the means to commit suicide
55
Principle of double effect:
Involves taking an action intended to have a good effect, which also has a known harmful effect. This is not active euthanasia
56
special issues for nurse: COVID
During the pandemic, symptom management at the end-of-life has required revisions due to logistical challenges such as medication shortages and preservation of personal protective equipment Due to high risk of infectious transmission, family members may not be permitted to see loved ones at the end-of-life Family meetings are primarily virtual, where proxies must make difficult decisions such as resuscitation and intubation, and even removal of life support Meanwhile, health care providers are struggling from high physical workload demands while simultaneously experiencing moral and psychological distress
57
Special Issues for Nurse: Losing a patient
Nurses might learn how to help family members grieve, but seldom learn how to deal with their own feelings of sadness or loss Debrief with staff Help with rituals of the patient and family if appropriate Discuss the death with friends and family Attend the funeral Pray or draw strength from spiritual beliefs Use relaxation techniques Healthy personal habits, including diet, exercise, stress reduction activities (e.g., dance, yoga, meditation), and sleep, help guard against the detrimental effects of stress