Deck 13 Flashcards

1
Q

Identify the importance of data collection mode when conducting a study design.

A

While a respondent’s words taken during phone surveys or in-person interviews take more importance given the conversational format, online surveys’ visual design elements have a bigger impact on how questions are read and interpreted. When designing a survey online, it is important to be aware of the question types that are a good fit.

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2
Q

Identify the importance of respondent effort when undertaking survey design.

A

There are questions that put a heavier burden on the respondent’s working memory and comprehension or are likely to elicit higher non-response if asked in different data collection modes.

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3
Q

Identify the importance of question wording when conducting a survey design.

A

Formulating questions with the right wording so it accurately reflects the issue of interest is one of the hardest parts in writing questionnaires.

Data errors can sift through a survey if you use unfamiliar, complex, or technically inaccurate words, ask more than one question at a time, use incomplete sentences, use abstract or vague concepts, make the questions too wordy, ask questions without a clear task or ask questions that lead respondents to a particular answer.

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4
Q

Identify the importance of question sequence when conducting a survey design, as well as question format.

A

Questions should follow a logical flow. Order inconsistencies can confuse respondents and bias the results.

Questions can be closed-ended or open-ended. Closed-ended questions provide answer choices, while open-ended questions ask respondents to answer in their own words. Each type of question serves different research objectives and has its own limitations. The key issues here are related to the level of detail and information richness we need, our previous knowledge about the topic, and whether to influence respondents’ answers.

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5
Q

Identify the importance of information accuracy when conducting a study design.

A

Some questions yield more accurate information than others. Respondents can answer questions about their gender and age pretty accurately, but when it comes to attitudes and opinions in a particular issue, many may not have a clear answer. Overall, attitudes and opinion questions should be worded in a way that best reflects how respondents think and talk about a particular issue.

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6
Q

Identify the importance of measured behaviours when conducting a study design.

A

People tend to have less precise memories of mundane behaviors they engage in on a regular basis, and usually they do not categorize events by periods of times (e.g. week, month, and year). We need to consider appropriate reference periods for

the type of behavior we want to measure. Measured behavior should be relevant to the respondent and capture his or her potential state of mind.

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7
Q

Identify the importance of question structure when conducting a study design.

A

Questions have different parts that must work in harmony to capture

high-quality data. These are the question stem (e.g. what is your age?), additional instructions (e.g. select one answer) and response options, if any (e.g. Under 18, 19 to 24, 25 +). The wrong combination can leave respondents baffled about how to answer a question.

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8
Q

Identify the importance of visual layout and analytical plan when conducting a survey design.

A

Using design elements in an inconsistent way can increase the burden put on the respondent in trying to understand the meaning of what is asked. Different font sizes, colors, and strengths across questions, forces the respondent to relearn their meaning every time they are used. Also presenting scales with different directions (positive to negative or vice versa) in rating questions within the same survey increases measurement error as respondents often assume all rating questions have the same scale direction even when the instructions explain the meaning of the end points of the scale.

Analytical plan - Based on the research object, both the type of information requested and the question format are important for the type of analysis we plan to perform once the data is collected. There is also the question of whether you want to replicate the results, track certain events or just run a one-time ad-hoc analysis. If the goal is to track certain metrics, time and care should be dedicated to craft tracking questions, as slight changes in wording can change the meaning of a question and thus its results.

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9
Q

The stages of change model was created to observe the stages people would go through to help them quit smoking. What are the stages of this model?

A

Precontemplation – During the precontemplation stage, people are not considering a change. People in this stage are often described as “in denial” due to claims that their behavior is not a problem. If you are in this stage, you may feel resigned to your current state or believe that you have no control over your behaviour. In some cases, people in this stage do not understand that their behaviour is damaging or are under-informed about the consequences of their actions.

Contemplation – During this stage, people become more and more aware of the potential benefits of making a change, but the costs tend to stand out even more. This conflict creates a strong sense of ambivalence about changing. Because of this uncertainty, the contemplation stage of change can last months or even years. In fact, many people never make it past the contemplation phase.

Preparation – During the preparation stage, you might begin making small changes to prepare for a larger life change. For example, if losing weight is your goal, you might switch to lower-fat foods. You might also take some sort of direct action such as consulting a therapist, joining a health club, or reading self-help books.

Action – People begin taking direct action in order to accomplish their goals. Oftentimes, resolutions fail because the previous steps have not been given enough thought or time.

Maintenance – The maintenance phase of the Stages of Change Model involves successfully avoiding former behaviours and keeping up new behaviours. During this stage, people become more assured that they will be able to continue their change. If you are trying to maintain a new behaviour, look for ways to avoid temptation.

Relapse – In any behavior change, relapses are a common occurrence. When you go through a relapse, you might experience feelings of failure, disappointment, and frustration.

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10
Q

How would you discriminate between causal and non-causal association?

A

Temporality: Does the presumed cause precede the effect? Obviously a cause must precede its effect. However that is as far as can be said with any degree of certainty. It does not follow that if exposure to a postulated causative agent precedes an effect that the latter is the direct consequence of the former.

Reversibility: Does removal of a presumed cause lead to a reduction in the risk of ill-health? Reduction in a particular exposure if followed by a reduced risk of a particular disease may strengthen the presumption of a real cause-effect relationship. This reversibility of association may suffer from similar fallacies as temporality.

Strength of Association: Is the exposure associated with a high relative risk of acquiring the disease? The concept of “risk” and its measurement also features elsewhere. programme. How does the strength of association between a risk and a possible causal factor influence the weight of evidence for a causal association?

Exposure-response: Is increased exposure to the possible cause associated with an increased response (i.e. an increased likelihood of an effect)?

Consistency: Have similar results been shown in other studies? Elsewhere you can learn how to critically appraise literature. It follows that if a number of good studies using different approaches lead to the same interpretation of a cause-effect relationship it is more likely to be a valid one.

Biologic plausibility: Is there a reasonable postulated biologic mechanism linking the possible cause and the effect?

Analogy: Can parallels be drawn with examples of other well established cause-effect relationships?

Specificity: Does the cause lead to a specific effect? (i.e. one cause - one effect) Many diseases and symptoms can be the result of a number of causes. Similarly many causes of ill- health can have different effects on the body. Only rarely is specificity demonstrable in environmental cause-effect relationships (other than in infectious diseases). Thus for example mesothelioma of the pleura (or peritoneum) is a relatively specific consequence of asbestos exposure. {However this criterion has to be treated with some caution: for example we know that tobacco smoking can cause many diseases ranging from lung cancer to chronic bronchitis to bladder cancer, and that asthma can be caused by many occupational causes - i.e. a single cause does not necessarily equal a single effect}.

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11
Q

Describe the link between health and gender.

A

 Throughout entire industrial world men live shorter lives

 Men more likely to die at any given age than women of the same age.

 BUT females are more likely to experience high morbidity rates

 women are far more likely to visit the doctor than men

 men generally underepresented in health statistics

Mortality….

 over the last 100 years, in all contemporary advanced industrial societies, life expectancy has

increased for both men and women

 but higher for women.

 (1994) average female life expectancy was approximately 78 years compared to 72 years for

men.

 Major causes of death among British men heart disease, lung cancer, bronchitis, accidents

and other violent deaths

 For women cancers of the breast cervix and uterus are major causes of mortality.

 coronary heart disease now a major cause of female deaths

Morbidity….

 Women more likely to report both physical and psychological problems to their GP.

 higher rates of chronic disease such as strokes, rheumatoid arthritis, diabetes and varicose

veins for women women also constitute two thirds of those with a disability.

 Women more likely to have been hospitalized

 women constitute the majority of those suffering from neurosis, psychosis, dementia and

depressive disorders.

 women also more likely to suffer from Iatrogenic disease

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12
Q

Describe the link between health and ethnicity.

A

 Groups from India, Pakistan and Bangladesh - more likely than white population to die from heart disease.

 Groups from India, Pakistan and Bangladesh, Africa and the Caribbean - more likely than white population to suffer from a stroke (esp Africans and Afro-Caribbean’s).

 Africans and Afro-Caribbean’s suffer from very high rates of hypertension, liver cancer, TB, diabetes and maternal mortality.

 Afro-Caribbean’s and ‘Asians’ (problematic category) suffer disproportionately from accidental and violent death, and poisonings.

 Mortality rates for obstructive lung infections such as bronchitis and many types of cancer esp. lung cancer lower among Afro-Caribbean’s and ‘Asians’.

 All ethnic minorities have higher rates of still births, perinatal moralities (death within 1 week), and neo-natal mortality (within 1 month).

 Afro-carribeans more likely to be admitted to mental health units, men more so than women and more likely to be sectioned

Explanation? - Poverty, Stress of Migration & Racism, Anomic Explanations, Cultural Deficit Models.

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13
Q

What is Prognosis?

A

An assessment of the future course and outcome of a patient’s disease, based on knowledge of the course of disease in other patients together with the general health, age, and sex of the patient

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14
Q

Why is Prognosis important?

A

 Knowledge of prognosis with or without treatment can help diagnostic and treatment decisions

 Important for patients to know the likely course of their disease

 Different patients will value outcomes of disease process differently, which may need to be

taken into account during decision making.

 Doctors are not always accurate in their prognostic judgements*

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15
Q

Some characteristics of the patient can be used to predict outcomes more accurately, known as prognostic factors. They can be..

A

 Demographic (e.g. age, gender)

 Disease specific (e.g. grade of tumour)

 Co-morbid (other coexisting disease conditions)

Prognostic factors are not the same as risk factors. Risk factors are patient characteristics associated with the development of the disease in the first place.

• An example

o Being overweight is generally considered to be a risk factor for type 2 diabetes (i.e. if you are obese you are more likely to develop type 2 diabetes than someone who isn’t obese).

o If you are a type 2 diabetic, having higher blood glucose levels is a prognostic factor for increased risk of mortality (i.e. the higher your blood sugar, the higher your risk of dying)

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16
Q

How do you conduct a cohort study?

A

Selecting study population
o Group of individuals with the disease or who have been exposed to the possible risk factor

 Clear, well accepted diagnosis
 Explicit delineation of diagnostic criteria
 Patients at comparable stage of disease process

o Compared to comparison group

 Could be group of similar individuals who do not have the disease or who

have not been exposed to the risk factor

 Could be group of individuals with disease with different prognostic factors

(e.g. sub-divided by age, co-morbidity)

o Need to be aware of issues to do with selection bias

 May be systematic differences between the two comparison groups

Healthy working populations not comparable to the community as

likely to be healthier

Volunteers may be different in some way to individuals who refuse

to take part

Different groups may vary on characteristics such as socio-economic

status, lifestyle factors

• Measurement
o Baseline data/Record of exposure

 Accurate measurement important

 May need to be reassessed over time as status may vary o Follow-up data –

 Have data on all individuals in a cohort, whether develop outcome of interest or not

 Should be objective
 Data such as mortality rates, episodes of illness

• Follow-up
o Needs to be long enough to identify outcome of interest o Need to maximise completeness

 Often use groups that are more likely to be easy to contact in future years, such as working populations

 Use of routine data
o If too many participants lost at follow-up could bias results o To reduce potential for bias:

 Researchers should be blind to patient’s prior characteristics

 Explicit criteria for all measurement • Interpretation of results

o Provides evidence of association not cause
 e.g. there is an association between high blood glucose levels and mortality

risk – but this does not mean that high blood glucose levels cause death o Need to be aware of possible bias

 Selection bias- try to ensure groups comparable, minimise loss to follow-up, use clear objective criteria

 Confounding –other variables that are also related to the outcome of interest need to be taken into account

17
Q

What are the advantages of a cohort study?

A
  • Measurement of exposure to risk factors not biased by the presence of absence of outcome.
  • Can provide data on time course of development of an outcome.
  • More than one outcome can be examined at once.
  • Useful for investigating rare exposures.
18
Q

What are the disadvantages of a cohort study?

A

o Potential for bias due to selection of subjects
o Danger of losses to follow-up
o Historical studies dependent on accuracy of records/family/patient recall
o Exposure to risk factors/existence of prognostic factors may change over course of

study
o Can be timely and costly to carry out (e.g. some cohort studies can last for 20 years

or more)

19
Q

What are the advantages and disadvantages of case control studies?

A

• Issues to consider in case-control studies
o Selection of cases and controls – controls should come from the same population as

cases
o Recall bias – problems with accurate recall of information if reliant on patient/family

accounts. May be reliant on accuracy of medical records •

Advantages

o Relatively quick to carry out

o Can be used to examine outcomes that are relatively rare •

Disadvantages

o Problems with possible bias in selection of cases and controls
o Potential for recall bias
o Measurement of exposure to risk factors may be biased by presence or absence of

the outcome

20
Q

How would the likelihood of an outcome over time be presented?

A

o As a percentage of survival/specified outcome at a particular point in time (e.g. 40%

of people survive for 5 years)
o As median survival – the length of follow-up by which 50% of study patients have

died/experienced the outcome (e.g. at least half of all patients with this disease

survive 5 years)
o As survival curves – depict at each point in time the proportion (expressed as a

percentage) of the original sample who have not yet died/experienced the outcome

Results:

As a percentage – 60% of patients with diabetes survived for 8 years, compared to 50% of patients with an MI

o As a median survival rate – at least half the patients with diabetes survived longer than 11 years. At least half the patients with an MI survived for 8 years.

21
Q

Explain the importance of patient centred care.

A

 Patients bring more than one problem (mean of 1.2-3.9) to a consultation.

 Patients do not raise concerns in any order of importance.

 In primary care, only 50% of patients’ complaints are elicited.

 After 50% of visits, patient and doctor do not agree about the nature of the presenting

problem.

 Doctors often interrupt patients before they have completed their opening statement

Summarising allows you to:

 Pull together and review what you’ve heard so far

 Order the information into a coherent pattern

 Realise what information you still need to obtain, and what you need to clarify

 Gain space, to consider where the consultation should go next

 Separate out, and/or weave together, the disease and illness perspective

22
Q

Expain what signposting is and why its useful.

A

Sign Posting:

 Gestures

 Phrases/words

 Pitch and volume

 Posture and bodily orientation

Signposting and Summarising important because…

  • Are key skills promoting a collaborative and interactive interview
  • Make the structure overt and understood to the patient
  • Allow you and the patient to know where you are going and why
  • Allow you to signal a change in direction (and the patient to suggest one)
  • Establish mutually understood common ground
  • Reduce uncertainty for the patient
23
Q

What is patient centred care?

A

 Explores the main reason for the visit, concerns and need for information

 Seeks an integrated understanding of the patient’s world

 Finds common ground on what the problem is and mutually agrees on management

 Enhances prevention and health promotion

 Enhances the continuing relationship between patient and doctor

 Being realistic