Cystic Fibrosis Flashcards

1
Q

Cause

A

Recessive genes that a child inherits from both parents at conception

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2
Q

Physical impact

A
Lung/breathing problems due to mucus filling the lungs
Digestive problems, hard to digest food
Stunted growth
May be infertile
Reduced life span normally about 40
Nasal pollups
Late in puberty 
Clubbed fingers
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3
Q

Intellectual impact

A

Miss out on school because of constant illness and many appointments
May effect their development

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4
Q

Emotional impact

A
Depressed due to being constantly ill and missing out on socialising
Self conscious 
Embarrassed
Stressed
Anxious
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5
Q

Social impact

A

Ill a lot so find it hard to go out
May lose friends due to ignorance
Too unwell to go out or go to school

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6
Q

Financial impact

A

Missing out on school cam have long term effects, if they don’t have GCSEs or A levels they will find it hard to get a job lack job opportunities
If they have a job they will take time out for appointments or illnesses effecting pay
Cost in travel
Parents may have to quit job or take time off work

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7
Q

Education barrier

A

Lack of knowledge due to time off school

Miss out on education because of appointments and feeling ill

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8
Q

Employment barrier

A

Lack of education can effect grades so can be hard to get job
Limited job opportunities
May have to work part time
May lose job because off being off a lot

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9
Q

Societal barriers

A

Too ill to leave house
People can be ignorant
May be hard to make relationships due to discrimination

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10
Q

Economic barriers

A

Missing work/ not having a job can effect wages/ income

May have to rely on benefits due to limited job opportunities

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11
Q

Environment barriers

A

If bones weaken may effect how you can walk so may have little mobility effecting access to places
May need a wheelchair

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12
Q

Bullying risk

A

For being short (stunted growth)

For being late in puberty

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13
Q

Stress risk

A

Missing out on school meaning having to catch up on work

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14
Q

Abuse risk

A

Physically and verbally by bullies

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15
Q

Self harm risk

A

May hurt themselves due to depression

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16
Q

Social isolation / exclusion risk

A

Not socialising and stopping in the house due to being ill
Lack of social contact
May lose friends
People will stop asking them Togo out as they think they’ll say no

17
Q

Practitioners

A

GP
Physiotherapist
Dietitian

18
Q

What will a GP do to support

A

Diagnose condition by blood or sweat test
Give antibiotics to help or prevent lung infections
Nah give inhalers and do other kings to help slow the progression
May refer you to physiotherapist

19
Q

Physiotherapist

A

Use and teach a variety of techniques and exercises to help clear the airways
Guide them on how and what changes they should make to lifestyles
Assess and advise on how to manage

20
Q

Dietitian

A

Advise on what you can do to help avoid malnutrition

Advise on what to eat may supply tablets such as digestive enzymes capsules and vitamins

21
Q

Legislation

A

Children’s act

Equality act

22
Q

Children’s act

A

Ensures children are safeguarded and their welfare is paramount
Makes sure children get the care they need

23
Q

Equality act

A

Helps prevent discrimination and makes sure people have equal opportunities and are treated equally