Conservative care and role of active and supportive treatment Flashcards

1
Q

Why is it bad that we don’t we let people die?

A

The medical profession is too focused on the ‘war on disease’ to give adequate time to end-of-life care

Patients dying in hospitals often receive inadequate end-of-life care because doctors are scared of asking them about their needs and discussing death, experts have said.

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2
Q

What is the definition of supportive care?

A

Care that helps patient and family to cope with condition and its treatment

  • from prediagnosis
  • through diagnosis and treatment
  • to cure, continuing illness or death
  • into bereavement

Helps patient maximise benefits of treatment and to live as well as possible with effects of disease

As important as diagnosis and treatment

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3
Q

What is palliative care?

A

Palliative care is care which enables people with progressive, and/or life threatening conditions or who are approaching the end of life to live according to their wishes and preferences wherever possible

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4
Q

How do we achieve aims of supportive care?

A

Communication with patient and family
- Patient and family expectations and wishes
- Symptoms and pain control
- Realistic prognosis
Awareness of patient being near end of life
Advance care planning
Appropriate active interventions, e.g., antibiotics, dialysis, ventilation – and discussing withdrawal where appropriate – or not starting

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5
Q

What is the patient perspective of starting dialysis?

A

Relief of symptoms

Achieve quality of life goals

  • Social and family interactions
  • Physical activity: travel, work, exercise, self-care
  • Mental activity: work, hobbies

Extend life with good quality

Avoid complications of treatment

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6
Q

What is the physicians pesrpective on starting dialysis?

A

Sick patient – have to do something
Meets criteria for starting dialysis
Belief that dialysis will benefit patient
Spaces available in HD unit – need filling
particularly important in private sector
Patient may not do well, but lets give dialysis a try

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7
Q

What are the factors to consider when older people are on dialysis?

A
Multiple comorbidities
Physical function
Cognitive function
Nutritional status
Depression
Social isolation
Vision
Hearing
Social support
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8
Q

What is scored to determine prognosis in >75 yrs patients on dialysis?

A

Body mass index <18.5 kg/m2 (1 point)

Congestive heart failure stages III-IV (2 points)

Peripheral vascular disease stages III-IV (2 points)

Dysrhythmia (1 point)

Active malignancy (1 point)

Severe behavioural disorder (2 points)

Total dependency for transfers (3 points)

Unplanned dialysis (2 points)

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9
Q

How does autonomy affect the decision of dialysis?

A

Patients must be given realistic and accurate information to enable them to make appropriate decision

Patients cannot demand treatment if not appropriate

Not relevant if patient lacks capacity

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10
Q

How does benificence affect decision of dialysis?

A

i.e. dialysis should benefit patient
Prolongs survival
Improves quality of life
Improves symptom burden

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11
Q

How does non maleficence affect the decision of dialysis?

A

i.e. dialysis should not harm patient
Shortens survival
No improvement or worse quality of life
Increases symptom burden

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12
Q

How does justice affect the decision of dialysis?

A

Limited resources in all healthcare systems

Dialysing patients who would not benefit leads to

  • Dialysis staff/machines not being available for patient who may benefit
  • Money/resources not being available for other healthcare needs
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13
Q

What is conservative care?

A

Non-dialysis pathway chosen by patient after shared decision making with predialysis team

Active management of anaemia with ESA and intravenous iron

BP control – slow rate of decline and lower stroke risk

Optimise fluid balance – avoid over and under hydration

Symptom control, including pain

Joint management with palliative care team at end of life phase

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