Chronic illness and childhood cancer Flashcards
concept of death 0-4 years
developing understanding of the permanence of death
most do not understand that they can die
concept of death 5-11 years
children learn through experience and exposure about the permanence of death
children learn about their own risk of death
children understand death as a personal event but do not understand the larger impact it may have on their family
concept of death 12 years or older
for children with typical cognitive development adults like models of death are generally present by 12 years
sickle cell disease
autosomal recessive disorder resulting in the production of an abnormal hemoglobin
crescent shaped cells
a child gets sickle cell disease when he or she receives
two sickle cell genes - one from each parents
overt stroke
localized neurologic deficit
occlusion of cerebral vessel
silent stroke
evidence of tissue damage on MRI
no robust neurologic deficit
mild cognitive impairment can build over time
in someone with SCD red blood cells die early and not enough are left to carry oxygen throughout the body causing
anemia
blood transfusions are used to treat
severe anemia
a person with SCD can live a long and high quality life
regular check ups
follow treatments
prevent infections
practice healthy habits
SDC can be cured for certain patients
bone marrow transplant
congenital heart disease
1/4 children with CHD have critical congenital heart disease which can cause death or requires intervention in the newborn period and includes
tetralogy of fallot
large ventricular septal defect which is a hole between the two ventricles or pumping chambers in the heart
pulmonary stenosis
narrowing beneath or in the blood vessel leading to the lungs
d-transposition of the great arteries
heart defect where the aorta and pulmonary artery are switched from their normal positions in the normal heart, the right ventricle pumps out to the pulmonary artery and the left ventricle pumps out to the aorta
coarctation of the aorta
a narrowing of the aorta, the large blood vessel that branches off your heart and delivers oxygen-rich blood to your blood
tricuspid atresia
heart defect present at birth in which a value between two of the heart chambers isnt formed
hypoplastic left heart syndrome
a birth defect that affects normal blood flow through the heart
CHD detection
prenatal fetal echocardiogram and in newborn period pulse oximetry identify most children with CHD
CHD treatment
fetal cardiac intervention
surgical procedures
chronic kidney disease
subtle decrease in function
greater than 3 months
acute kidney injury
decrease in function
less than 3 months
progression
kidney no longer able to balance electrolytes, filter waste from blood, and regulate blood pressure
stages 1 and 2
generally asymptomatic until renal function deteriorates
