Chapter 13: chronic illness Flashcards
Chronic Illness
- Persist for a long time
- Don’t resolve spontaneously
- Rarely cured completely
- ⅗ of adults over 20 live with chronic medical illness or disorder in Canada
- 4/5 are at risk of developing chronic illnesses
- Tend to see comorbid conditions (more than one condition)
Being diagnosed with a chronic illness can result in…
- Disruption and change (identity, location, role, social support, future goals)
- New demands
- Uncertainty
- Ongoing disease management
- After diagnosis you have to “reframe” your life
Initial reactions to chronic illness
- Shock
- Emotion-focused coping (can’t let it go on for too long, need to switch with problem-focused coping to deal with the diagnosis) Can include denial, Loss and grief
- Anxiety and depression
Crisis Theory
describes factors that influence how people adjust to learning they have a chronic health condition. (illness related factors, Background and personal factors, physical and social environmental factors) and these are influenced by three coping processes (cognitive appraisal, adaptive tasks, and coping skills) which lead to an outcome of crisis
Variables related to long term outcomes of diagnosis (crisis theory)
- Illness-related factors
- Background and personal factors
- Gender
- Self-blame (often leads to depression)
Background and personal factors (crisis theory)
- Age plays a role. Adolescents understand the disease and fear is related to social consequences. Young adults understand the disease, and fear is related effects on life direction. Middle aged adults fear is related to their predominant role in life. The Elderly’s main concerns centre around the fact that they may not be able to enjoy retirement.
- Gender also plays a role. Females have more concern with how illness affects physical image, and males have more concern with illness that affect physical strength.
- Self-blame
Adaptive tasks that are established following cognitive appraisal (crisis theory)
- Tasks related to the illness or treatment
- learning to cope with symptoms
- adjusting to hospital
- developing good relationships with health care providers - Tasks related to psychosocial functioning
- control negative feelings and retain positive outlook
What is Adaptation (outcome of crisis theory)
process of making changes in order to adjust constructively to life’s circumstances
What is Quality of life (outcome of crisis theory)
degree of excellence people appraise their lives to contain (tailored for the condition)
What is Asthma
a respiratory disorder involving episodes of impaired breathing when the airways become inflamed and obstructed (afflicts >2 million people in Canada)
- Psychological factors: stress, anxiety, suggestion
- Effective Coping Strategies: acceptance, reappraisal, distraction
Epilepsy
condition marked by recurrent sudden seizures that results from electrical disturbances of the cerebral cortex (afflicts ~200,000 people in Canada)
- Psychological factors: stigmatizing, emotional arousal, adjustment (more severe epilepsy is the poorer the adjustment).
- Effective coping strategies: support groups, counselling, optimism (tend to adapt better with being diagnosed), gaining control
Spinal Cord Injury (SCI)
neurological damage in the spine that results in the loss of motor control, sensation, and reflexes in the associated body areas (afflicts 86,000 people in Canada - with 4,300 new cases per year)
- Psychological Factors: Quality of life (people with SCI have severe pain, poor sleep, and can lose their independence), integration into social/career environments (accommodating to wheelchairs), emotional costs, sexuality (myth that SCI patients can’t have sex)
- Effective Coping Strategies: Family Support (go to problem-solving coping), Counselling and education
Alzheimer’s Disease
a brain disorder characterized by a deterioration of attention, memory, and personality (afflicts ~500,000 people in Canada - 900,000 by 2031)
- Psychological Factors: Easily frustrated and angry, as they can’t recall things as easily. Can lead to helplessness and depression over time.
Goal of psychosocial interventions
enable patients and families to self-manage condition
Self-management programs
provide information to train patients in behavioural and cognitive skills to enhance their ability to carry out their regimens, create and adapt to new behaviours or life roles and cope with emotions
- Being able to care for yourself (medically)