Care of Patient and Family Flashcards
US Hospice founded?
Connecticut Hospice Florence Wald (former Dean of Yale Nursing School) early 1970s
US Hospice modeled after?
work of Dame Cicely Saunders at the St. Christopher’s hospice in London, England
Hospice developed to
address specific needs of the dying and their families
Hospice: medicare/medicaid benefit began?
1980s
Palliative care model branched off?
from traditional hospice programs in late 1980s in academic teaching hospitals such as Cleveland Clinic and Medical College of Wisconsin
Palliative focus: goal
address problems facing hospice philosophy in addressing long-term, progressive disease paths as well as in allowing patients a choice of hterapies
Palliative focus: effort
made to improve the quality-or-life concerns for those patients whose death was not near yet, a distinct and complicated set of care issues
Palliative: medicare/medicaid
not regulated or funded by Medicare
Common fears of dying patient
pain fear of being a burden fear of loss of control and independence death bodily changes
Fears of dying patient:pain
lingering and uncontrolled suffering relieving discomfort provides improved quality of life
Fears of dying patient: being a burden
family face tasks of dealing with own fears as well as increased responsibility for the patient that can be taxing and unwelcome by either party
Fears of dying patient: loss of control and independence
patients need to maintain a sense of control in decision-making in all areas of their life and care sense of control helps alleviate feelings of guilt, frustration and helplessness
Fears of dying patient: dying alone
ill persons often feel they will be abandoned
Fears of dying patient: death
facing the unknown. leaving loved one or “unfinished business”
Fears of dying patient: bodily changes
loss of body parts and changes to physique can be unnerving and shift the patient’s sense of self
National Consensus Project: 5 goals
Identify definitions, philosophies and principles create clinical ractice guidelines enable clinical practices to grow and improve provide key elements of palliative care promote quality recognition, initiatives, and stability
National Consensus Project: promote
quality recognition initiatives for growth and certification stability for reimbursement and practice measures
National Consensus Project: key elements of palliative care
that may be used in practices where there is an absence of formal care programs
National Consensus Project: enable clinical practices to
grow and improve their resources and performances through structural organization and defined requirements
National Consensus Project: create clinical practice guidelines for
high quality care for both the patient and family
National Consensus Project: identify
definitions philosophies principles concerning palliative care that will be nationally recognized
Palliative care: recognizes and respects
each individual’s uniqueness across the lifespan and in diverse settings
Palliative care:center
patient centered and guided in order to improve the patient’s quality of life through supportive care
Palliative care: is both
scientific humanistic
Palliative care: doesn’t limit
patient’s treatment options and includes any therapy medically indicated and desired by patient includes life-prolonging care even when death is imminent
Palliative care: World Health definition
an approach that improves quality of life of patients and their families facing the problem associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psycho-social and spiritual
Palliative care: effective care
includes: multiple dimensions of care: holistic approach to pain and symptom control nursing interventions psycho-social and spiritual resources
Palliative care: goal
to provide an active, caring presence for patients and families
Hospice: care designed
to fit needs of terminally ill in the last 6 months of life
Hospice: philosophy
of improved quality of life for the terminally ill
Hospice: offers
symptom management physical care emotional care psycho-social care spiritual care bereavement care
Hospice: settings
inpatient various residential
Hospice: focus
to provide comfort and support to patients and families experiencing a life-limiting illness when cure-oriented treatments are no longer feasible
Hospice: caregivers offer
specialized knowledge of medical care and symptom management, with emphasis on pain and discomfort management
Hospice: not designed
to either prolong life or hasten the death
Hospice: goal
improve quality of patient’s last days through comfort and dignity
Maladaptive behaviors
denial guilt depression avoidance decathexis aggression
Maladaptive behaviors: denial
way for person to reject reality of the situation refusal of physical, psychological and emotional triggers of knowledge they do not want to believe of deal with
Maladaptive behaviors: guilt
unreasonable feeling of responsibility for negative influences of which the person may or may not have control
Maladaptive behaviors: depression
a mental state of hopelessness and despair severe loss of happiness and motivation
Maladaptive behaviors: avoidance
withdrawal; turning away from actions of consequences associated with negative stimulus
Maladaptive behaviors: decathexis
detachment from mood and feelings lack of variation in emotional responses despite changing circumstances
Maladaptive behaviors: aggression
hostile behavior, physical or verbal, meant to be demeaning, destructive, and increase negative emotions in those around them
Hospice inter-dimensional care process
assessment identified problems and needs set goals and interventions provide therapeutic care evaluate
Hospice inter-dimensional care process: assessment
in depth holistic assessment in order to collect both subjective and objective data from patient and family
Hospice inter-dimensional care process: identify
root cause for needs, problems and opportunities to improve patient’s quality of life backbone for all care provided
Hospice inter-dimensional care process: goals and interventions
collaborate with team members to set patient- and family-directed goals establish appropriate interventions understood and accepted by all team members
Hospice inter-dimensional care process: care
palliative therapeutic care, education, collaboratoin, and ongoing assessments that empower the patient and family and focus on their needs
Hospice inter-dimensional care process evaluate
all care and interventions for future planning, identifying productive areas for continuation and areas needing revision
Life completion and closure: landmarks
sense of completion satisfaction in life and work feelings of love and acceptance identify understanding of meaning of life willingness to move forward into unknown
Life completion and closure: sense of completion
in all affairs, including worldly, community, and interpersonal relationships with family and friends feel they have taken care of all unfinished business
Life completion and closure: satisfaction in life and work
after reflecting on their lives, patients can accept themselves and their accomplishments as fulfilling and worthwhile
Life completion and closure: feelings of love and acceptance
for self and others: pursuing worthiness, forgiveness, gratitude, closure and resolution of past hurts and wrongs to bring about peace and satisfaction
Life completion and closure: identify understanding of meaning of life
identify a general understanding of the meaning and finality of life
Life completion and closure: willingness to move forward into unknown
by accepting death and saying good-bye
Hospice: eligibility related to
patient’s prognosis
Hospice: prognosis
patient will reach end of life through course of natural disease process within 6 months of qualifying
Hospice: certification
from physician confirming this status is required and can limit access for some who may have benefited
Hospice: timely referral
education needed to reinforce to physicians timely referral of patients
Palliative care: eligibility
exceeds 6 months
Palliative care: designed to
meet needs of a variety of individuals with chronic illnesses such as Alzheimer’s disease
Palliative care: limits
not limited to comfort care of a specific time frame
Palliative care: treatement
any treatment to improve quality of life is respected by palliative care team
Palliative care: costs
aspects must also be considered no Medicare and Medicaid funding
Hospice: costs
is available for those who qualify for Medicare and Medicaid
Hospice core services: designed to
maintain general health and quality of life for paitent
Hospice core services required by law
physician and nursing services social work dietary services spiritual bereavemnt
Hospice core services: further services based on
may be added based on patient need and availability
Hospice core services: added benefits
physical therapy occupational therapy speech therapy massage infusion therapy home health aides medical supplies and equipment daycare homemaking services funeral services
Domains of Consensus Project
Structure and Practice of Care Physical Psychological and Psychiatric Social Spiritual, Religious and Existential Cultural Imminently Dying Patient Ethics and Law
Domains of Consensus Project: Structure and Practice of Care
Care is based on the interdisciplinary team’s commitment to comprehensive assessment and care of the patient and family, education and quality improvement, and support of each other as a team
Domains of Consensus Project: Physical
Best practices are employed to address the patient’s pain and other symptoms, and educate the patient and family and include them in the plan of care
Domains of Consensus Project: Psychological and Psychiatric
Psychological, psychiatric, grief, and bereavement issues are addressed and managed with high standards using pharmacological, nonpharmacological, support, and counseling treatments as needed
Domains of Consensus Project: Social
Comprehensive care plans will take into account family and social dynamics, interpersonal needs, finances, caregiver availability, and access to health care to promote well-being and ease patient and caregiver burdens
Domains of Consensus Project: Spiritual, Religious, and Existential
Assessing, recognizing, respecting, and supporting spiritual concerns and religious beliefs
Domains of Consensus Project: Cultural
Careful consideration is given to assessing, respecting, and accommodating for culture-specific needs Resources available reflect cultural diversity and the needs of community
Domains of Consensus Project: Imminently Dying Patient
Recognition of imminent death, making appropriate referrals, and educating the patient and family in an appropriate and sensitive manner
Domains of Consensus Project: Ethics and Law
Demonstrating knowledge of federal and state laws, statutes, and regulations while respecting and implementing patient and family goals and choices in plan of care
Diverse cultures: ways to show respect
assess own background obtain further knowledge show acceptance acknowledge differences be sensitive and open do not make assumptions
Diverse cultures: own assessment
background values beliefs to avoid biases
Diverse cultures: obtain further knowledge
in order to understand the background being addressed
Diverse cultures: show acceptance
of differences even when they may diverge from the nurse’s own comfort zone and culture
Diverse cultures: acknowledge differences
concerning end-of-life care
Diverse cultures: be open and sensitive
to individual patient’s beliefs rather than trying to predict behavior
Diverse cultures: do not make assumptions
regarding care, needs, or beliefs should not made based on race or ethnicity
Language differences: federally funded agencies
required to provide free interpretive services for clients speaking commonly encountered foreign languages
Language differences: patient must be informed
that an interpreter will be made available to them
Language differences: interpreter
trained in medical terminology fluent in both languages being used familiar with the ethics and HIPPA regulations
Language differences: family members
can’t be required to serve as interpreters unless client specifically requests a family member to act in this capacity
Language differences: emergency situations
use whatever means are readily available to assist in communicating with patient
Grief: definition
emotional response to a loss that begins at the time a loss is anticipated and continues on an individual timetable.
Grief: process
not an orderly and predictable
Grief: involves overcoming
anger disbelief guilt myriad of related emotions
Grief: individual
may move back and forth between stages or experience several emotions at any given time
Grief: response
unique to own coing patterns, stress levels, age, gender, belief system and previous experiences with loss
Spiritual care: assessment
patient’s basic beliefs assessed to provide holistic care at end of life
Spiritual care: provided according to
patient’s religion of choice caregiver must be unbiased regardless of his or her own beliefs
Spiritual care: if patient does not wish
should not be forced upon them
Spiritual care: advice and comfort
can be provided by anyone known to patient
Spiritual care: advice and comfort: intention
to relieve spiritual suffering and answer questions patient and family may have
Spiritual care: no formal religion
may have questions and search for meaning and comfort at end of life
Dying: task-based model
physical tasks psychological tasks social tasks spiritual tasks
Dying: task-based model: physical
bodily needs must be met and physical distress minimized in ways that are consistent with patient’s values and beliefs
Dying: task-based model: psychological
patient must feel a sense of dignity seek reassurance and satisfaction in lives, securtiy, and autonomy
Dying: task-based model: spiritual
identify, develop and reaffirm sources of spiritual energy and comfort in order to define the purpose to their existence and create hope
Cultural competence: behavior
goes beyond knowing general facts dynamic process of being aware and showing respect for cultural differences of all types
Cultural competence: begins with
being aware of one’s own beliefs not letting them interfere with care provided
Cultural competence: care plan
each patient and family have unique contributions to care plan
Cultural competence: provides
competent care that corresponds with patient and family’s own cultural background
Cultural competence: assessment
complete, unbiased, sensitive of background and beliefs obtains further knowledge as necessary coordinates and eecutes plan of care
Cultural competence: plan of care
meaningful to patient and family, regardless of care provider’s own beliefs
Normal grief: preoccupied with
self-limiting to loss itself
Normal grief: emotional responses
will vary and may include open expressions of anger
Normal grief:may experience difficulty
sleeping or vivid dreams lack of energy weight loss
Normal grief: crying
evident provides some relief of extreme emotion
Normal grief: individual remains
social responsive seeks reassurance from others
Depression: marked by
extensive periods of sadness preoccupation extending beyond 2 months
Depression: not limited to
a single event
Depression: absence of
pleasure or anger
Depression: isolation
from previous social support systems
Depression: individual experiences
extreme lethargy weight loss insomnia hypersomnia no recollection of dreaming
Depression: crying
is absent or persistent provides no relief of emotions
Depression: intervention
professional intervention is required to relieve