Capacity and Competence Flashcards

1
Q

For consent to be valid, it needs to be:

A
  • Informed
  • Voluntary
  • Capacitous
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2
Q

when can someone not give consent?

A

Not everyone will be able to make decisions about their care - they may lack
capacity to do so
This means they cannot give valid consent

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3
Q

what is autonomy?

A

self- legislation
the ability of an individual to choose how to live their life in accordance
with their own values and beliefs

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4
Q

why is autonomy important when it comes to capacity?

A

Capacity is a pre-requisite for autonomy - losing capacity means losing the ability
to decide in accordance with our own values
While capacity is prerequisite, that doesn’t mean it’s the only factor
Capacity is linked to the facility to reason according to our own beliefs and values.
To be truly autonomous, we must have a stable sense of self and our values -
autonomy is about a person’s whole identity

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5
Q

is having capacity enough to give full autonomy?

A

no
Material and social conditions often curtail people living as they would wish to do -
even when it comes to healthcare decisions
To have full autonomy, you must be able to freely make the choices that will
really affect your life

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6
Q

what is the role of society regarding autonomy?

A

The role of a society is to maximally endow its citizens with the ability to make autonomous decisions
This is a form of individualism

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7
Q

what could be a problem if everyone makes their own autonomous decision?

A

the problem is that the autonomous wishes of individuals often conflict
People may want things that are unfair, or detrimental to others
What we end up with is a battery of rights, which are constantly competing with those of others

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8
Q

what makes an autonomous decision?

A

Reason enabling autonomy
If the reason is absent / diminished, the decision is suspect - it is not truly
autonomous

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9
Q

what factor would diminish someones capacity?

A

Anything that interferes with an individual’s ability to make decisions generally will
diminish their capacity.

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10
Q

To have capacity, a patient must be able to :

A
  • Understand the presented information
  • Retain the information
  • Weigh up the decision
  • Communicate that decision
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11
Q

should you assume that someone doesn’t have capacity?

A

You should never assume that someone doesn’t have capacity.
Instead their capacity to make this particular decision should be assessed, with
the information presented in the most accessible way possible.
A patient may have capacity to make some decisions, and not others.
You should provide all possible help and support to enable them to make the
decision - eg. translators if needed, written information, time to consider, detailed
explanation

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12
Q

what does GMC guidance say about capacity?

A

You must start from the presumption that every adult patient has capacity
to make decisions about their treatment care.
You must not assume a patient lacks capacity to make a decision solely
because of their age, disability, appearance, behaviour, medical condition
(including mental illness), beliefs, their apparent inability to communicate,
or because they choose an option that you consider unwise.

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13
Q

does presuming someone of capacity have limits?

A

While we are told to presume capacity, this does not give medical professionals
freedom to ignore signs that a patient may not have capacity
If a patient’s decision-making seems erratic, or you know they have a condition
which could affect their ability to make decisions, an assessment of their capacity
to make this decision should be performed in the interests of protecting the
vulnerable
This is considered particularly important if the decision may be life-threatening

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14
Q

explain the Arskaya v Ukraine [2013] ECHR 1235 example case (fix this)

A

European Court of Human Rights
found a breach of the Article 2 ECHR (European Convention of Human Rights)
operational duty (right to life)
“despite S. showing symptoms of a mental disorder, the doctors took those
refusals at face value without putting in question S.’s capacity to take rational
decisions concerning his treatment. Notably, if S. had agreed to undergo the
treatment, the outcome might have been different.” (para 87).

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15
Q

what is the 2 stage test?

A
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16
Q

what are the 2 stages in the 2 stage test?

A

Stage 1. Is there an impairment of or disturbance in the functioning of a
person’s mind or brain? If so,

Stage 2. Is the impairment or disturbance sufficient that the person lacks the
capacity to make a particular decision?

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17
Q

describe stage 1 in the 2 stage test

A

Capacity is considered the dominion over decision-making
‘Disorders of mind or brain’ that can interfere with it include obvious things like
some mental health conditions, brain damage, strokes, learning difficulties
However they can also include factors from elsewhere in the body affecting brain
function - eg. pain, or overwhelming emotional states, in extreme situations

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18
Q

describe stage 2 in the 2 stage test

A

Is the impairment or disturbance sufficient that the person lacks the capacity
to make a particular decision?
- Understand the presented information
- Retain the information
- Weigh up the decision
- Communicate that decision

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19
Q

what do you need to consider when assessing a patients understanding of the information you give?

A
  • What information is salient (matters to them) to the decision?
  • How can it best be presented to be accessible?
  • Don’t assume prior knowledge (eg. that they know what life in a care home
    would be like)
  • Don’t set the bar too high:
  • They don’t need to understand everything - just the salient information
  • They need to understand well enough to make the decision
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20
Q

what do you need to consider when assessing whether a patient can retain the information?

A

needs to be able to retain enough information for a sufficient amount of time
in order to make a decision.
The MCA specifies at s.3(3) that ‘the fact that a person is able to retain the
information relevant to a decision for a short period only does not prevent him from
being regarded as able to make the decision.’

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21
Q

what do you need to consider when assessing whether or not a patient can weigh the information given?

A

‘the capacity actually to engage in the decision-making process itself and to be able to see the various parts of the argument and to relate the one to another.’ The PCT v P, AH & the Local Authority [2009]
It does not mean that, having related these arguments to each other, they reach a rational conclusion
Again, they only need to weigh salient information
It is easier to decide whether they are weighing the information appropriately if you
know more about their value system
they don’t have to come to a rational conclusion- as long as its their conclusion that they made autonomously

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22
Q

what do you need to consider when assessing a patients ability to communicate a decision?

A

Facilitate communication as far as you can:
- reproduce the manner by which they usually communicate
- provide all necessary tools and aids
- enlist the support of any relevant carers or friends

23
Q

give an example that shows that capacity is dynamic

A

eg. a high-functioning individual can be temporarily rendered without capacity -
say acutely after a stroke, but symptoms may subsequently improve such that
they could again take an active part in decision-making
Capacity is the ability to make this particular decision, at the material time (bc capacity can change/ fluctuate)

24
Q

do you have to agree with a patient for them to be considered having capacity?

A

Capacity is independent of whether you agree
Just because a person makes a decision that seems irrational to you, it does not
mean they do not have capacity to make it.

25
is someone with capacity allowed to demand treatment?
It does not allow the right to demand treatment that a doctor does not think is medically indicated, or in the patient’s best interests even if they have capacity, they are only allowed to choose between, or refuse offered treatments not demand Patient autonomy must be weighed against what is objectively best for them (beneficence) and the fair distribution of resources (justice)
26
what is the Mental Capacity Act (2005) and what are the 5 key principles?
Applies to all those involved in the care of those who are over 16 and lack the capacity to make some or all decisions for themselves Underpinned by five key principles : 1. Presumption of capacity 2. Support of individuals to make decisions 3. Unwise decisions 4. Best interests 5. Least restrictive option
27
what do you do if your patient doesn’t have capacity?
You are responsible for deciding what would be of overall benefit to your patient. In doing this you must: a. consult with those close to the patient and other members of the healthcare team, take account of their views about what the patient would want, and aim to reach agreement with them b. consider which option aligns most closely with the patient’s needs, preferences, values and priorities c. consider which option would be the least restrictive of the patient’s future options.
28
what's the first thing to consider if someone doesn't have capacity?
Can it wait? If the loss of capacity is temporary - eg. after neurosurgery, or a head injury - can the decision be postponed until the patient would have capacity again?
29
what's the second thing to consider if someone doesn't have capacity?
What would be best in general? Is there one course of action which offers clearly better odds of a good clinical outcome? Would there be any likely drawbacks with this treatment?
30
what's the third thing to consider if someone doesn't have capacity?
What would be best for this specific person? Are there any risks you know this patient wouldn’t be willing to take? Are there any outcomes that they would value above all others? eg. consider two unconscious patients with severe, rapidly spreading infection in one leg. One of them has previously stated to you that they would want to save their leg and can’t imagine living “as a cripple”. The other has previously told you that “the only thing they care about is making it through”.
31
what's the fourth thing to consider if someone doesn't have capacity?
Can you get any more information? Are there any relatives / carers, or other medical professionals, who might know more about what this patient would want than you? Has this patient left any instructions - for example, with a GP? have they left any written instructions e.g advanced statements
32
what is an advanced statement?
any information which the patient feels is relevant to their future care, should they lose capacity to make decisions
33
what is an advanced decision?
refers only to the advanced decision to refuse certain treatment in specified circumstances
34
Advanced decisions are legally binding, as long as they meet certain criteria:
- In writing - signed by the patient - signed by a witness They only cover the circumstances and treatments specified
35
what's the fifth thing to consider if someone doesn't have capacity?
Is there anyone else who has the right to decide? Lasting Power of Attorney : two types - health and welfare / property and financial affairs Legal document, conveying power to make certain decisions to a named person whenever the donor has lost capacity Next of kin does not have the right to make these decisions without a LPA. An LPA needs to be registered with the Office of the Public Guardian (OPG). Anyone can be appointed as an attorney, as long as they have mental capacity themselves
36
what's the sixth thing to consider if someone doesn't have capacity?
If there is a total lack of information Independent Mental Capacity Advocate : ● The person is aged 16 or over ● A decision needs to be made about either a long-term change in accommodation or serious medical treatment ● The person lacks capacity to make that decision, and ● There is no one independent of services, such as a family member or friend, who is “appropriate to consult”
37
what is the court of protection?
created in 2005 with the mental capacity act making decisions on whether someone has mental capacity - handling best interests’ disputes - ruling on questions about deprivation of liberty The Court of Protection can appoint Deputies to make decisions - longstanding lack of capacity - not previously established a LPA
38
what does the UK and USA say about competence and capacity?
In UK law, the term competence is used exclusively to denote whether or not a person under 16 years of age can make autonomous decisions about their health n the USA, the term competence can refer to a long-term judgement that a patient lacks capacity, taken by a court This term is not used in this way in the UK
39
what is competence? where did the term come from?
refers to the ability of a child or young person to consent to treatment. It is often used interchangeably with ‘capacity’ (eg. in GMC guidance). However while you can talk about capacity or competence for someone under 16 in the UK, the term competence is not used in a legal context with adults (as they fall under the MCA) The use of the term comes from a famous case, where the ruling established the basis for establishing competence in those under 16 years of age
40
explain the Gillick v West Norfolk & Wisbeck Area Health Authority [1986] case
Mrs Gillick was a mother with five daughters under the age of 16. She sought a declaration that it would be unlawful for a doctor to prescribe contraceptives to girls under 16 without the knowledge or consent of the parent. The declaration was refused.
41
what did the Gillick v West Norfolk & Wisbeck Area Health Authority [1986] case lead to?
Led to the standard of ‘Gillick competence’ to consent to treatment children under 16 can consent if they have sufficient maturity and intelligence to fully understand what is involved in a proposed treatment, including its purpose, nature, likely effects and risks, chances of success and the availability of other options. It is assumed that those over 16 have Gillick competence.
42
define maturity in context to competence
takes account of the child's experiences and the child's ability to manage influences on their decision making such as information, peer pressure, family pressure, fear and misgivings.
43
define intelligence in context to competence
akes account of the child's understanding, ability to weigh risk and benefit, consideration of longer term factors such as effect on family life and on such things as schooling.
44
what is the science behind maturation?
The area of the brain most associated with anticipating consequences and managing far-reaching decisions is the pre-frontal cortex This is one of the slowest brain areas to mature during puberty, the process continuing until ~ age 25y Adolescents have been shown in research to handle risk differently to adults, and to be particularly vulnerable to peer pressure
45
what guidelines did the Gillick v West Norfolk & Wisbeck Area Health Authority [1986] case lead to?
The case also led to the development of the Fraser guidelines by Lord Fraser. These refer specifically to whether or not someone under 16 can be prescribed contraceptives without parental knowledge. They are not related to broader competence.
46
what are the Fraser guidelines?
He/she has sufficient maturity and intelligence to understand the nature and implications of the proposed treatment ● He/she cannot be persuaded to tell her parents or to allow the doctor to tell them ● He/she is very likely to begin or continue having sexual intercourse with or without contraceptive treatment ● His/her physical or mental health is likely to suffer unless he/she received the advice or treatment ● The advice or treatment is in the young person’s best interests. Originally applied to contraception - now also apply to treatment of STIs and TOP (since 2006)
47
how do you determine validity of consent?
Just because they are competent to give consent, does not mean all consent will be valid It still needs to be informed, and voluntary Children may be particularly vulnerable to coercion
48
what do you do if a child isn't Gillick competent?
GMC : “If a child lacks the capacity to consent, you should ask for their parent’s consent. It is usually sufficient to have consent from one parent. If parents cannot agree and disputes cannot be resolved informally, you should seek legal advice about whether you should apply to the court.”
49
what factors need to be considered when parents make the decision for their child? (no need to memorise this)
Scope of Parental Responsibility (2015) 1. Is this a decision that a parent should reasonably be expected to make? ○ whether the child or young person lacks Gillick-competence/capacity? ○ what is considered normal practice in our society? ○ the type and invasiveness of the proposed intervention; ○ the age, maturity and understanding of the particular child/young person; ○ the extent to which the child/young person agrees/resists; ○ any relevant human rights’ decisions of the Court 2. Are there any factors that might undermine the validity of this particular person's parental consent? ○ parent cannot make decision – e.g. incapacitated themselves; ○ parent unable to focus on the best interests of the child/young person; ○ significant distress of parent – i.e. to the extent that they're overwhelmed; ○ disagreement between parents
50
how is competent refusal of treatment dealt with as opposed to competent consent?
Competent refusal of treatment that appears to be in their best interests is treated differently in law than competent consent GMC : “Parents cannot override the competent consent of a young person to treatment that you consider is in their best interests. But you can rely on parental consent when a child lacks the capacity to consent. In Scotland parents cannot authorise treatment a competent young person has refused. In England, Wales and Northern Ireland, the law on parents overriding young people’s competent refusal is complex.You should seek legal advice if you think treatment is in the best interests of a competent young person who refuses.”
51
explain the case of Re:W (1991)
young person aged 16 - deemed competent - refusing expansion of current treatment regimen for anorexia nervosa and transfer to a specialist unit. Legal argument: under the Family Law Reform Act (1969) : “(1) The consent of a minor who has attained the age of 16 years to any ... medical ... treatment which, in the absence of consent would constitute a trespass to his person, shall be as effective as if he were of full age; and where a minor has by virtue of this section given an effective consent to any treatment it shall not be necessary to obtain any consent for it from his parent or guardian.” and that since she had the right to have her consent honoured, the same should apply to her refusal. The judge disagreed, ruling that the court had power to override the wishes of a competent young person and consent to the treatment. The court had to balance between the expressed views and feelings of the child and the harm which the child was at risk of suffering. - irreversible damage to cognitive development and reproductive maturation which could occur if W was not treated
52
what is least restriction? has the UK ever upheld a competent refusal?
aims to enhance an older person's autonomy and respects their rights, individual worth, dignity and privacy No UK Court has ever upheld the competent refusal of a minor to lifesaving treatment. This leans on both the Human Rights Act (1998) (s2. right to life) and the Children’s Act 1989 (paramount duty to the welfare of the child) The premise is to allow the child to reach adulthood, keeping the most options open
53
can parents overrule the refusal to consent?
yes Parents do not lose the ability to consent on their child’s behalf once the child gains Gillick competence. Therefore, they could provide the consent that the child will not However, this is acknowledged as a “dwindling right which the courts will hesitate to enforce against the wishes of the child”. Hewer v Bryant [1970] There has been increasing focus on the autonomy of the child since the passing of the Human Rights Act 1998. In practice, it is advisable to seek a ruling from the Court of Protection in this situation