Adults with Developmental Disabilities

Question 1

Lifelong developmental disabilities stats

Answer 1

200-500k over 60 c LDD (12% of pop) projected to double

3/4 spina bifida survive to adulthood

mean survival for cystic fibrosis is 36.5 yrs now.

1.5 million TBI/year

750k strokes/year.

18% of children have chronic medical condition

Question 2

Aspects of Aging with LDD

Answer 2

Increased lifespan than before, but still lower than general population.

2* issues common: 50% have cataracts, hypothyroid, skin problems

Severe MR die from respiratory disease

Vision declines at 40

Senses age faster

Early onset of ALzheimer’s (4th decade of life)

Question 3

Low BMD

Answer 3

Downs associated with low BMD

MR has 2 SD lower than normal

Question 4

Social aspects of LDD

Answer 4

Public support can end abruptly at 21 with discontinuity of services.

IDEIA supports a transition at this stage, but implementation isnt perfect.

Question 5

Puberty changes with LDD

Answer 5

Increase in size/wt.

Increased stress=increased tone

Bone and muscle growth not synchronous.

Caregivers may not be able to handle pts new size

Question 6

Women’s Health with LDD

Answer 6

higher risk of breast CA
Menopause can affect seizures
Osteoporosis
Risk for Sexual abuse
Contraception challenging
May be viewed as asexual.

Question 7

ISP

Answer 7

Individual support plan

Written by COS (circle of support) under direction of ISC (individual support coordinator)

Legally binding like an IEP

coordinates all services.