Week 6 (Ch. 6) Flashcards
6 steps to developing family-centered clinical practice
- First encounter with family
- Gathering client and family data
- Involving family in the assessment process
- Reporting assessment information to the family
- Planning intervention program with the family
- Throughout all contacts
Individual Family Service Plan (IFSP) developed as a result of ____________.
legislation
What 2 pieces of legislation resulted in the establishment of IFSP’s?
- PL 99-457 Education of the Handicapped Amendments
2. Individuals with Disabilities Education Act (2004)
Leglislation requires and IFSP for children in what age range?
birth-3
IFSP must include skills to maximize ___________ and optimize __________.
- the development of the child
2. optimize the family’s capacity to address the child’s special needs
8 Requirements of the IFSP
- Info about the child’s present level of physical, cognitive, social, emotional, communicative, and adaptive developments
- Statement of the family’s resources, priorities, and concerns
- Statement of the major outcomes expected to be achieved by the child and the family
- Statement of the specific early intervention services necessary to meet the needs of the child and the family
- A list of services and funding sources
- Projected dates for initiation of the services as soon as possible after the IFSP meeting and expected duration of those services
- The name and discipline of the service coordinator who will be responsible for implementation of the IFSP.
- A plan for transition to preschool services
4 risk factors for communication disorders
- prenatal factors
- Prematurity and low birth weight
- Genetic and congenital disorders
- Other risks identified after the newborn period
3 prenatal factors
- Maternal consumption of alcohol and other drugs
- Exposure to environmental toxins (Lead, mercury, heavy metals)
- In-utero infections (rubella, cytomegalovirus, toxoplasmosis)
Define: prematurity
Birth prior to 37 weeks’ gestation with low birth weight
Low vs. very low birth weight
Low = < 2500 grams or 5.5 pounds
Very low = < 1500 grams or 3.3 pounds
Prematurity and low birth weight can constitute both _______ and _______ risks.
medical and developmental
Premature infants are susceptible to a range of illnesses and conditions that produce ________.
developmental disabilities
Treatment of the premature child may also have ______.
negative consequences.
3 impacts of being in NICU
- Ototoxic drugs and the loudness in the NICU can cause hearing loss- over-stimulating environment
- Painful medical procedures- intubation can result in damage to larynx which can later impact swallowing; food aversion; trauma to tissue.
- Parents can’t spend as much time with infant in NICU- bond weakened. Baby is frail and fragile so parents may be afraid, bond is not as strong so they hold and play with baby less.
Priority in the NICU is _______, your role as the SLP is to _______.
survival; consult with parents/nurses to make sure child is getting other necessary precursors for language development.
Survival rates have (increased, decreased in the last 30 years. Explain.
increased
1960- 50% survival rate
2002- 55% for 501-750 gm, 88% for 751-1000 gm, 94% for 1001-1250 gm, 96% for 1251-1500 gm
3 empirical facts that prove that early intervention works
- Low-birth weight babies who receive intervention show benefits over untreated infants in IQ
- Preterm infants treated after discharge did better than untreated peers through preschool age, although long-term data suggests those with birth weights above 2,000 gm did the best
- Intervention had the most benefits on infants whose mothers had less than a high-school education
Explain gestational age
Used throughout the first years of life- how long the baby was in gestation (LMP date to date of birth)
Role of SLP for families with high-risk infants in NICU
- Provide family with resources/educate them
- Give them long-term info- what are the steps and what do you watch for?
- Work with the interdisciplinary team
Approximately ____% of infants begin life in the NICU
12%
High-risk infants in NICU typically have complex medical issues and very often _______ are secondary to _______.
therapy goals; keeping infant physiologically stable
SLP’s 2 responsibilities for high-risk infants in NICU
- Assist families
2. Consult on the management plan
4 basic areas to consider for high-risk infants with NICU
- Feeding and oral motor development
- Hearing conservation and aural habilitation
- Infant behavior and development
- Parent-child communication
7 considerations for readiness for oral feeding
- Gestational age (at least 35-37 weeks)
- Severity of medical condition (delays due to respiratory disorders)
- Respiratory/cardiovascular stability (oxygen support, apnea, periodic breathing cause delays)
- Motoric stability (oral tone, posture, movement quality)
- Coordination of sucking, swallowing, and breathing (10 or more sucking bursts with breathing interspersed with suck/swallow)
- Behavioral state organization (maintain alert state)
- Demonstration of hunger (rooting, non-nutritive sucking, crying may be weak)
_______ states mandate newborn hearing screenings in NICU
44 (many)
NICU itself may be _____ to baby’s hearing
detrimental
Risk of hearing loss is in addition to _________.
the high incidence of hearing loss associated with many of the syndromes/conditions baby has.
SLP’s play a crucial role in conserving the hearing of high-risk newborns by __________.
making sure aural habilitation is part of their plan if screening indicates loss
Encourage parents to ____________.
have child’s hearing periodically tested by an audiologist
Consideration about hearing screening follow-up
Follow-up not 100% because up to parent to make the appointment with the audiologist
Goal of child behavior development assessment should be? Should NOT be?
to determine the infant’s current strengths and needs, NOT to predict future behavior
2 considerations in child behavior development assessment
- Want to know as much as possible about what risks the infant faces
- Need to evaluate the infant’s level of physiological organization
Why do you want to know as much as possible about what risks the infant faces?
Helps us decide how much and what kind of intervention to propose
2 reasons that we need to evaluate the infant’s level of physiological organization
- Premature infants experience experience irregular respiration, bodily instability, disorganized patterns of alertness
- Infant’s level of homeostasis will determine the ability to participate in interactions
Goal of child behavior and development management. Goal is NOT:
Best way to do this:
Goal is to achieve stabilization and homeostasis of physiological and behavioral states and to prevent or minimize any secondary disorders that might be associated with the child’s condition
Goal is NOT to attain milestones appropriate for full-term babies
Best way to do this is to become a member of the NICU team
2 functions of parent-child communication assessment
- assessing infant readiness for communication
2. Assessing parent communication and family functioning
Assessing infant readiness for communication: 2 important considerations
- Help to identify the level of interactive, motor, and organizational development that the infant in the NICU is showing
- Crucial for deciding whether the infant is ready to take advantage of communication interaction
Assessing parent communication and family functioning: 2 important considerations
- Use instruments to assess parent-child communication
- Parent Behavior Progression (1981) provides guidelines for observing parent’s behavior with the infant to assess what the parent needs in order to improve or maximize interactions
Parent-child interaction management for babies who can interact with their parents: 2 important considerations
- Kangaroo care techniques involves skin-to-skin contact between parent and child during NICU stay
- Method has been shown to be associated with decreased length of hospital stay, shorter periods of assisted ventilation, increased periods of alertness, and enhanced sense of nurturance of the child by the parent
Parent-child interaction management for babies who CANNOT interact with their parents: 2 important considerations
- Help parents to observe their baby’s state and identify states of the baby is exhibiting
- This will be useful when it comes time to begin communicative interactions with the baby
6 infant states
- Deep sleep
- Light sleep
- Drowsy
- Quiet alert
- Active alert
- Crying
Define: deep-sleep
body still, eyes closed, breathing smooth
Define: light sleep
some body movement, eyes flutter, may smile
Define: drowsy
variable activity, eyes open and close, breathing irregular
Define: quiet alert
light bodily movement, attends to environmental stimuli
Define: active alert
much bodily movement, facial movement, eyes open and bright
Define: crying
facial grimaces, eyes may be tightly closed or open, breathing irregular
Pre-intentional infants include what age group
1-8 months