Week 4: Ethics in Qualitative Research Flashcards
Nuremberg code
- 1948
- informed consent
- research good for society
- benefits of the research outweigh the risk
- participant safety is more important than research
tuskegee study
- 1932-1972
- syphilis in black male population
- involved blood tests, x rays, spinal taps, and autopsies
- broke ethical research rights of respect for autonomy, nonmaleficence, and justice
declaration of Helsinki
1964
- Research with humans should be based on the results from laboratory and animal experimentation
- Research protocols should be reviewed by an independent committee prior to initiation
Informed consent from research participants is necessary
- Research should be conducted by medically / scientifically qualified individuals
- Risks should not exceed benefits
declaration of Helsinki led to
Belmont report
belmont report
1976
- Investigators must respect the autonomy of research participants.
Beneficence (doing good) should underlie the conduct of all human research.
Injustice to humans in research is also an ethical transgression.
main aims of ethical research are to prevent
abuse of participants
violation of scientific integrity
when was the ethics board introduced
1978
MRC Canada & SSHRC issue guidelines based on Belmont Report
common risks and ethical issues in qualitative research
Recruitment: undue inducement and coercion
Data collection: Informed consent, emotional/physical risks, confidentiality, storage of data
Dissemination: identifiable information
what documents are needed
protocol
invitation letter
participant information leaflet
consent form
tri-council ethics certificate
establishing an advisory group
check research ideas against need of that population
recruitment process
recruitment strategies use lay research collaborators to check participant facing documents for clarity of language
analysis/interpretation
credibility of findings
dissemination
how to reach public and communities;language and presentation
