Week 1/Chronic Illness & Medical Home Model

Question 1

what percentage of medical costs are r/t chronic illness?

Answer 1

83%

Question 2

greatest prevalence of children & youth with special healthcare needs is at what age?

Answer 2

12-17 (18.4%)
6-11 (17.7%)
0-5 (9.3%)

Question 3

2 main characteristics of peds chronic illness?

Answer 3

1: Duration
2: Likelihood of permanence

Question 4

key to medical home?

Answer 4

partnership

…coordination of care!

Question 5

5 stages of pediatric involvement with families:

Answer 5

1) Minimal focus on family
2) Initial focus on family
- -communication to facilitate healthcare
3) Feelings & Support
- -problem solving
4) Systematic assessment & intervention
- -some training
5) Family therapy
- -guide & partner w/families w/ongoing, chronic problems

Question 6

most commonly unmet need for preventive services?

Answer 6

preventive dental care

Question 7

SSI

Answer 7

Supplemental Security Income (social security)
–a federal program, financial assistance to children w/disabilities
(As opposed to Medicaid, which is state-run–also may not offer insurance as good as Medicaid’s)
–Disabilities determination team evaluates
–must last at least 12 months or result in child’s death

Question 8

IDEA: 2 parts

Answer 8

Individual with Disabilities Education Act

1) Part C: children under 3
- -Early Intervention
- -review q 6 months
- -PARENT is primary decision-maker
2) Children over 3
- -SCHOOL is primary decision-maker
- -IEP
- -annual review

Question 9

Section 504 of Rehabilitation Act 1973

Answer 9

• -prohibits denial of public education in the least restrictive environment of a disabled child
• -children w/conditions not listed under IDEA can get protection/assistance under 504

Question 10

IDEA vs Section 504 of Rehabilitation Act of 1973

Answer 10

IDEA = Entitlement Act

Section 504 = Civil Rights Act

Question 11

Americans with Disabilities Act of 1990 (ADA)

Answer 11

• -prohibits discrimination, includes private programs
• -reasonable modifications, aids & services for children w/disabilities affecting speech, hearing, or vision
• -impt for youth who need to transition into a job

Question 12

Katie Becket Act

Answer 12

=Tax Equity & Fiscal Responsibility Act of 1982

• -support and monetary asst to parents
• -provides RESPITE
• -Office of Developmental Disabilities

Question 13

Title V Block Grant

Answer 13

MCBH (Maternal & Child Health Bureau)

–$ filters into practices to care for children w/special healthcare needs

Question 14

mental health screening

Answer 14

• -screeners do not make the dx!

- -Global or broadband screeners vs Narrow band (single screeners)

Question 15

PHQ-9

Answer 15

depression screen for adolescents

Question 16

SCARED

Answer 16

screen for child anxiety related disorders

Question 17

Life Course Model

Answer 17

organizing framework for transitioning

1) Timeline
2) Timing
3) Environment
4) Equity
* * emphasis on multiple determinants of health
- -whole-person, whole-family, whole-community systems approach

Question 18

critical transition periods

Answer 18

ages 3-5
mid-late elementary school yrs
transition to high school
transition to adulthood

Question 19

when to start transition to adult care?

Answer 19

by age 12-14