Structure & Management Flashcards
Themainpurposeofacancerregistryisto:
provideinformationtopreventandcontrolcancerandimprovecare
Requiresthatacancerregistrybeamandatorycomponentoftheiraccreditedprogram
Commission on Cancer (CoC)
Collectsdatafromselectedstatesandgeographicalareas
SEER - surveillance, epidemiology, and end results program
Chargedwithestablishingcentralcancerregistriesinstateswheretheydidnotpreviouslyexist
NPCR - National Program of Cancer Registries
Membershiporganizationrepresentingcancerregistryprofessionals
NCRA - National Cancer Registrars Association
OverseestheUniformDataStandardsCommitteethatpromotesstandardizeddatatransmission
NAACCR - North American Association of Central Cancer Registries
TheNCISEERProgramreceivespopulation-basedcancerdatafrom:
selectedgeographicalareas
*TheNCISEERProgramisanationalpopulation-basedcancerregistrythatmonitorsarepresentativesamplingofcertaingeographic
areasorabout26%oftheUSpopulation.SomeentirestatesreportcancerdatatoSEER,whilesomestatesonlyhavecertain
metropolitanareas,suchasDetroitandAtlantathatreportdatatoSEER.
Participation in a specialty cancer registry is:
Voluntary.
Participationinaspecialtycancerregistyrisvoluntary.WhileCoCaccreditedcancerprogramsmustreporttheirdatatotheNCDB,
decidingtobeaCoCaccreditedcancerprogramisvoluntary.Therefore,datathatisreceivedbytheNCDBcomesfromthese
programsthathavevoluntarilysoughtCoCaccreditation.
TheAmericanCancerSocietyestimatesthatoneofevery_____deathsinAmericaisfromcancer.
Four
4
Hospitalcancerregistrarsobtaininformationaboutacaseforthecancerregistryabstractfrom:
thehospital’smedicalrecord
thefreestandingradiationcenteracrosstown
staffandnon-staffphysicianoffices
*Registrarsbridgetheinformationgapandcollectalloftheinformationfrommultiplesourcestocapturecompletecancerinformation
onalloftheirpatients
Eachstandardsettingorganizationrepresentsvaryingregistryinterests.TheCoCrepresents:
Hospital Registries
*TheAmericanCollegeofSurgeonsCommissiononCancerisconcernedwithhospitalbasedregistries.Hospitalregistriessendtheir
datatotheCoC’sNationalCancerDataBase.
Whichorganizationactsastheclearinghouseforchangestodatastandardsandstandardizestherequirementsforallstandard
settingorganizations?
NAACCR
*ProposedchangestodatastandardsaresenttotheNAACCRUniformDataStandardsCommittee.Thiscommitteeiscomposedof membersfromallofthestandardsettingorganizations.
ThePolicyandProcedureManual:
promotesconsistency
servesasatrainingtool
containsthereportablelist
Somevariablesthatmayeffectregistrystaffinginclude:
ACoS/CoCaccreditationstatus
completenessofthemedicalrecords
amountofdatatobecollected
TheAmericanCancerSocietyestimatesthatabout_____________________newcasesofcancerwillbediagnosedin2014.
1.66million
A Time-andMotionStudycanhelpdetermine:
staffingneedsandproductivityrequirements
Themaincomponentsofaregistrybudgetare:
Capitalexpenses
Salariesandbenefits
Supplies
Fixedcosts
Cancerregistrarswhoarecertifiedarerequiredtoacquire_______continuingeducation(CE)hoursevery_____year(s).
20, 2
TheNationalCancerActof1971,oftenreferredtoasthe”WaronCancer,”establishedthe:
NationalCancerInstitute’sSurveillance,EpidemiologyandEndResultsProgram
NCI SEER
Themonitoringcomponentforthehealthfacility’scancerprogramisthe:
cancerregistry
Thecancerregistrars’certificationcredentialiscalledthe:
CertifiedTumorRegistrar
CTR
Does a Central Cancer Registry use datatosupporttherequirementsoftheCommissiononCancer?
NO.
*HospitalregistriesusetheircancerregistrydatatosupporttherequirementsoftheCommissiononCancer.
Thefirststepindeterminingstaffing,officespaceandequipmentneedsisto:
Establish the caseload.
Nationalreportingrulesandrequirementsensurethatthedatacollected,regardlessofwhereitiscollected,is:
Standardized
*Thestandardsettingagenciesprovidesreportingrequirementstocancerregistries.Theserequirementsensure
thatwhatonecancerregistrarinonefacilitycollectsiscollectedthesamewayasanothercancerregistrarinanotherfacility-
whetheritbeinthesamecity,stateorontheothersideofthecountry.Thisiscriticalinbeingabletocombinedata
intolargerdatabasesandtobeabletocomparedatacollectedfrommanysources.Itiswhatmakesthedatameaningfultotheusers
ofthedata.
UndertheHIPAArules,canonehospitalcancerregistryprovidefollow-upandtreatmentinformationtoadifferenthospitalcancer
registry?
Yes,aslongasbothhospitalshavehadarelationshipwiththepatient
UndertheHIPAArules,canthe
hospitalregistryreportcasesof
cancertothecentralcancer
registry?
Yes,abusinessagreementof
patientauthorizationisnot
required.
Individuallyidentifiable
informationincludesallofthe
following:
Theabilitytodeductthepatient’sidentity
patient’saddress
patient’streatment
*Individuallyidentifiablehealthinformation
referstoinformationrelatedtothepatient.
Thecancerregistryshoulddo whichstepswhenevaluating
confidentiality& security
procedures:
AIdentifytherisksofdisclosureofconfidentialinformation
BCreateandimplementaplantoreducetheriskofreleasingconfidentialinformation
CTrainalldepartmentstaffontheprivacyandsecurityofconfidentialinformation
DMonitortheimplementationandcorrectanybreachesofpolicyandprocedure
All of the above
Why does TheHIPAAPrivacyRulerequiresaBusinessAgreementfor business:
BetweenahospitalandtheAmericanCollegeofSurgeons
Betweenahospitalandregistrarsunder
contractfromavendor
abusiness agreementisnecessaryforACoS/CoCAccreditedCancerProgramstoprovideinformationforaccreditation
purposes.
ThePrivacy
Rulerequiresbusinessagreementswith
entitiesthatcarryouthealthcarefunctionsonbehalfofcoveredentities(vendorsfor
contractservices)whilestateandregional
cancerregistriesareactingonbehalfofthe
state,notthecoveredentity.
T or F
Everyonewhoworksin
department,includingunpaid
volunteers,contractemployees,and
casuallaborers,mustbetrainedonHIPAA
True
T or F
TheHIPAAPrivacyRule allowssharinginformation
betweenfacilitiesifbothhadarelationship
withthepatient;statelawallows
forstate
registrystafftoauditcancerinformationby
viewingpatientrecords.
True
Registrarshaveaprofessional
codeofethicspublishedbywhich organization?
NCRA
National Cancer Registrars Association
Whenwerecoveredentities,otherthansmallhealthplans,required
tofullycomplywiththeHIPAA
rules?
4/14/2003
Confidentialitypoliciesandproceduresshouldprotecttheprivacyof:
Patients
Physicians
Healthcarefacilities
TheHIPAAPrivacyRulegivesan
individualarighttoanaccountingofdisclosuresoftheirhealth
information
except:
Disclosuresnecessarytocarryouttreatment
Disclosuresnecessarytofilefor
billingreimbursement
Thecancerregistry’s
confidentialitypoliciesand
proceduresforthereleaseof
cancerregistrydatashould…
- Beapprovedbytheinstitutionandthecancer
committee.
-Clearlydefinecircumstancesunderwhichthe
registrycanreleaseinformation.
-Includeemployeeconfidentialitypledges.
-Alloftheabove
All of the Above
AreturnaddressusingthewordsCancerRegistry,orothersimilartermsshouldnotbeusedonenvelopescontainingmaterialsor
requestsforinformationthataresenttopatientsprimarilybecause:
It violates the patients privacy
T or F
Hospitalcancerregistry
employeeswithcomputeraccesstothe
facility’selectronicmedicalrecordareallowed
tolookupinformation ontheirown
noncancerrelatedhospitaladmissionswithouthavingtogothroughtheformalreleaseof
informationprocess.
False
*Cancerregistrarshavealotof
informationattheirfingertips,evenmoresoif
thefacilityhasanelectronicmedicalrecord.
Thecancer registryshouldonlybeaccessinginformation
thatisnecessarytocompleteassignedjob
duties.
Administrativelawsorrulesdefinewhichofthefollowingfor
reportingcancerinformationto
Statecancerregistries?
- Whoisrequiredbylawtoreportcancercases
-Howtoreportcancercases - Whichcasesmustbereported
- Penaltiesfornoncompliance
-Alloftheabove
Why?
All of the Above
Because:
Statutorylawisthelegislationthatrequires
statecancerreportingwhiletheadministrativelawshouldclearlydelineatewho,what,
whenandhowofcancerreporting.The
administrativelawprovidestheinformationto
complywiththestatuteforreporting.
Acommunitygroupwantsto
investigateaveryraretypeof
cancer.Thecancerregistry
providesareportwiththesurvivalrates
groupedbythetypeofsurgeryandtheprimarysurgeon.Isthisviolatingconfidentiality?
Why?
Yes
Confidentialityproceduresshouldalsoprotecthealthcareproviders
inadditiontothepatient.
Whenthedataiscombined,whichtwo agenciesareabletoprovidedatacovering100%oftheU.S.population?
NPCR and SEER
Approximately96%ofallcasesofcancerdiagnosedeachyeararereportedto
NPCR.Thisisduetothefactthatthefocusis
coveringthepopulation.SEERandNPCRwork
incooperationwitheachother.Whenthe
NPCRdataiscombinedwiththeSEER
data,100%ofpopulationisincluded.
National Program of Cancer Registries
Surv, Epidemiology, and End Results
Theprocessofconvertingthe
medicalrecordinformationinto
standardizedcodeswithina
uniformdatasetiscalled:
Abstracting
ThegeographicareasselectedforinclusionintheSEERProgram
wasbasedontheir:
Epidemiologically
significantpopulationsubgroups.Thesegeographicareaswere
selectedforinclusionintheSEERProgram
basedontheirabilitytooperate
andmaintainahighqualitypopulation-basedcancerreportingsystem. ThepopulationcoveredbySEERiscomparabletothegeneralUSpopulationwith
regardtomeasuresofpovertyandeducation.TheSEERpopulationtendstobesomewhatmoreurbanandhasahigherproportion
offoreignbornpersonsthanthegeneralUS
population.
Thecentralcancerregistrystrivesfortheprimarysourceofcancer
casestobefrom:
Reportingofcasesbythefacility
thatdiagnosedand/ortreatthepatient.
Othermethodsidentifymissing
casesandhelptoimprovecasefinding
processessothattheidentificationofcasesistakingplacewhereitshouldbe-atthefacility
thatdiagnosedortreatedthepatient.
TheprimaryfoundationofdatacollectionforcancerregistrationintheUSis?
ACS - American Cancer Society
**Theprimaryfoundationforcancerdataishospitalregistry.
Mostcentralcancerregistries
requirethat_____________be
abstractedandreported.
Both analytic and non-analytic cases
*Rememberthatthecentralregistryistryingtoidentifyallcasesofcancerwithinadefined
population.Whileitisimportant,forcase
ascertainmentpurposesthereislessfocusonwhythepatientwasseenatthereporting
facilityandmoreonensuringthatallpatients
withadiagnosisofcancerareincluded.
Whichcancerregistriescan
calculateincidenceandmortality
rates?
Statepopulation-basedcancerregistry
*Ratesarecalculatedusingthenumberof
newcancercasesdividedbythepopulationatrisk.Thestateregistryhasalloftheknown
cancercaseswithinthestate’sboundaries.
***Onlypopulation-basedregistriescancalculaterates.
Comparingtheoriginalsource documenttothecodeddata submittedtothecentralcancer registrytoidentifyerrorsisa quality controlactivitycalled:
Re-abstracting Audit
DescribetheNationalCancerDataBase?
It is a Multi-hospital central cancer registry.
Inapopulation-basedcentralcancerregistry,
whatoccursinthepatientmergeprocess?
Alistofpatientsthatsharesomeofthesamepatientidentifiersisgenerated
Alistofpossiblepatientmatchesisgenerated
What are the reporting requirementsforthestatecentralcancerregistry?
Statereportingrequirementsare
definedbylegislationandshould
includewhichcasestoreport(thereportablelist),startingwith
January1ofagivenyear(thereferencedate)
andanyambiguousterminologythat
constitutesadiagnosisofcancer.Ofcourse,
otherissuesareaddressedaswell.
Caseconsolidationisamajorresponsibilityof:
Central Registries
Thecommitteeresponsiblefor
providingaformalmechanismforreviewingandrecommending
proposedchangesindatacodes
and/ortheadditionofnewitemstoensurethatdataremaincomparableamongcentralregistriesisthe:
Uniform Data Standards Committee
Thetwomainfundingsourcesin
theUnitedStatesforpopulation-basedcancerregistriesare:
NCIandCDC
*TheNCIfundstheSEERCancerRegistriesandtheCDCfundstheNPCR
CancerRegistries.TheNCDBisnota
population-based
centralcancerregistryandisfundedbythe
ACoSandtheAmericanCancerSociety.
Inadditiontoreceivingcasesof
cancerfromhospitalregistries
andphysicianoffices,thecentralcancerregistryalsoidentifies
eligiblecasesthrough
Exchangingdatawithotherstate
centralcancerregistries
Matchingdeathcertificateswiththecentral
cancerregistrydatabase
Matchingpathologyandcytologyreportswith
reportsfrompathologylaboratories
Inapopulation-basedcentralcancerregistry,
whatoccurs inthecancercasereconciliation
process?
Multiplecancerrecordsforthe
samepatientthathavebeen
reportedbyseveralfacilitiesare
reviewed.Thesearemerged(or
reconciled)intoonecancerrecordwiththebestinformationfromallfacilities.
Statecentralcancerregistries requirethepatient'sstreet address,countyandzipcode primarilyforwhichofthe following?
Thepatient’saddress(street,
county,zip)isusedtogeocode
recordstoinferageographic
locationthatisusedtoaidinthe
investigationofsuspectedcancerclusters.
TheJanuary1referencedatefor
thestartdateofdatacollectionbytheregistryisusedby:
Both Hospital and Central Registries