RA 9288: Newborn Screening Act of 2004 Flashcards
A simple procedure to find out if a baby has a congenital disorder that may lead to mental retardation or even death if left untreated.
Newborn Screening
What is RA 9288?
Newborn Screening Act of 2004
How many sections does RA 9288 have?
19
By doing NBS, _ disorders may be detected even before clinical signs and symptoms are present
metabolic
Effect if not screened, what disorder:
- Developmental delay
- breathing problems
- neurologic damage
- seizures
- coma
- early death
Organic Acid Disorders
Effect if NOT SCREENED:
Urea Cycle Defect
- seizure
- mental retardation
- death
The _ _ _ _ was integrated as part of the country’s
public health delivery system with the enactment of
the Republic Act no. 9288
Comprehensive Newborn Screening Program
What acts as the lead agency in the implementation of RA 9288?
Department of Health
The DOH collaborates with other _ (NGA) and key stakeholders to ensure early detection
National Government Agencies
Newborn screening program in the Philippines currently includes screening of how many disorders?
6
Name the 6 disorders that NBS screens:
- congenital hypothyroidism (CH)
- congenital adrenal hyperplasia (CAH)
- phenylketonuria (PKU)
- glucose-6-phosphate dehydrogenase (G6PD)
deficiency - galactosemia (GAL)
- maple syrup urine disease (MSUD)
The expanded screening will include how many more disorders?
22
National Policy and Strategic Framework on Expanded Newborn Screening for 2017-2030
Administrative Order No. 2018-0025
the Guidelines on the Implementation of the Expanded Newborn Screening Program
Administrative Order No. 2014-0045
How many accredited Newborn Screening Centers (NSC) are in the country as defined by RA 9288?
6 operational NSCs
When is NBS done?
Ideally done immediately after 24 hours from birth
Who are allowed to collect the samples from newborns?
- physician
- nurse
- medical technologist
- trained midwife
T/F:
Nurses are not allowed to collect samples for NBS
False
When was RA 9288 approved?
April 7, 2004
NBS shall be performed after _ hours of life but not later than _ days from complete delivery of the newborn
24 hours; 3 days
Who are exempted from the 3 day requirement for NBS?
newborns in intensive care
Newborns in intensive care must be tested by _ days of age
7
What section of RA 9288 is about refusal to NBS?
Section 7
A parent or legal guardian may refuse testing on the grounds of _
religious beliefs
T/F:
Refusal of parents to NBS may be purely verbal
False
it shall be acknowledged in writing
Section 9:
The DOH and the _ shall require health institutions to provide newborn screening services as a condition
for licensure or accreditation.
Philippine Health Insurance Corporation (PhilHealth)
What section states the lead agency for RA 9288 implementation?
Section 10
Within how many days after the enactment was RA 9288 implemented?
180 days
Where is the Newborn Screening Center - NIH located?
University of the Philippines Manila
What is the committee for NBS according to Section 11?
Advisory Committee on Newborn Screening
How many members are in the committee?
8
T/F:
The chairman of the committee is the Executive Director of the NIH
False.
The chairman is the Secretary of Health
How many times a year does the committee meet?
At least twice a year
What serves as the Secretariat of the Committee?
National Institute of Health (NIH)
Who is the chairman of the committee?
Secretary of Health
Who is the vice chairperson of the committee?
Executive Director of the NIH
T/F:
The Newborn Screening Center shall Be supervised and staffed by trained personnel who have been duly qualified by the DOST.
False.
NIH, not DOST
Section 13:
The NIH shall establish a Newborn Screening _ _, which shall be responsible for the national testing database and case registries, training, technical assistance and continuing education for laboratory staff in all Newborn Screening Centers
Reference Center
What acts as the principal repository of technical information relating to newborn screening standards and practices?
NIH Newborn Screening Reference Center
