person centred active support Flashcards

1
Q

what does quality of life depend on?

A

It is important to recognise that the quality of life depends very much on the support provided by staff and others in a supporting role.

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2
Q

who is the most important sources of reinforcement?

A

Staff are often the most important sources of reinforcement both in terms of helping the person to achieve success by providing just the right amount of assistance, and also in terms of shaping the behaviour of the people they support by the feedback, either verbal or non-verbal, and the reinforcement they provide.

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3
Q

how much assistance do staff provide?

A

Staff provide very little assistance, they provide assistance less than 10% of the time or less than 6 minutes and every hour shown by Mansell et al., those that need the most help levels of assistance are usually even lower typically less than 1 minute and every hour.

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4
Q

what are statistics from Emerson?

A

On average people with severe disabilities spend at least 50% of their time not engaged in any meaningful activities are interactions shown by Emerson.

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5
Q

what is the aim of person centred active support?

A

Person centred active support tries to provide enough help to enable them to make the most of all available opportunities at home, in the community and in their relationships.

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6
Q

what kind of approach does person centred active support adopt?

A

The support received by people with intellectual disability is distinctly active with the person-centred approach this distinguishes it from the more ‘passive’ minding that people with intellectual disabilities often receive. It is the difference between doing things for or to people and actively doing things with people people are being supported are put at the centre of what staff do, not sitting on the periphery. The person-centred approach puts clients in control of how when and for long they will take part in any activity.

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7
Q

what values have modern services developed overtime?

A

they include concepts such as social inclusion, participation, competence, independence, choice and control.

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8
Q

what did Mansell in 2005 argue?

A

that clients with intellectual disability are not socially included. if they were we would see them: they would be interacting with other people, they would not be spending most of their of their time sitting in a chair staring at the wall. We would see them and cafes, pubs, on public buses and elsewhere engaging in normal community activities.

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9
Q

how do people with intellectual disability learn?

A

They learn by trying new things but with just enough help to make it a positive experience, they may need more help or need help for longer than the neurotypic would.

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10
Q

what do people with int dis need in order to make decisions?

A

You can only make real choices if you have alternatives to choose from, some knowledge or experience of those alternatives.
If people with intellectual disability were to experience real choice and control we would also see them having their choices respected by their support workers and others where at all possible.

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11
Q

what is Beadle-Browne’s definition of Engagement in 2012?

A

Beadle-Browne in 2012 defines engagement in terms of meaningful activities and relationships, as one doing something constructive with materials such as washing the dishes, cutting the grass, putting items in the trolley, interacting with people like talking with people, listening to people as they talk to you or show you something, joining in group activities such as watching the ball and running after as in football game.

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12
Q

what is the key issue in person centred active support?

A

the key issues is for staff to support clients to be engaged for as long as the person is able or willing to be engaged.

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13
Q

what are issues with maintaining engagement?

A

Some people may be able to engage in a whole task continually, others may be only able to engage for a very short period of time, perhaps dipping in and out of the activity. it may last 5 seconds, 5 minutes or 5 hours.

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14
Q

who dictates how long a client should be engaged for?

A

How long a person engaged in an activity should be dictated by the clients, not by those who support them. The nature of activities should be determined by the person’s individual preferences and agendas.

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15
Q

who has control over what the client engages in?

A

clients have to be encouraged to try new things but they can still have control over how, when and for how long they engage in activities.

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16
Q

how do support staff interpret the word ‘meaningful’?

A

Sometimes support staff interpret the word ‘meaningful’ to mean something that is: meaningful/functional/pleasing/important to the individual even if that activity does not improve the person’s quality of life.

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17
Q

are repetitive behaviours ‘meaningful’?

A

Repetitive behaviours may be pleasing or functional but they are not meaningful because they do not improve quality of life taking.

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18
Q

why do we need to engage?

A

Engagement is vital for social inclusion and social relationships because it provides the basis for friendship and living together

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19
Q

what are the principles of person centred active support?

A

The principles of active support person-centred active support focuses on enabling people with intellectual disability to do as much as possible for themselves rather than doing things for or to them.

20
Q

what is an Enabling relationship?

A

enabling people with intellectual disability to do as much as possible for themselves rather than doing things for or to them.

21
Q

what is the aim of the Enabling relationship?

A

The aim of the Enabling relationship is to support successful engagement in meaningful activities and relationships and to use engagement as a means to which we can promote a good quality of life for the individual.

22
Q

what are the four key principles of person centred active support that Mansell describes?

A

1) every moment has potential
2) little and often
3) graded assistance to ensure success
4) maximising choice and control”

23
Q

what does ‘every moment has potential’ encapsulate?

A

Every moment has potential is the importance of making the most of all opportunities to involve people with intellectual disability in meaningful activities and relationships in their day-to-day lives.
Activities should be varied and include a mixture of old and new, of everyday and special, of leisure, home based, community based and work activities.

24
Q

what is the role of support staff in every moment has potential?

A

The role of support staff is to fill in the gaps between what clients can do and what support they need for Success.

25
Q

what does ‘little and often’ encapsulate?

A

Little and often is about offering people frequent opportunities to engage in meaningful activities and relationships.

26
Q

what is graded exposure, in terms of ‘little and often’?

A

Giving clients little tastes of activities which they might enjoy with good support to ensure that they succeed is the way in which staff can coax people with intellectual disabilities.

27
Q

what did Clarke in 1995 claim?

A

Preferred activities are associated with greater participation and less challenging behaviour, Clarke 1995.

28
Q

how do we engage ppl with int dis in activities?

A

it is important to get their attention; use understandable language and communication as appropriate for them, avoid overwhelming them with instructions, conversation or other environmental distractions and have everything ready so that it is obvious what they’re about to do.

29
Q

what does ‘graded assistance’ encapsulate?

A

Graded assistance is about offering people just enough support to engage in meaningful activities to do so successfully rather than doing task for them or leaving them to do difficult tasks unsupported.

30
Q

how should staff cooperate in graded assistance?

A

Support staff should provide the kind of help clients like best, for example: of finding alternatives to physical guidance if people don’t like to be touched.
It is always better to start by providing them with less help, this offers clients the opportunity to increase their independence.

31
Q

what is Fading in terms of graded assistance?

A

Over time they may reduce the level of assistance they provide as clients increase their independence in conducting the task.
It aims to eliminate or reduce the aversive consequences of failure for both the person being supported and the person supporting them, Kazdin 1989.

32
Q

what does ‘maximising choice and control’ encapsulate?

A

Maximising choice and control is about the importance of offering people a wide range of choice and control over the specific activities and relationships in which they engage, rather than choosing these activities and relationships for them or controlling their actions within them.

33
Q

what does ‘maximising choice and control’ involve?

A

It involves using their strengths and shaping their ability to make choices by supporting them to try different activities little and often.
It involves respecting their choice of activities once they have had some experience of the options available to them.
It is also about respecting their decisions about when, how and for how long the engage in these activities. If support staff respect clients’ decision then clients are more likely to participate the next time they offered support to engage in an activity.

34
Q

what can staff do to make their options clearly understandable?

A

the use of Visual means may be helpful, these include: choice boards, signs, photos and objects of reference. Open choices such as “what would you like to do now” may be difficult for many people to respond to.
Offering choice and control is part of providing clients diagnosed with Autism with predictability and routine so that they know what to expect will happen next in their lives. This helps to reduce anxiety and therefore reduce that challenging behaviour.

35
Q

is there evidence to show that person centred active support is clinically effective?

A

person-centred active support has been shown to increase engagement in meaningful activities and relationships.
It has been shown to increase people’s participation in daily life activities as well as their adaptive behaviour.
There is evidence that it can reduce challenging behaviours in particular repetitive self-stimulatory behaviour or behaviour for which the causes are a lack of stimulation or attention.

36
Q

is there evidence to show that person centred active support has an effect on support staff?

A

Person-centred active support also increased job satisfaction and reduce staff turnover. Reduced staff turnover increases the consistency of support provided to clients, which in turn impact and likelihood of Clinical interventions being implemented and maintained over time.

37
Q

what is the aim for person centred planning (PCP)?

A

Person-centred planning of people who are disabled to support them to explore their dreams and aspirations for the future.
it involves setting long-term goals and directions for clients and there is focus on their development over time.
It involves regular review; this means that goals and achievements can be revisited and changed on a regular basis.
way of helping ppl think about what is NB, how they want to live and what supports do they need to do that, engaging with person and asking them what is good in your life, what’s working and not working for you. difficulty is when person doesn’t have language skills and finds it hard to think abstractly, this is v hard to do.

38
Q

what is person centred funding?

A

person-centred funding gives clients and their families control over who supports clients, when support is provided and for clients who need support to access the opportunities around them.

39
Q

what are the principles of PCP?

A

inclusion: everyone has to be included and move away from special schools in republic of Ireland. autism schools found it hard to exist in an environment of forced inclusion, some families took government to court for their child to bekept in normal school to get other resources they deserved for child.
participation: considered a good thing, goal is to increase participation.
dignity and respect: outcome that they will have greater dignity
choice: ppl have greater choice in life in immediate day to day and long term goals, envision future for themselves and have a say in what that future should be like

40
Q

what is the initial step of PCP?

A

first thing is to encourage all people to develop a positive view of self, life and future. requires you to believe in the process, if dont buy into idea that this is meaningful then you’re not gunna get any benefit. this concept of belief is true in therapy as well as it won’t work for you if you believe it wont work. attitudinal thing is one of biggest obstacles in process then you wont get anywhere. generally hard to get people to buy into things, resistance within orgs and person itself, resistance and inertia are big challenges in working env.

41
Q

how does PCP figure out what’s good for you?

A

Person-centred planning tries to figure out a good future for you by:
1 finding out what is good and not so good in your life now;
2 working out what to do about what is not so good;
3 understanding and doing something about the things that are most important to you;
4 finding out and doing something about your hopes and dreams for the future,
developing your abilities and gifts and dealing with your concerns;
5 looking at all the choices available to you now and making more choices available in
the future;
6 bringing people together to get everyone (not just services) involved in making things
better for you.

42
Q

who are the people taking part in PCP?

A

You, the person the planning is supposed to be all about. The person the plan is for is sometimes called the ‘focus person’.
• Someone who is trained to help you draw up a person-centred plan. This person is sometimes called the “plan facilitator”.
• Your “circle or network of support”. This means everyone you might like to involve in developing your plan and putting it into action. This includes family, friends, advocates, service providers and local community groups.
• A person or group of people who will help make sure your plan is put into action. They can be called a “person-centred planning champion” or a “guidance coalition”.

43
Q

what are the different tools that aid people in thinking more concretely about PCP?

A

MAPS (making action plans)

PATH (planning alternative tomorrows with hope)

44
Q

what is PATH?

A

Planning Alternative Tomorrows with Hope
PATH addresses both long and short term planning
•Through the 8-step process, the dream is defined, then a positive and possible goal is set
•Once the dream and goals are agreed upon, action plans are developed and people are asked to volunteer their support
•First steps are decided on, as well as steps to be accomplished by specific dates in the near future:

  • DREAM
  • Goal
  • Actions
  • Next months work
  • 1st Step
  • Ways to build strength
  • People to enrol
  • Now
45
Q

what is MAP?

A

MAP (making action plans)
MAP - a planning process that begins with a story - the history
•Empty container questions that ask about milestones, dreams, fears, strengths and needs
•The end result is to plan simple agreed actions to move forward
•MAP is a good way to ‘get to know’ someone, in schools, in communities, in life