Pediatrics Flashcards
2 most important aspects of peds pall care
symptom management
support with decision making / serious illness
what factors influence the transition from being intellectually aware to being emotionally aware ( for parents )
time spent with the child
interaction with healthcare
What are the key considerations in sharing serious illness information with a child?
- what to tell (and how much)
- when to tell
- who should do the telling
2 concerns about withholding information from a child
- autonomy lost
- relationship may be compromised (child feels misled)
Key consideration in child’s information preference / processing
- age and emotional development
- many want the information to be filtered through parents
- parental knowledge translates to a sense of security, decision confidence
- parents help to understand the information (shared learning)
what is the best ethical approach as is relates to childrens’ decision making
relational approach to autonomy
understanding the pivotal role of the family unit
what aspect of autonomy is most important for children?
being in control of what information they receive
they value choosing their level of involvement
rather than making decisions themselves
what aspects of communication are especially important in children?
implicit communication
non-verbal cues
when can pediatric palliative care begin
in utero
aspects of planning for neonatal EOL (expected not to survive after birth)
- grief support / counselling
- decision making support
- education of siblings
- financial / logistical support
- spiritual support
- birthing plan
- legacy project / creation
- funeral planning
aspects of a birth plan for infant not expected to survive
- understand family values, hopes, fears
- counsel on EOL (incl. misconceptions) and what to expect
- create a symptom management plan
- discuss possible scenarios
- reassess (possibility of living longer than expected, for example)
3 tools for pain assessment in non-verbal children
NRS
Faces pain scale
FLACC - face, legs, activity, crying, consolability
main worries that adolescents have about death
- impact on the world (fear being forgotten)
- what comes after death
- what dying process is like
- well being of family
what are some adverse outcomes for families caring for an ill child?
- depression
- divorce
- financial stress
- unemployment
- grief
what are the 3 situational factors that influence a child’s perception of pain
cognitive - understanding, expectations, strategies
behavioural - activities, staff/parental response, actions
emotional - anxiety, fear, depression