module 4-5 Flashcards
Why might people be afraid to use the word “palliative care” with patients/clients?
Giving up
Substandard care
Avoiding any treatments
A special program or place
What are the five values of palliative care?
- Allevaite suffering
- Improving quality of life
- Normalizing dying and avoiding unnecessary prolongation of dying
- Empowerment and control to the dying person
- Cover all aspects of care, including physical, psychological, social, emotional and spiritual
Used more specifically to define the period of time when a person is dying
End-of-life care
What is the difference between Palliative Care and End of Life Care?
palliative care can (and should) be offered days, months, or years prior to death. End-of-life care is a term used more specifically for the final stage of life (can be difficult to predict in some cases!)
How can we create “home” in other places?
This comes probably from a good place- wanting to promote dignity, power, choice for dying people; and recognizing that fairly globally, people express a preference to “die at home”
“Placing Work” creates “home” wherever a person is
Anguish after a significant loss; may be related to a death, but not necessarily. Often leads to a grief reaction- this may include physiological changes, confusion, ruminations on the past, worry about the future.
Grief
The stage or condition after having lost someone or something. A bereaved person may be grieving.
Bereavement
The process of feeling and expressing grief after a loss; mourning reactions might include sadness, anger, relief, anxiety, and physiological changes
Mourning
Tend to unconscious, immediate, less controlled. They occur naturally. While they are natural, they may feel overwhelming.
Grief Reactions
More conscious, deliberate processes. More planned, thoughtful, reflective around a bereaved person’s needs
Grief Responses
Following a loss, people will often experience grief reactions- this is natural. These grief reactions should abate and settle over time. However, sometimes grief reactions do not settle.
Complicated Grief
May also be referred to as “Prolonged Grief Disorder”
Complicated Grief
Complicated Grief
Ongoing grief one year after the loss of a loved one
Where a person expresses
Identity disruption
Marked sense of disbelief about the death
Avoidance of reminders that the person has died
Intense emotional pain related to the death
Difficulty with reintegration
Emotional numbness
Feeling that life is meaningless
Intense loneliness
When “society” states that we should not grieve; that our grief responses are not fitting to the circumstances or situation
Disenfranchised Grief
Could be related to:
The nature of the relationship (i.e. an ex-partner; a celebrity)
A death that is stigmatized by society (i.e. suicide, abortion)
A relationship that is stigmatized by society (i.e. the partner within an extramarital affair)
An older adult!
Disenfranchised Grief
Our society places little value on older adults as contributors; thus, when an older adult passes, their death is often minimized
Disenfranchised Grief
Grieving while the person is still alive
Ambiguous Grief
A person may be physically present, but may not be the person who you know and loved
Dementia
Mental illness or substance use disorder
Changed relationship
Ambiguous Grief
The person is right here—- why do I feel so sad?
Ambiguous Grief
We all have a worldview and schemas or sets of shortcuts that help us to quickly understand and organize the world around us. Helps to inform our values and belief systems about… everything!
IT is when we lose non-tangible things.
Nonfinite Grief
A loss could shake our sense of safety and predictability in the world; our sense of “how things are supposed to unfold”
Nonfinite Grief
We may not recognize this, or take time to grieve these losses
Nonfinite Grief
Openly showing and sharing feelings; very emotionally expressive; display intense feelings with others; seek and accept help from others (join support groups, seek help from friends)
Intuitive Grief
Limited range of emotional responses; thinking rather than feeling.
Instrumental Grief
How does an infinity sign symbolize grief?
They seek to adapt, not looking for closure. Every time they remember their loved one like anniversary, birthday”Jar of jem” as the profound center, they feel the moment happens again. Until then its manageable. then go backs on the time.
Setting Grief Boundaries
boundaries are like personal limits we set to feel safe and comfortable. These limits can vary depending on our relationship with people – we might be more open with close friends and family. In times of grief, we might feel vulnerable, and boundaries help protect what we share with others, like information, time, privacy, and energy.
If you’re talking to someone who is grieving, you can help them figure out and express their needs. Some common areas where they might need boundaries are:
Privacy: They might need space and time alone. Encourage them to let others know when they want some privacy.
Time: Grieving takes time, and everyone does it differently. It’s okay to say no to activities or requests that feel overwhelming.
Emotions: Grief is emotional, and it’s okay to set limits on how much and when they want to talk about their feelings.
Home/Private Time: Sometimes, people need a safe and quiet space. It’s okay to ask for alone time at home.
Finances: Grieving can be financially stressful. Setting limits on spending or asking for financial help when needed is okay.
If they don’t need help, it’s okay to say no. Taking time off work is okay if they need it. They don’t have to share all the details of their loss if they’re not comfortable. It’s also okay to set boundaries on who they talk to and how often, making it clear that they won’t engage with someone who doesn’t respect their limits.
