Meredith

Question 1

What are the SIX core principles of the NHMRC ethical guidelines for conducting research with ATSI people?

SI CC E R R R

Answer 1

1. Spirit and integrity
2. Cultural continuity
3. Equity
4. Reciprocity
5. Respect
6. Responsibility

Question 2

In the context of the NHMRC’s ethical guidelines for conducting research with ATSI people, how to do reflect principle 1 - SPIRIT AND INTEGRITY?

Answer 2

Basically follow the other principles, from what I can gather

Kind of about respecting the cultural inheritance and the links that bind past, present and future generations together

Question 3

In the context of the NHMRC’s ethical guidelines for conducting research with ATSI people, how to do reflect principle 2 CULTURAL CONTINUITY?

Answer 3

1. Understanding Aboriginal and Torres Strait Islander Peoples’ experiences and PERCEPTION of research as an EXPLOITATIVE exercise.
2. Recognising the importance of the personal and COLLECTIVE BONDS within Aboriginal and Torres Strait Islander communities and the critical function of these bonds in their social lives.
3. ENGAGING with Aboriginal and Torres Strait Islander people and COMMUNITIES; sometimes this may be collectively, sometimes this may be with individuals and sometimes it may be both.
4. Finding ways of working that do not diminish the right to the assertion or enjoyment of CULTURAL DISTINCTIVENESS.
5. Demonstrating respect for the intrinsic values-based expectations and identity of Aboriginal and Torres Strait Islander people and communities.

Question 4

What are some examples of fulfilling the CULTURAL CONTINUITY principle (2) of the NHMRC’s ethical guidelines for conducting research with ATSI people?

Answer 4

1. NEGOTIATED PARTICIPATION in cultural events and the sharing of information more broadly (e.g. sacred sites; women’s business and men’s business).
2. Establishing mechanisms that incorporate the balance between collective and individual identity.
3. Establishing a COMMUNITY ADVISORY GROUP and respecting the community’s decisions regarding the way the research is to be conducted from project conception to conclusion.
4. Considering the use of Aboriginal and Torres Strait Islander standpoints and METHODOLOGIES when developing research proposals, where appropriate.

Question 5

What are the main links between the CULTURAL CONTINUITY principle (2) of the NHMRC’s ethical guidelines for conducting research with ATSI people, and the national statement?

Answer 5

Links to research merit and integrity

Particularly the ends not means stuff

Question 6

In the context of the NHMRC’s ethical guidelines for conducting research with ATSI people, how to do reflect principle 3 EQUITY?

Answer 6

1. Recognising and valuing Aboriginal and Torres Strait Islander Peoples’ knowledge and WISDOM. Aboriginal and Torres Strait Islander Peoples value their collective memory and shared experience as a resource and inheritance.
2. Recognising and valuing Aboriginal and Torres Strait Islander Peoples’ current and historic BIOLOGICAL and GENETIC RESOURCES resources and ensuring fair recognition of these resources.
3. Ensuring the fair and reasonable DISTRIBUTION OF BENEFIT for Aboriginal and Torres Strait Islander people and communities to achieve equity in economic, legal, social and health status. In mutually beneficial relationships, the benefits may be tangible or intangible and may take many forms. Some benefits may not relate to the research project in question. The distribution of benefit stands as a fundamental test of equity. The distribution of the benefits of research is also discussed as part of the reciprocity value.

Question 7

What are some examples of fulfilling the EQUITY principle (3) of the NHMRC’s ethical guidelines for conducting research with ATSI people?

Answer 7

1. Establishing equitable PARTNERSHIPS between researchers, participants and communities.
2. Actively engaging participants and communities in NEGOTIATIONS about the MEANING of the research topic and the methods of research.
3. Considering (where appropriate) that the first LANGUAGE of the participants be used as part of the communication strategy (e.g. information sheets, consent forms, gathering data, feedback and final reports to participants).
4. Ensuring that all legal matters (e.g. intellectual property) are fairly and appropriately addressed in the research agreement or other legal documents (see Cultural and intellectual property on page 17 and Research agreements on page 16).
   • Including participants and communities in all steps of the research process and ensuring that protocols relating to consent have been implemented (see Consent on page 15; see also Keeping research on track II 2018).