Impact of long-term condition Flashcards

1
Q

Person-centred care

- 5 principles

A

Patient at centre of decision making

International Alliance of Patients’ Organisation Declaration

  1. Respect
  2. Choice and empowerment
  3. Patient involvement in health policy
  4. Access and support
  5. Information
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2
Q

Increasing problem/prevalence

A

Epidemiology

  • Incidence: number of new cases of a disease in a period of time (causation/aetiology)
  • Prevalence: number of people in a population with a specific disease at a defined period of time (current healthcare workload)
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3
Q

More common in older and deprived groups

A
Older age 
- 58% of people over 60
- 14% of people under 40
Deprived
- 60% higher prevalence and 30% more severe disease in poor social class
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4
Q

Long-term condition statistics

A
  • 50% of GP appointments
  • 64% of outpatient appointments
  • > 70% of inpatient beds
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5
Q

Long-term conditions can lead to

A

Multiple handicaps

  • Physical
  • Social
  • Psychological
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6
Q

Chronic pain can lead to

A
  • Reduction in work capacity (1/3 with disability are employed)
  • Other disabilities
  • Constraints on family life
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7
Q

Broad impact

A

Individual

  • Negative: denial, self-pity and apathy
  • Positive: motivation

Family

  • Financial
  • Emotional
  • Physical
  • Contagious

Community/society

  • Isolation of individual
  • Community success judged on how it looks after ill members
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8
Q

Natural history

A
  • Acute onset
  • Gradual onset: rapid/slow
  • Relapse and remission
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9
Q

Aetiology of long-term conditions

A
  • Genetic factors
  • Enviromental factors
  • Both
  • Neither
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10
Q

Variety of individuals’ responses to long-term conditions

A

Vulnerability

- Individuals capacity to resist disease, repair damage and restore physiological homeostasis

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11
Q

Stigmatisation

A
  • Invisible/visible/both
  • By those who are unaffected
  • Coping: disclose or conceal condition
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12
Q

Treatment

A
  • Resolve disease or treat symptoms
  • Come to terms with chronic disease
  • Admit failure in diagnosis or cure is necessary
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13
Q

Burden of Treatment

A

Demands/workload of healthcare and its effects on those with long-term conditions

  • Lifestyle modifications
  • Monitoring and managing symptoms at home
  • Polypharmacy
  • Complex admin system working with uncoordinated health and social care system
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14
Q

Biographical disruption

A

Long term condition leads to loss of body confidence

  • in social interaction
  • renegotiation
  • need to make sense (good/bad) of condition before adjusting
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15
Q

Expert patient

A

Patient understands disease better than healthcare professional
- Key decision makers

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16
Q

Disease

A

Symptoms, signs, diagnosis (biomedical perspective)

17
Q

Illness

A

ICE, patient perspective

18
Q

Disability (WHO)

A
  1. Body and structure impairment
  2. Activity level/limitation
  3. Participation restriction
19
Q

Epidemiology of disability (6)

A
  • Congenital
  • Injury
  • Disease (non-/communicable)
  • Alcohol/drugs (iatrogenic/illicit)
  • Mental illness
  • Malnutrition/obesity
20
Q

WHO medical model of disability

A
  • Individual cause (accident whilst drunk)
  • Pathology (obesity)
  • Individual intervention (health professional advice)
  • Individual change (in behaviour)
21
Q

WHO social model of disability

A
  • Societal cause (low wage)
  • Housing conditions
  • Social/political action (facilities for disabled)
  • Social changes (language)
22
Q

Disability Legal rights

A
  • Disability Discrimination Acts 1995 and 2005
23
Q

Attitude towards disability

A
  • Listen to patients and learn
  • Take into account age and culture
  • Ensure empathy
  • Don’t spectate: assess, coordinate MDT, intervene with rehab
24
Q

Factors affecting an individuals reaction to disability

A
  • Nature of disability
  • Information (education, intelligence, access to info)
  • Personality
  • Coping strategy
  • Individual role
  • Mood and emotional reaction
  • Reaction of those around
  • Support network
  • Time to adapt
  • Additional resources e.g. benefits
25
Q

Sick role: patients

A
  • Exemption from societal norms
  • Not responsible for condition
  • Should try to get better
  • Seek professional help and cooperate
26
Q

Sick role: healthcare professional

A
  • Objective (not judge morally)
  • Act for patient interest (not greed)
  • Obey professionalism code
  • Maintain necessary knowledge and skill
  • Right to examine intimately and prescribe medication
27
Q

Wilson and Jungner Criteria for screening

A
  1. Disease knowledge (recognisable latent/early stage, known natural course)
  2. Test knowledge (suitable, acceptable to population)
  3. Disease treatment (accepted, facilities available, agreed policy for whom to treat)
  4. Cost considerations (economically balanced)