Impact of long-term condition Flashcards
Person-centred care
- 5 principles
Patient at centre of decision making
International Alliance of Patients’ Organisation Declaration
- Respect
- Choice and empowerment
- Patient involvement in health policy
- Access and support
- Information
Increasing problem/prevalence
Epidemiology
- Incidence: number of new cases of a disease in a period of time (causation/aetiology)
- Prevalence: number of people in a population with a specific disease at a defined period of time (current healthcare workload)
More common in older and deprived groups
Older age - 58% of people over 60 - 14% of people under 40 Deprived - 60% higher prevalence and 30% more severe disease in poor social class
Long-term condition statistics
- 50% of GP appointments
- 64% of outpatient appointments
- > 70% of inpatient beds
Long-term conditions can lead to
Multiple handicaps
- Physical
- Social
- Psychological
Chronic pain can lead to
- Reduction in work capacity (1/3 with disability are employed)
- Other disabilities
- Constraints on family life
Broad impact
Individual
- Negative: denial, self-pity and apathy
- Positive: motivation
Family
- Financial
- Emotional
- Physical
- Contagious
Community/society
- Isolation of individual
- Community success judged on how it looks after ill members
Natural history
- Acute onset
- Gradual onset: rapid/slow
- Relapse and remission
Aetiology of long-term conditions
- Genetic factors
- Enviromental factors
- Both
- Neither
Variety of individuals’ responses to long-term conditions
Vulnerability
- Individuals capacity to resist disease, repair damage and restore physiological homeostasis
Stigmatisation
- Invisible/visible/both
- By those who are unaffected
- Coping: disclose or conceal condition
Treatment
- Resolve disease or treat symptoms
- Come to terms with chronic disease
- Admit failure in diagnosis or cure is necessary
Burden of Treatment
Demands/workload of healthcare and its effects on those with long-term conditions
- Lifestyle modifications
- Monitoring and managing symptoms at home
- Polypharmacy
- Complex admin system working with uncoordinated health and social care system
Biographical disruption
Long term condition leads to loss of body confidence
- in social interaction
- renegotiation
- need to make sense (good/bad) of condition before adjusting
Expert patient
Patient understands disease better than healthcare professional
- Key decision makers