impact of family n terminal illness Flashcards
what feelings are felt in the first few days post diagnosis
shock, disbelief, denial, fear, relief, anger, guilt, helplessness
what are the 5 stages of the kubler-ross grief cycle
- denial
- anger
- barganing
- depression
- acceptance
what aspects of life can be impacted by terminal illness (5)
practical and domestic; emotional; social; spiritual; financial
what d parents value when a diagnosis for their child is delivered
open, sympathetic, direct, uninterrupted discussion that allows for sufficient time for them to take in the news
role of carers (3)
ADLs; mediating (between professionals and patient); nursing tasks
concerns for carers (8)
ability to provide care; stress; uncertainty; fear; conflict; altered role/lifestyle; own physical health; finances
what emotions might a carer be feeling (9)
anger; anxiety; denial; depression; dissatisfaction with life; exhaution; guilt/resentment; irritability; stress-relayed physical conditions
what problems might carers face (4)
extra demands on time/energy; changing roles/responsibilities; changing ability to work; pressure to continue caring and have a life outside
what is an open family system
a family system that communicates freely, has flexible boundries, rules are up to date and promote growth
what is a closed family system
indirect/restricted communication; overly dependent on one another; inflexible rules
7 aspects of effective palliative care
symptoms control; psychological support; communication; information; practical support; EoL care; bereavement support
what are the needs of the family/carers (6)
to understand diagnosis; understand causes of illness; symptoms management; likely prognosis; how ther pt might die; what services are available and ow to access them
what families are at risk
families with other children/already disabled members; single parent families; separating families; PMH mental health problems
signs of a struggling family (5)
frequent calls out to GP/nurse; illness of carer; relationship breakdown within family; symptoms not responding to treatment; psychological distress in carers
recommendations for carers
take breaks; take care of self; understand limits; get help; professional support
