Hospice and Palliative Care Flashcards

1
Q

Palliative Care =

A

patient and family-centered care

optimizes quality of life by anticipating, preventing, and treating suffering

Palliative care throughout the continuum of illness involves addressing the physical, intellectual, emotional, social and spiritual needs and to facilitate patient autonomy, access to information, and choice

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2
Q

General Principles of Palliative and Hospice Care

A

Client and family as unit of care

Attention to physical, psychological, social and spiritual needs

Interdisciplinary team approach

Education and support of client and family

Extends across illnesses and settings
Bereavement support

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3
Q

Hospice Care =

A

Ideally a patient living with chronic, debilitating or progressive disease receives palliative care throughout the course of the disease, and as death approaches, services are seamlessly increased to meet the patient’s individual needs

A diagnosis of six months or less to live

A desire to pursue comfort care over curative treatment

Goal is symptom management

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4
Q

Hospice Eligibility- highly regulated to qualify for reimbursement of services

A

Life-limiting condition with a prognosis of six months or less if their disease runs its normal course

Frequent hospitalizations in the past six months

Progressive weight loss (taking into consideration edema weight)
Increasing weakness, fatigue, and somnolence

A change in cognitive and functional abilities

Compromised Activities of Daily Living (ADLs)

Deteriorating mental abilities

Recurrent Infections

Skin breakdown

Specific decline in condition

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5
Q

Palliative Care vs. Hospice Care

A

Palliative Care- continue with life prolonging therapies/treatments.

Hospice Care- comfort care; no longer therapies/treatments to prolong life.

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6
Q

Curative and Palliative Approaches to Care

A

Palliative Focus

Client/Family identify unique end of life goals

Assess how symptoms, issues are helping/hindering reaching goals

Interventions to promote comfort

Curative treatment still indicated if desired

Quality of life closure

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7
Q

Principles of Hospice Care

A

All principles of palliative care apply

Difference is the shift is made to comfort care rather than curative care

No longer curative treatments

Symptom control

Attention to psychological, social and spiritual needs

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8
Q

Palliative Care and Hospice Care

A

Expert symptom relief

Suffering can be decreased

Allows for client and family to attend to issues

Patient and Family- unit of care

Relationship repair/enhancement as indicated

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9
Q

Goals of Care

A

Patient/Family Goals of Care
Goal directed care
Quality of Life- paramount

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10
Q

Role of Physical Therapy

A

Assist the patient in maintaining functional abilities for as long as they possibly can.

Reduce the burden of care for caregivers involved, including friends and family members.

Assist in pain control.

Active interprofessional team member.

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11
Q

PT Interventions

A

Pain management and relief

Positioning to prevent pressure sores, lessen pain, prevent contractures, and help with breathing and digestion

Endurance training and energy-conservation techniques

Gait training, transfers, safety instruction, stair climbing

Therapeutic exercises

Management of edema, a condition characterized by an excess of water in the body

Equipment recommendations, training and modification

Home modifications

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12
Q

Prognostication

A

Is poor for many non-cancer diagnoses

Referral is often made when death is imminent

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13
Q

Autonomy

A

Person’s right to self-determination, unrestricted by the control of others, even when it contradicts clinician’s recommendation

Hospice philosophy strongly supports client choice

Greatest fears
> being abandoned
> pain

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14
Q

Informed DECISIONS

A

Built on ethical principle of veracity or truth telling.

Truth telling is essence of open, trusting relationship.

Sense of knowing often relieves burden of the unknown

Patient Autonomy

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15
Q

Dignity and Respect

A

Accept patients and families “where they are”

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16
Q

Health Care Provider’s Role

A

Advocate, educate, and support patient’s and family’s decision

17
Q

Concept of Suffering

A

State of severe distress that threatens intactness of the person.

Failure to respond to client’s needs intensifies suffering.

Identify sources of suffering.

18
Q

Therapeutic Communication

A

Some things cannot be fixed.

Use of therapeutic presence

Maintaining realistic perspective

19
Q

Presence

A

A way of expressing compassionate caring.

To be present with the dying and their families is to allow oneself to enter into another’s world and to respond with compassion

Presence may in fact be our greatest gift to these patients and families

20
Q

Advanced Care Planning

A

Is the process whereby a patient, in consultation with health care providers, family members, and important others, makes decisions about his/her future healthcare.

Advanced Directives- are written documents that may be an instructional directive, a proxy, or both.

21
Q

Advanced Directives

A

Provide instruction regarding a patient’s wishes about life-sustaining treatment, often including ventilators and feeding tubes.

Patients with decision-making capacity have the right to refuse any treatment.

Advanced Directives extend these same rights when decision-making capacity is compromised

22
Q

Common Medications Used in End of Life Care

A

Analgesics

Opioids

Block release of neurotransmitters that are involved in processing pain.

Adverse effects- extremely rare

23
Q

Medications

A

Morphine Sulfate: Most commonly used

Gold Standard, Highly effective with pain and breathlessness (shortness of breath) management

Dilaudid (Hydromorphone): Synthetic Opioid, useful when patient is allergic to Morphine Sulfate

Fentanyl

Transdermal-Fentanyl Patch = useful when client can not swallow, does not remember to take medications or has side effects to other opioids.

Trans mucosal; Lollipop

24
Q

Comfort at Death
Primary Symptoms Requiring Intervention:

A

Pain
Dyspnea
Respiratory secretions
Restlessness
Agitation

25
Q

Clinical Signs as Death Approaches

A

Vital Signs

Respirations become shallow and often increase.

Increasing difficulty swallowing

Death Rattle/ Respiratory Congestion

Noisy, moist sound

Very scary to family

Patient usually unaware

Treat with repositioning and medication as indicated (Scopolamine Patch)

Profound weakness
Gaunt and pale physical appearance
Drowsiness and/or minimal responsiveness
Lack of interest in food and fluids
Body becomes cool- extremities cool first
Mottling- extremities first