Final Exam (Weeks 7-12) Flashcards

1
Q

Define Interprofessional Collaboration

A

It is an expected standard of practice for all healthcare professionals to ensure the delivery of safe, quality health and social care services

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2
Q

In their concept analysis of interprofessional collaboration and chronic disease, Bookey et al., use Rodger’s method. Define this method.

A

Rodger’s method emphasizes the role of time and context in understanding concepts and considers the perspectives of multiple disciplines.

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3
Q

According to Bookey et al., what are the antecedents of interprofessional collaboration?

A
  1. Role awareness: understanding your role and the roles of others (most frequently cited)
  2. Interprofessional education: members of different teams coming together to build knowledge for patient care
  3. Trust between team members: having confidence in and being able to rely on other members of the care team
  4. Belief that interprofessional collaboration improves care: develops when collaborator themselves have the belief and make the effort to work collaboratively
  5. Organizational support
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4
Q

According to Bookey et al., what are the attributes of interprofessional collaboration?

A
  • an evolving interpersonal process
  • shared goals, decision-making and care planning
  • interdependence
  • effective and frequent interpersonal communication
  • evaluation of team processes
  • involving older adults and family members in the team
  • diverse and flexible team membership
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5
Q

According to Bookey et al., what are the consequences of interprofessional collaboration?

A
  • redefining team composition: team members who may not originally have been included (i.e., homecare) may now be involved
  • comprehensive care planning and coordination of services
  • improved provider knowledge
  • confidence and job satisfaction
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6
Q

How do Bookey et al., define interprofessional collaboration?

A

An evolving interpersonal process, involving a diverse team of health care and other community providers who interdependently engage in frequent communication and shared decision-making, for the purposes of providing optimal health and social care services to clients and their families. Team composition and team processes are flexible and consistently evaluated to effectively and efficiently meet client needs.

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7
Q

How is a role defined?

A

A multi dimensional psychosocial concept defined as a traditional pattern of behavior and self expression performed by or expected of an individual within a given society.

As nurses, clinical practice blends our knowledge, skills, and attitudes with caring for people.

Professional and work relationships have distinctive expectations for your role participation as a member of an organization.

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8
Q

According to Arnold & Boggs, what are the standards for a healthy work environment?

A
  • A share mental model: agreed upon collaborative effort and effective team work
  • Open communication
  • Collegiality: effective blending of collective competencies of each provider to deliver health care. In relation to nursing, collegiality includes:
  • efficient communication
  • fostering collaboration
  • recognizing value of self and others
  • embracing the imperative of a healthy work environment
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9
Q

Describe the difference between ineffective and effective communication

A
  1. Communication in silos –> common language with a focus on personal problems
  2. Communication based on status –> Open team centered communication
  3. Disruptive communication –> mutual goals (develops shared mission and values)
  4. Dominate, order –> Role clarity, collaborative model (mutuality respects expertise, teamwork, leadership)
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10
Q

What are barriers to effective communication?

A
  • Not sharing information among team members
  • Hierarchical structure inhibiting some members from speaking up
  • Variations in communication styles or vocabulary
  • Complacency
  • Defensiveness
  • Conflict
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11
Q

Define reflexivity

A

Reflexivity is a way to frame individual actions and behaviors with reference to the effect of the actions and behaviors of others and the context in which these actions occur.

Outcomes of reflexivity activities include:
* concise and structural dissemination of information during shift report
* Nurse engagement during interprofessional clinical discussions
* Collective clinical confidence

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12
Q

What are some tools that can be used to enhance team communication?

A
  • SBAR: situation, background, assessment, and recommendation/request
  • Check-back
  • Briefs and de-briefs
  • Huddles
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13
Q

What is IPASS?

A

Illness severity: how sick is the patient/how worried are you? (stable, watch, unstable) indicate resuscitation status
Patient summary: what is the patient here with? What other relevant medical problems do they have?
Action items: what are you asking your colleague to follow-up on? List what needs to be done, by whom and when
Situation Awareness and Contingency Planning: what to look out for and what to do if it does happen
Synthesis by Receiver

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14
Q

Define workplace incivility and its consequences

A

Defined as low-intensity social behaviors that are generally considered unacceptable in the workplace and may intend to cause harm.

Consequences of workplace incivility:
* medication errors
* financial constraints
* post-traumatic stress disorder
* increased nursing turnover

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15
Q

What are the steps to conflict resolution?

A
  1. Identify sources of conflict: who was involved, what happened, etc.
  2. Set goals: reframe a situation, assume responsibility, obtain factual data, intervene early, consider the other’s view point, etc.
  3. Implement Solutions
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16
Q

Describe the difference between ‘Compliance’ and ‘Adherence’

A

The term compliance carries an undertone of paternalism and, in the context of a patient’s expected compliant behavior, also suggests that blame lies with the patient when their behavior does not meet with the healthcare professional’s recommendations. In early literature, the term compliance was used to describe the patient’s obedience to recommendations with prescribed treatment. Supports an ideology of professional power of HCP over the patient.

The WHO attempted to change the undertone of blame associated with compliance by introducing the term, adherence. Adherence implies that the patient agrees with the prescribed recommendations rather than passively obeying.

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17
Q

Discuss how ‘Concordance’ differs from ‘Adherence’

A

Concordance implies the development of an alliance between patients and healthcare providers based on realistic expectations as opposed to misunderstanding, distrust and concealment. The term also may suggest that patients and healthcare providers have come to a mutually agreed upon regimen through a process of negotiation and shared decision-making.

Use of the term concordance, the newest and perhaps theoretically different approach, is an attempt to equalize the power balance between healthcare professionals and patients, while at the same time placing patients’ expectations about treatment recommendations as equal to or even more important than healthcare professional’s expectations.

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18
Q

What are the 5 dimensions of non-adherence?

A
  1. Health system & HCT factors
  2. Social/economic factors
  3. Therapy-related factors
  4. Patient-related factors
  5. Condition-related factors
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19
Q

Define Adherence

A

Adherence is a complex, multifaceted concept. It is defined by the WHO as: “the extent to which a person’s behaviors-taking medications, following a diet, and/or executing lifestyle changes-corresponds with agreed recommendations from a health care provider”

Consists of a collaborative decision. The client does not passively agree to the HCP decision.

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20
Q

What are the 3 consequences of adherence?

A
  1. Patient related: improved morbidity, reduced mortality, conflict resolution, attributional uncertainty, empowerment and improvement in QoL.
  2. Health care professional related: ambivalence towards a patient’s adherence behavior, misinterpretation, disempowerment, acceptance or avoidance of the adherence behavior.
  3. Health care system related: decrease in cost and health care service use
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21
Q

What is the Social Cognition Theory and what does it posit in regard to adherence?

A

SCT emphasizes and individual’s social learning/knowledge (i.e., the ability to be influenced by one’s own environment) and the assumption that we learn new behaviors by observing the behaviors of others. If the behavior results in positive rewards individuals are more likely to imitate it. Conversely, if a behavior results in negative rewards individuals are less likely to imitate it.

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22
Q

What is the Health Belief Model and what does it posit in regard to adherence?

A

The most widely used, HBM explores the client’s attitudes and perceptions to adherence behaviors. This model tries to under stand the reason that patients do not adopt preventative behaviors. It proposes that clients follow the prescribed treatment regimen based on the following 4 elements and the client’s understand of them:
i. perceived threat of disease
ii. perceived benefits of the health behavior
iii. perceived barriers to that behavior, and;
iv. cue to action

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23
Q

What is the Theory of Planned Behavior and what does it posit in regard to adherence?

A

Looks at patient’s perceived behavioral control

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24
Q

What is the Protection Motivational Model and what does it posit in regard to adherence?

A

Non-adherence is a product of patient’s maladaptive coping mechanisms - denial or avoidance can be a protective factor for them.

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25
Q

What is Leventhal’s Common Sense Model and what does it posit in regard to adherence?

A

CSM explores the client’s subjective experiences of their illness to understand the way they cope and adapt to their illness. Describes the dynamic interaction among the variables that influences health behaviors. It is useful to understanding the client’s adherence response over time. It consists of 4 dimensions of psychosocial adjustment.

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26
Q

What is the Theory of Reasoned Action and what does it posit in regard to adherence?

A

Emphasizes the importance of social norms

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27
Q

How did Herrera et al., (2017) come to define adherence after exploring various conceptual definitions and theoretical understandings?

A

The authors state that non-adherence or resistance is not necessarily irrational but an expression of “conflict between different internal motivations or voices” of the patient. Some patient voices are coherent with adherence; others are not. Associated with patient values and must be acknowledged and expressed.

They further described pro-adherence explanations, including:
1. Self-worth (“I do this for myself because I care for myself”
2. Well-being (“I control my Hypertension because I want to have good health”)
3. Noticing benefits (“I continue my treatment because I have noted how my blood pressure goes down and I feel healthier”)
4. Fear of consequences (“I follow the doctor’s orders because I am terrified of what will happen to me if I do not”)
5. Being even better (“I know if I adhered more I would feel even better”)
6. Autonomy (“I do this because if I do not take care of myself, nobody will”)
7. Affiliation (taking care of others, sharing with others, being cared for, not a big effort)

and anti-adherence voices
1. Self-worth (“I am not weak or a hypochondriac, so I do not need any special care”)
2. Quality of life (“If I adhere more I will make my own life miserable and not worth living”)
3. Health of protecting from iatrogenic effects (“I will not adhere more because I fear the negative effects of the treatment”)
4. Autonomy (“I do not like to be slaved by the treatment or the doctor or anybody”)
5. Hopelessness (“This is too much for me, it is not worth the effort because I just cannot”)
6. Affiliation (“If I was alone I could do what the doctor ordered, but I am not alone”)

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28
Q

Why are objective measures (i.e., pill counts, lab values, and blood tests) not an effective way of measuring non-compliance?

A

Objective measures have their importance but often fail to take sufficient account of the social context of patient’s lives. It cannot be assumed that non-compliance is only a matter of patients choosing not to follow advice. Choice may be constrained by the social context in which the person lives, which needs to be explored further and validated.

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29
Q

What is the Social Model of Health and how is it used in understanding non-compliant behavior?

A

The SMH recognizes how social factors shape health behaviors, it takes a holistic approach to provide an in-depth understanding of how treatments affect individuals lives. It enables nurses to consider patient’s lives into the decision making. Interventions in the SMH include:
* relationship building to reduce resistance to advice given
* put together information that is relevant, and useful to each patient
* understanding patient’s decisions leads to different types of explanations, types of solutions to support adherence

30
Q

How does patient empowerment contribute to adherence?

A

Patient empowerment encourages nurses to accept the “challenge and tensions” that exist in trying to empower patients. For example, accepting that patient’s health choices may not align to treatment plans. This approach is rooted in acceptance, no coercion, and not re-education. Social context helps to explain patient behavior as rational.

Interventions include:
* Listening to patients
* Sharing patient rationale

31
Q

According to Whittaker (2015) what factors contribute to the term “non-compliance”?

A
  1. Nursing views of non-compliance
  2. Patient perceptions of health risk
  3. Individuals’ tolerance of risk
  4. Lack of motivation
32
Q

According to Whittaker (2015) what 3 processes contribute to a better approach to non-compliance and instead focus on patient education and empowerment?

A
  1. Incorporating a worldview based on the interpretive paradigm - rather than an empirical paradigm; allows the nurse to seek understanding of the patient’s definition of the situation and the interpretation or perspective given to each situation by the patient
  2. Self disclosure (sharing of self and experience)
  3. Patient-centered care

Interventions include:
1. The role of the nurse in:
* providing compassionate nursing care
* understanding the client’s point of view
* building a therapeutic partnership with the client/family
* Building trust with the client
* Guiding the client in self-care and self-management
2. Patient-centered care approach
3. Helping the client to understand the risk of the disease
* using communication techniques such as Motivational Interviewing to understand and empower the client

33
Q

What is the Transtheoretical Model of Change?

A

TTM consists of 6 stages of change:
1. Pre-contemplation
2. Contemplation
3. Preparation
4. Action
5. Maintenance
6. Termination

34
Q

What is the precontemplation stage of the transtheoretical model of change?

A

In the precontemplation stage the person is not currently considering change in the next 6 months.

When an individual is in this stage, the nurse can use motivational interviewing techniques to validate lack of readiness, encourage re-evaluation of current behavior, encourage self-exploration rather than action and explain and personalize the risks.

35
Q

What is the contemplation phase of the transtheoretical model of change?

A

In the contemplation stage the person is ambivalent about change, they are not considering making any changes within the next month.

The nurse can encourage evaluation of the pros & cons of behavior change, re-evaluate group image through group activities, and identify and promote new, positive-outcome expectations.

36
Q

What is the preparation phase of the transtheoretical model of change?

A

In the preparation phase the individual is actively making attempts at change within the next month.

The nurse can encourage the evaluation of the pros and cons of behavior change. Identify and promote new positive outcome expectations and encourage realistic, practical and small initial steps. The nurse can also offer referrals to support programs (i.e., smoking cessation groups).

37
Q

What is the action phase of the transtheoretical model of change?

A

The action phase involves actively working toward behavioral change, modifying the environment and the experiences.

The nurse can help the patient restructure cues and triggers and solidify social support, enhance self-efficacy for dealing with obstacles and deal with feelings of loss and frustration.

38
Q

What is the maintenance phase of the transtheoretical model of change?

A

The maintenance phase involves maintaining changes and preventing relapse.

The nurse can help the patient by planning for follow-up and support and reinforcing internal rewards. The nurse can also discuss strategies for coping with triggers and relapse.

39
Q

What is the termination phase of the transtheoretical model of change?

A

In the termination phase, the client has reached 100% self-efficacy (rare). There is no temptation, regardless if the patient is depressed, bored, anxious, lonely, angry, or highly stressed. Individuals are confident they will not give in to temptation and return to their old, unhealthy habit.

40
Q

Define Powerlessness

A

Powerlessness is occurring when an individual assumes the role of an object acted on by the environment rather than a subject acting in and on the environment.

It is the inability to have agency in one’s own life and may be a situational attribute or could be real or simply perceived to be so by the individual. Powerlessness can be short-lived or persistent.

41
Q

What are sources of powerlessness?

A
  1. Loss of one’s sense of internalized security, involving feelings of being out of control; the person feels vulnerable.
  2. Loss of control over one’s body. Not knowing the symptoms of the disease or how to manage the condition.
  3. Loss of control over one’s emotions. The person may feel fear, anxiety, and feel insecure.
  4. Loss of control in the context of transgenerational. Trying to make sense of the condition, find meaning (“why me”?) and fears that this may be passed on to future generations.
  5. Loss of control over time
  6. Loss of control over one’s environment - feeling like “a fish out of water
  7. Loss of control over one’s social and personal identity; a disrupted identity. Role in the family might change and the personal dimension of identity - how the person views themselves - may also change.
42
Q

What factors exacerbate powerlessness in chronic illness?

A
  1. Uncertainty of the chronic illness trajectory
  2. Loss of former self
  3. Lack of knowledge and health literacy
  4. Depletion of social supports
  5. Decrease in the client’s psychological stamina
  6. Fatigue and inability to participate in social activities contributing to social withdrawal and loss of relationships
  7. Marginalization, vulnerability & stigma. Vulnerability may be influenced by social determinants of health such as low income, limited social networks, etc.
  8. Health care system and health care providers. The healthcare system is a hierarchical and paternalistic social structure that favors acute care over chronic illness. Science, technology and life-saving techniques are perceived as more important than caring and compassion for those with chronic illness.
43
Q

What is Critical Social Theory and how does it view powerlessness?

A

CST recognizes social domination, exploitation and oppression as ingrained in social structures that are reproduced through false-consciousness and perpetuate dis-empowerment. Social change must start “at home”; individuals are responsible to question their ways of thinking and resulting actions and not perpetuate domination themselves.

44
Q

Describe the difference between macro and micro sources of power

A

Macro sources of power refer to systems, organizational or societal levels of power and conditions that marginalize individuals.

Micro sources of power refer to interpersonal or relational levels of power.

Power is a relational attribute, it is a dynamic, interactive process that is gained, maintained and diminished in relationships and personal interactions.

Power is dialogical and mediated through language.

45
Q

Define Empowerment

A

Power is an individual psychological characteristic, a personal resource inherent in all individuals, and is the ability to influence what happens to oneself - self management

Empowerment is a health-enhancing process. The outcome is self-efficacy, mastery, control and a renewed sense of self, connectedness and wellbeing. - self determination

Related concepts include: self awareness and self-determination.

46
Q

Describe the difference between intrapersonal and interpersonal empowerment interventions

A

Intrapersonal interventions happen at the individual level and involve critical consciousness raising and self-awareness.

Interpersonal interventions are nursing interventions that move away from the biomedical model to a sociological model of care; re-centering the client and their family. Examples include:
* being empathetic and supportive
* acting as educators, facilitators and advocates
* engaging in critical consciousness raising
* providing evidence based information in the language that the client understands
- cultural and linguistic competence and cultural humility
- person-centered approach

47
Q

How does advocacy promote empowerment?

A

Advocacy is a process or strategy consiting of a series of specific actions for preserving, representing and/or safeguarding patient’s rights, best interests and values in the health care system.

Core attributes of advocacy include:
* safe guarding the client’s autonomy
* acting on behalf of patients
* championing social justice in the provision of healthcare

Behaviors of the nurse, including building trust, providing reassuring words depending on the context, nurse engagement, timely and effective communication.

48
Q

How does providing culturally competent care promote empowerment?

A

Culturally competent care involves a creative and sensitive meaningful understanding of health care knowledge to coordinate the needs to individual groups for acquiring meaningful health and well-being or coping with illness, disorders, and death.

Cultural competence is a dynamic process of acquiring the ability to provide safe, effective and quality care to the patients through considering their different cultural aspects. Includes cultural knowledge.

Cultural awareness is an individual’s understanding of their own biases and prejudices and forms the basis for valuing other’s values and beliefs. Individual may impose their values, beliefs and behavioral patterns of their own culture to people from other cultures.

Cultural sensitivity is valuing and respecting cultural diversity. Enables the nurse to understand how patient’s attitudes and viewpoints affect their behaviors and care-seeking patterns.

49
Q

What are the attributes, antecedents and consequences of Person-Centered Care?

A

PCC is a holistic (bio-psychosocial-spiritual) approach to delivering care that is respectful and individualized, allowing negotiations of care, and offering a choice through a therapeutic relationship where persons are empowered to be involved in health decision at whatever level is desired by that individual who is receiving care.

  1. Attributes: holistic, individualized, empowering, respectful
  2. Antecedents: therapeutic relationship, vision and commitment to PCC, demonstrated through attitudes and behaviors and shared decision making
  3. Consequences: improved quality of care, improved health outcomes, and patient satisfaction
50
Q

Define ‘Family’

A

Family is whoever the client says they are. Composition can include:
* nuclear family
* extended family
* three generational family
* dyad family
* single-parent family
* step family
* blended or reconstituted family
* common-law family
* no kin
* polygamous family
* same sex family
* group marriage
* chosen family

51
Q

Differentiate between caregiver, informal caregiver and family caregiver

A

Caregiver: anyone who provides assistance to another in need

Informal caregiver: anyone who provides care without pay and who may have personal ties to the care recipient

Family caregiver: term used interchangeably with informal caregiver and can include family, friends, or neighbors

52
Q

Define family-centered care

A

A family-centered model of care acknowledges the importance of considering the family system when caring for children or adults with chronic illness.

Grounded in mutually beneficial partnerships among health care providers, patients and families/

The role of the nurse:
* understand the impact of the medical crisis on the family
* appreciate and respond to the emotional intensity of the experience
* determine the appropriate level of family involvement in care

53
Q

Define compassion

A

Compassion is a deep awareness of the suffering of another coupled with a wish to relieve it. A deep feeling of connectedness with the experience of human suffering that requires personal knowing of the suffering of others evokes a more response to the recognized suffering and that results in caring that brings comfort to the sufferer.

54
Q

Define compassion fatigue

A

Compassion fatigue is identified as one of the reasons healthcare providers disengage, have noticeable changes in their clinical practice, and choose to leave the profession.

Attributes include an inability to process emotional stress related to caring for traumatized or suffering individuals, emotional, physical, and spiritual exhaustion, and an abrupt onset of symptoms.

Compassion fatigue can also be known as “secondary traumatic stress”

Antecedants:
* being a caregiver
* prolonged exposure to an individual’s trauma/suffering
* empathy for the suffering person
* a desire to alleviate the individual’s suffering

55
Q

What are some risk factors for abuse?

A
  • functional dependence/physical disability
  • cognitive impairment
  • low income
  • gender
  • financial dependence
  • race/ethnicity
  • mental illness in the caregiver
  • substance abuse in the caregiver
  • martial status
  • geographical location
  • negative stereotypes
  • cultural norms
56
Q

What are the different types of abuse?

A

Abuse is the misuse of power or the betrayal of trust, respect or intimacy in the therapeutic relationship.

Can be defined as:
* neglect
* physical
* verbal/emotional
* financial
* sexual

57
Q

What are nursing informatics?

A

The practice and science of integrating nursing information and knowledge with technology to manage and integrate health information. The goal of nursing informatics is to improve the health of people and communities while reducing costs.

58
Q

What is digital health?

A

It is the use of information and communication technologies to empower nurses and assist the Canadian health-care system. Digital health is inherently patient-centered, emphasizing the use of ICTs to help individuals and their families track, manage and improve their health.

59
Q

What is the Personal Information Protection and Electronic Documents Act (PIPEDA)

A

Personal information can only be used for the purposes for which it was collected. If an organization is going to use it for another purpose, they must obtain the consent again. Personal information must be protected by appropriate safe guards.

60
Q

What is the difference between FIPPA and PHIPA?

A

FIPPA is the Freedom of Information and Protection Privacy Act and it is an act for the province of Ontario that guarantees public access to government information.

PHIPA is the Personal Health Information Protection Act for the province of Ontario and provides direction to all individuals who collect, use, disclose and retain person information and personal health information. Under PHIPA, the patient/substitute decision-maker has the right to access PHI, correct PHI and know who has accessed his/her information and challenge an organization’s privacy practices.

61
Q

What is the benefit of having standardized nursing and clinical terminologies through the International Classification for Nursing Practice?

A

Terminology that enables nurses to describe and report their practice in a systematic way increases nursing visibility, ensures safety, and enhances quality of care.

62
Q

What is SNOMED-CT

A

It is a resource with comprehensive, scientifically validated clinical content that enables consistent representation of clinical content in electronic health records. It is mapped to other initial standards and is used in more than 80 countries. SNOWMED CT is critical for clinical documentation, as it supports the representation of detailed clinical information in a way that can be processed automatically.

63
Q

What are Clinical Decision Support Tools?

A

Systems tailored to support users (healthcare professionals, administrators, etc.) on their decision making process. The system does not make a decision, only provides information to support. Before and after an event, provide feedback, and access knowledge. Also includes recommended default drug doses, frequency of administration, institution protocols, cost reductions, and reminders.

Challenges for implementation of CDSS:
* digital literacy
* initial decrease in productivity as users learn
* adequate training
* system’s usability
* preparation of written processes

64
Q

What are Adaptive and Assistive technologies?

A

Assistive technology helps individuals with disabilities as well as older adults with mobility, safety, and their daily schedules.

Examples include:
* voice amplification systems
* stuttering aids
* artificial larynx
* communication boards
* speech output software
* symbol-making software
* speech generating devices

Adaptivity is defined as a systems ability to automatically adjust its properties to the used and the user situation. The interface should adjust to the user, rather than the user having to adapt to the system.

Examples include:
* electronic devices
* training modules

65
Q

What are patient portals?

A

Platforms designed for patients that provide them with the functionalities such as e-booking, e-visits, prescription renewal requests and provide access to information and autonomy. Increases patient empowerment through improving knowledge of their health and supports self-management.

66
Q

Define internalized stigma

A

internalized stigma is the extent to which people endorse negative beliefs associated with their stigmatized attribute and apply them to the self. People living with chronic illnesses report feeling shame, guilt, and diminished self-worth, embarrassed and responsible for their illness. It is an intrapersonal phenomenon and is embodied by people living with chronic illnesses and therefore may be brought into a variety of social contexts, including healthcare settings.

67
Q

Define experienced/enacted stigma

A

Experienced stigma is the extent to which people perceive that they have experienced stereotyping, prejudice, and discrimination directed at them from others. It is perceived by people living with chronic illnesses within their interpersonal interactions, including those that occur with healthcare workers.

68
Q

Define anticipated stigma

A

Anticipated stigma is the extent to which people expect to experience stereotyping, prejudice, and discrimination directed at them from others in the future. Previous research has found that greater anticipated stigma is related to increased psychological distress. These expectations of stigma may originate from stigma that has been internalized and experienced, and therefore may be partly an intrapersonal phenomenon and partly and interpersonal phenomenon.

69
Q

When examining stigma in individual’s diagnoses with COPD, how did Jerpseth et al., describe their experience?

A

Three main themes were defined:
1. The body as a mirror of shame
2. A sense of being unworthy, invisible & powerless
3. Sharing the burden is too difficult

The participants experienced that the disease defined their value as human beings and that made them feel vulnerable, ashamed and more socially isolated.

70
Q

Discuss how COPD patients experience their body as a mirror of shame

A

The participants experienced their own bodies as disgusting, a tragedy, deceitful and shameful. Their worries were linked to their loss of a body that they once could trust in and gave them an identity of being strong and healthy. Their self image had become completely different from what it used to be, as one of the participants elucidated.

71
Q

Discuss how COPD patients experience a sense of being unworthy, invisible and powerless

A

The participants evaluated the disease as a weakness in themselves as human beings. They took it for granted that the disease was proof that they had done something wrong (like smoking), and that they thereby got what they deserved. In this scenario, they felt as if they had no right to complain and or make any requirements or demands.

72
Q

Describe how COPD patients feel sharing the burden to be too difficult

A

Repeated episodes of exacerbation made the participants feel concerned about their bodily signals and gave them a feeling of loss of control and solitude. Some of them experienced that they had no one to talk to or to share their burden with. The participants wanted to share their burden, but they had experienced uncertainty if someone wanted to comfort them.